1. < Fibromyalgia

Fibromyalgia and adhesion & fascial issues

Posted by kach @kach, Apr 9, 2021

I have fibromyalgia and have had widespread skeletal muscle pain for a number of years. This past year, I started having pain issues due to adhesive capsulitis (freezing of my shoulder and ankle), myofascial adhesions, and plantar fasciitis. Is anyone else with fibromyalgia experiencing these type of issues? I am wondering if they are related to my fibromyalgia or some other underlying problem.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

belford731 | @belford731 | Feb 25, 2023

If u don’t have pain doctor for managing fibromyalgia please find a good one. I go to National Spine & Pain in NJ

REPLY
rjjacobsen | @rjjacobsen | Feb 25, 2023
In reply to @moaweys1010 "Hi, after reading these posts you guys have given me strength to fight this. I have..." + (show)
@moaweys1010

Hi, after reading these posts you guys have given me strength to fight this. I have been suffering from this illness for the past year I am 33 years old no one seems to understand what I’m going through and it happened so fast. I’ve been pushing my body to the limit through injury that initially occurred in my lower back. I did not recover from this and took on extra tasks. Now I have muscle pain all over my body mainly lower back and hands. I’m having difficulty sleeping at night. I have not been diagnosed yet with anything however I do believe it’s mayofascial or Fibromyalgia. How do I know which one I’ve got and how do I get better? What’s the best medicine to take throughout the day and for sleep. Thank you guys.

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I also frequently get myofascial knots in my rib cage and unfortunately have few answers for treatment or prevention. Physical therapy can be helpful in addressing the knots and I do PT myself on the ones I can reach. I do mild stretches - just enough to get the muscles to move across the bones through the facia and try to move gently, but that doesn't seem to prevent the knots and the pain. Also recently diagnosed with FM.

Per my sleep med doctor, I take 3mg of melatonin about a hour before bed time and then a 7.5 mg Rx of Remeron for sleep, 2 arthritis strength (650mg) acetaminophen ER and sometimes 220mg naproxen at bedtime. Melatonin helps get me to sleep, Remeron helps me get back to sleep when I wake up due to pain. The naproxen may be helpful during the daytime.

Due to complexity, I'm thinking seeing a specialist or several different specialists would be advisable. I started with orthopedics because that was the simplest place to start.

All the best to you and your situation.

REPLY
2 replies
moaweys1010 | @moaweys1010 | Feb 25, 2023
In reply to @rjjacobsen "I also frequently get myofascial knots in my rib cage and unfortunately have few answers for..." + (show)
@rjjacobsen

I also frequently get myofascial knots in my rib cage and unfortunately have few answers for treatment or prevention. Physical therapy can be helpful in addressing the knots and I do PT myself on the ones I can reach. I do mild stretches - just enough to get the muscles to move across the bones through the facia and try to move gently, but that doesn't seem to prevent the knots and the pain. Also recently diagnosed with FM.

Per my sleep med doctor, I take 3mg of melatonin about a hour before bed time and then a 7.5 mg Rx of Remeron for sleep, 2 arthritis strength (650mg) acetaminophen ER and sometimes 220mg naproxen at bedtime. Melatonin helps get me to sleep, Remeron helps me get back to sleep when I wake up due to pain. The naproxen may be helpful during the daytime.

Due to complexity, I'm thinking seeing a specialist or several different specialists would be advisable. I started with orthopedics because that was the simplest place to start.

All the best to you and your situation.

Jump to this post

I have knots in my glutes, and they don’t seem to go away after vigorous massages. The glutes have become weak so I can’t sit for long before I start to experience pain in my buttocks and legs. I don’t know how to reverse this can someone please advice how to get rid of glute knots and what medication can I use for sleep as well as strengthening myself.

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1 reply
sunnybarb | @sunnybarb | Feb 27, 2023
In reply to @moaweys1010 "I have knots in my glutes, and they don’t seem to go away after vigorous massages...." + (show)
@moaweys1010

I have knots in my glutes, and they don’t seem to go away after vigorous massages. The glutes have become weak so I can’t sit for long before I start to experience pain in my buttocks and legs. I don’t know how to reverse this can someone please advice how to get rid of glute knots and what medication can I use for sleep as well as strengthening myself.

Jump to this post

Before I was diagnosed with Fibro, I would tell people that I had a "sitting issue" because I could only sit for very short periods and even had to stand in an airplane due to this. Finally, when I found out I had fibro, the doctor explained that the sitting issues are from what you are talking about. I have found that sitting on a heating pad relieves the glute and leg pain when it gets really bad.

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2 replies
moaweys1010 | @moaweys1010 | Feb 27, 2023

How can we recover from this. It’s spreaded all over my body now and it’s only getting worse. I’m having trouble swallowing my face feels like there’s ants all
Over.

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3 replies
rjjacobsen | @rjjacobsen | Feb 28, 2023
In reply to @sunnybarb "Before I was diagnosed with Fibro, I would tell people that I had a "sitting issue"..." + (show)
@sunnybarb

Before I was diagnosed with Fibro, I would tell people that I had a "sitting issue" because I could only sit for very short periods and even had to stand in an airplane due to this. Finally, when I found out I had fibro, the doctor explained that the sitting issues are from what you are talking about. I have found that sitting on a heating pad relieves the glute and leg pain when it gets really bad.

Jump to this post

My PT guy suggested to use a wrapped ice cube on the knot to relax it - once relaxed use heat to address the irritation the knot had caused.

Worth a try.

REPLY
rjjacobsen | @rjjacobsen | Feb 28, 2023
In reply to @moaweys1010 "How can we recover from this. It’s spreaded all over my body now and it’s only..." + (show)
@moaweys1010

How can we recover from this. It’s spreaded all over my body now and it’s only getting worse. I’m having trouble swallowing my face feels like there’s ants all
Over.

Jump to this post

Not a physician, but that's likely something else - I'd recommend seeing a reliable medical professional ASAP.

REPLY
orlanda | @orlanda | Mar 7, 2023
In reply to @rjjacobsen "I also frequently get myofascial knots in my rib cage and unfortunately have few answers for..." + (show)
@rjjacobsen

I also frequently get myofascial knots in my rib cage and unfortunately have few answers for treatment or prevention. Physical therapy can be helpful in addressing the knots and I do PT myself on the ones I can reach. I do mild stretches - just enough to get the muscles to move across the bones through the facia and try to move gently, but that doesn't seem to prevent the knots and the pain. Also recently diagnosed with FM.

Per my sleep med doctor, I take 3mg of melatonin about a hour before bed time and then a 7.5 mg Rx of Remeron for sleep, 2 arthritis strength (650mg) acetaminophen ER and sometimes 220mg naproxen at bedtime. Melatonin helps get me to sleep, Remeron helps me get back to sleep when I wake up due to pain. The naproxen may be helpful during the daytime.

Due to complexity, I'm thinking seeing a specialist or several different specialists would be advisable. I started with orthopedics because that was the simplest place to start.

All the best to you and your situation.

Jump to this post

I see a rheumatologist who specializes in fibromyalgia.

REPLY
orlanda | @orlanda | Mar 7, 2023
In reply to @sunnybarb "Before I was diagnosed with Fibro, I would tell people that I had a "sitting issue"..." + (show)
@sunnybarb

Before I was diagnosed with Fibro, I would tell people that I had a "sitting issue" because I could only sit for very short periods and even had to stand in an airplane due to this. Finally, when I found out I had fibro, the doctor explained that the sitting issues are from what you are talking about. I have found that sitting on a heating pad relieves the glute and leg pain when it gets really bad.

Jump to this post

There is specific medication for fibromyalgia. The pain comes from nerve endings and the lumps under the skin in the muscle are common especially in severe cases. Talk to a physician --preferably a rheumatologist who specializes in FM.

REPLY
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