Fibromyalgia and adhesion & fascial issues

I was diagnosed in 1996. RA in 1979. I do believe I have PMR but my R Dr says no. My inflammatory markers are very low to nil. Is it possible to be positive of PMR with this level on inflammatory markers?

This is exactly what I have been going through. I had frozen shoulder two years apart and now I have ankle capsulitis in both ankles as well as plantar fascitis. I have always been a very active person walking miles and exercising and can't even do basic things anymore. Through the years I have also suffered with really bad TMD as well as SI joint dysfunction and osteoporosis along with MANY other things. I got a steroid in my ankle, wearing a brace, red light therapy, supplements...nothing is helping. I am so frustrated. I just want to be able to walk. Hugs to you all!!!!

@migizii i was diagnosed with fibromyalgia 30 years ago. I radically changed my diet and that got me out of bed. I don’t really have much pain anymore except for headaches and muscle aches if i do too much. I have learned to pace myself. I really feel like it is more ME/CFS now but doctors just look at me with blank stares. I have terrible sleep issues. I’m on nortrityline and estazolam at bedtime but sometimes it still takes me hours to fall asleep and after a sleep study they said I was not getting all the stages of restorative sleep but only sedated. GABA doesn’t help, I can’t take Cymbalta because of liver issues and no pain killers of any kind work on me. I use Nurtec now for migraines and am trying a Dr. Wahls diet to try to calm down my autoimmune issues and help my brain heal. I can’t take LDN either because of the sleep problems. Maybe because I can’t take morphine either. Does anyone else have any other sleep recommendations that have worked for you? I wish I had been told about a Mayo class. How did you get that info? They offered me no help.

@brendagail bioidentical hormones helped me research indicated that I could get back on them and I did. Also, I bought a good set (the cheap ones are not the way to go.) of silver threads embedded in bedsheets. That was a game changer now I fall asleep immediately and I stay asleep all night long. A total game changer for me. I did that on Mother’s Day. It’s been about six months and I think maybe the Silver wears off in the sheets, but I had a good run of solid sleep for six months. Also, you said nothing about exercise. Absolutely exercise even if it’s a gentle walk for 30 minutes or an hour exhaust me to fall asleep and have a deep night sleep. My son said glycine has restored his REM deep sleep so I’m gonna give that a shot too.

I believe I understood my doctor to say that according to current thinking, fibromyalgia is a condition of the fascia. I recently had a massage and told the masseuse about my fibromyalgia, and she proceeded to work on the fascia which hurt like hell, but I’m now in my longest period yet without a severe pain episode (3 weeks). May just be a coincidence but I’m hopeful this may be a real help.

I have fibromyalgia and I'm experiencing the same issues. I have been suffering for 10 years. Lyrica and Cymbalta have helped me. However, 6 months ago I found an amazing fascia release massage therapist. It's the first for of massage therapy to help me. I have issues with my shoulders, arms, hands and plantar fascitis. How were you diagnosed with adhesive capsulitis? My massage therapist works to break up my adhesions, per her description.

@bumblegal I have similar symptoms to you. I found a fascia release massage therapist 6 months ago and it's the most effective treatment I've found for me personally. I still have to wear compression sleeves and take my medication, but after ten years, I have a more optimistic outlook since starting fascia release.

@lwmarcrum I found a fascia releases massage therapist 6 months ago and it's been the most effective treatment for my fibromyalgia! So I really think it's a condition of the fascia too. I had to respond to this because it's the best development I've had for my chronic pain in years. Of course I'm still in pain, but a major reduction and also, a concrete lead...