Living with Neuropathy - Welcome to the group

Hello. I just joined here and am just learning how to navigate the site.
I have peripheral neuropathy with no diagnosis as to the reason for it. So I am looking for pain relief or a possible cure. I am on 1200 gr a day of Gabapenten, but it is not doing a lot for the pain, especially by the end of the day. Any suggestions?

Welcome @jeanm1, Sorry to hear the gabapentin isn't controlling the neuropathy pain. I also have idiopathic small fiber PN but only have the numbness and no pain so medication is off the list of anything that helps for me. I shared my story in another discussion here - https://connect.mayoclinic.org/comment/310341/. It's good to learn as much as you can about your condition and what treatment options are available that might provide relief. Here are my two favorite reference sites for learning:

--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
--- Neuropathy Commons: https://neuropathycommons.org/

The Foundation for Peripheral Neuropathy has a pretty comprehensive list of complementary and alternative treatments here - https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf.

Have you looked into any alternative treatments?

Thank you for your reply. It is interesting that my sister also has neuropathy and is also not diabetic. However, she experiences numbness more than pain.
I am presently about to research if CBD oil might help.

My neurologist has suggested I can try a different medication if I want to, but warning that every medication has it's side effects. Since I have not had any side effects from the Gabapentin, I have decided to stay on it for now. Some days are better than others, but some days leave me wondering if I should be switching to something else. I don't like taking any more medication than necessary. I do wonder if more exercise like walking, would help or aggravate
the condition?

I'm no expert but I think it helps some but may depend on how strenuous or how long. I try to exercise at least 30 to 45 minutes daily although I sometimes miss a day or two. Here's some references on the topic.

--- Benefits of exercise intervention in reducing neuropathic pain: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3983517/
--- How to Exercise Safely With Neuropathy: https://www.everydayhealth.com/neuropathy/how-exercise-safely-with-neuropathy/

Hello,
I believe exercise can/does help.
Was diagnosed with PN on April 7th, 2023.
I do water walking, water aerobics, biking, walking, and weight training.
I have found I have better circulation in my limbs!
I have recently noticed numbness in my left, upper back.
I think, if we keep moving, we can slow down the process concerning PN.
Just M.H.O. I am not a Dr. or N.P.
Hope this helps! Pat
Pat

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Sounds like a good plan but is often diffic=
ult since I live in a winter climate.  Getting out for a walk can be co=
ld and hazardous under foot!  So I have taken to stair walking, which i=
s also boring!Sent from my iPhoneOn Jun 4, 2023, at 5:42 PM, Mayo Clinic C=
onnect <

Hi @jeanm1, When you reply to an email notification like you would a normal email, your post will have all this extra coding in it from your mail program. It's best to click the VIEW & REPLY button at the bottom of the email notification and then you can type in the reply box below the post.

Hope this helps!
John

I just "contracted neuropathy about 2 months ago, when my legs started to percolate and buzz from the knee to the foot, burning and sizzling when I'm lying down. My legs hurt when I walk very far or try to stand in one place. I'm best sitting down. I'm taking Gabapentin and too many Tylenols or aspirin at night, when it's worst.