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Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

cgrove9 | @cgrove9 | 12 hours ago
In reply to @jamessaxo "Neuropathy is mainly caused by alcohol. It robs nerves of their insulating MYELIN. I learned about..." + (show)
@jamessaxo

Neuropathy is mainly caused by alcohol. It robs nerves of their insulating MYELIN. I learned about myelin after getting trigeminal neuralgia from blowing my sax too much as an 82 yr old. I have an artery rubbing on the trigeminal nerve . It has rubbed off myelin in one spot. If I like to pay $50,000 a brain surgeon will happily insert a packer between.
In the meantime pain is stopped with cabamazepine. Waiting on an MRI to confirm. Could be crowns to two cracked molars is the cause. Try heaps of METHYL COBALAMIN B12. And stop alcohol.
Good luck.

Jump to this post

I have severe small fiber neuropathy/periferal neuropathy that Thad spread throughout my body, face and head.
I’ve barely ever stand alcohol in my life so although it may be a contributing factor to some, it wasn’t for me.
Synthetic B6 often found in energy drinks, supplements and hidden in some coffee can contribute highly.
Cut out all synthetic meds/supplements.
We aren’t all made the same IOW we all process and methylate things differently.
I also encourage you to see a NATURALPATH and have your MTHFR checked out.
If your HOMOZYGOUS or Compound Heterozygous, this could be the underlying reason 🙏

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