The Sound of Post-COVID Syndrome

Hi,I suffer bilateral tinnitus and it’s been almost 5 years. It has taken me years to get to where I was before second Pfizer vaccine and now I feel I’m back to that horrible place of living with this sound. I can’t prove it was caused by the vaccine and they don’t do enough research and I’ll never get this vaccine again. My second dose was August 15 2021. I just pray it’s temporary what else can I do. I’m so disappointed. I waited because I was on the fence to begin with. Next time I’ll listen to my inner voice. I was indoors anyway but happy and now I’m simply miserable. I’d love to know how many others have suffered from the vaccine. I was staying indoors so I never was a risk of getting anyone sick. The vaccines saves lives but now my life is miserable.

Hi Joanne,
I have had tinnitus for several years. Don't know for sure why but I think it is related to the migraines I have had since I was a child. I never paid any attention to it until a doctor asked me if I had ringing in my ears with my migraines and I said "no". I think I had adapted to it and had just been blocking it out because after that I realized that constant hissing really was in my head. I had blamed it on over head lights.......
Dr. Gregory Poland at Mayo Rochester has talked about his experience with developing severe tinnitus about 90 minutes after his second covid-19 vax. I did see another article later that he commented on the need for research of this as a possible side effect. He did comment about receiving many messages from people who had also experienced this as a side effect of the vax. His description sounded like it was quite debilitating for him. You can find his interview on 'Healio' or on the mayo podcasts to read more.
To fall asleep at night I have to put ear buds in and listen to sleep sounds or music. Otherwise I can't fall asleep with the hissing. I also look for podcasts that have speakers that have soothing voices. It doesn't matter what they are talking about. It is just a soothing voice to block the hissing.
I thought about getting a sound machine but I discovered I really need the distracting sound to be right in my ear.
If you have any helpful ideas I would be grateful.

Sorry, I have nothing. I sleep with my television on all night, 5 plus years now. I can’t sleep with my husband because the light and sound drives him crazy. I don’t blame him. Vacationing is tough and many times we get adjoining rooms. I have certain ear buds for certain adventures. I have a head set for the dentist, flight ear buds, restaurant earbuds and others too.
It’s no fun and I was in a better place dealing with it prior to the vaccine. I would never get the boosters. I also got my second vaccine August 2021. I also waited and since I’ve posted my first blog here I have heard of many people who this has happened to. I wish you all the best. I think we just need to find that happy place…blessings, Joanne

The covid vaccines have caused severe tinnitus in several of my friends.

I feel as if I have changed since dealing with Covid. There’s no good care for this! I see a pulmonologist and try to do something every day but everything is such an effort. I need a Covid casemanger/coach and there isn’t anyone like that where I live. It all makes getting olde so much more difficult

It is very discouraging. If I do one thing a day, I consider that progress. Managing symptoms seems to be a full time job!

so I did 3 things Monday and have been good for nothing since then ! My sister told me to use TLC and to incision myself wrapped in softest cotton AND it helps ! Just tired of being tired 😪

Hi Joanne, I just read your post and agree with you, 100%. I too developed a very loud, high pitched ringing in my ears after my Oct. 01, 2021 Pfizer vaccines and my life has been just awful ever since. I’m driven crazy with this non stop sound that seems to vary in its intensity day to day. I’ve lost all my up beat, spunkiness and can barely get through some days. I have trouble falling asleep every night and have the tv on or a sound machine set to ocean waves. During the day I can no longer enjoy the quiet peacefulness of my home and neighborhood and have to wear headphones blasting music in my ears and my head if I want to get anything accomplished otherwise this high intensity alarm ringing in my ears makes me feel out of it, I’m unable to focus on doing ANYTHING which includes work, watching tv, conversing with others, memory, reading, following directions, making decisions, and much much more. I’ve had to pull myself out of drowning misery and depression because of this over and over and over. It makes me crazy, it’s just clogging my head up making me give up on so much because I can’t handle to complexity of everything in life, in general. I too didn’t want to get the vaccines. I too went against my inner voice and got the initial 2 shots, no boosters, no way. I do sometimes wonder if I get the boosters maybe the ringing will go away since everyone I personally know doesn’t have this side effect going on and they all got the boosters! Sometimes this ringing is so debilitating that I begin to think that maybe I should test my theory and get all the boosters and maybe the ringing will STOP, but I’m too scared because what if it gets even worse? I can’t imagine it getting any louder, I even hear it above my own voice within my head.

Hi I understand exactly how you feel!! I get so completely wiped out from doing nothing, it’s so very frustrating and beyond annoying, I get real angry sometimes because that’s not me. I’ve always been adventurous, high energy and was able to run around all day, doing it all and thriving in it. Now I look at something and exhausted, drained. Seems my body aches all over and the aches never stay in one place for long, it’s so weird but ever since I got those Pfizer shots which also makes me angry because I thought Pfizer was a good company out of all the ones putting the vaccines out in 2021!

Best of luck. It’s the worse thing because it’s always there. It’s either high high pitch or a buzz like bees or a loud hiss. It changes constantly. If I fall asleep ever so briefly, it’s so much worse. I’m 68 and I’ll never ever put another vaccine into this body. If my time is up, it’s up.
I first got this years ago on a trip to Paris. I developed pericarditis and it began during that time. The doctors thought that virus settled from my heart to my ears and it would go away. The pericarditis did but the tinnitus didn’t. I worked hard for years to get myself into a somewhat occasional happy place. Then the Covid vaccine just sent the sound to a place it had never been. I’d rather have gotten Covid. I wish I had advice for you, I have none. Best of luck to you…Joanne