Living with epilepsy - Introduce yourself & meet others

Thanks! I’ve never heard of that type of doctor before. But I am new to this medical dilemma. Glad to hear you are doing much better. This forum is neat, as I get to meet people from all over the world! I am a farmer in southwest Wisconsin.

Hi @albendorf
Be welcome in this group! Thank you for your wishes!
An epileptologist is a neurologist specialized in Epilepsy. If I knew that beforehand, I would have looked for one straight away when I got diagnosed with epilepsy by a psychiatrist in 2019. But as I did not know it and was at that time very new to epilepsy, I continue treating myself with this psychiatrist and then changed to other neurologists, until I learned that the best in Epilepsy is to be treated by an epileptologist.
Since you have mentioned you are new to this medical dilemma, I suggest you to have a look at the site of the Epilepsy Foundation. I have learned a lot through it.
Santosha

@albendorf
When you lost your memory, did any of it ever return?
You mentioned you were unconscious for two hours, were you in Status Epilepticus and seizing or was most of that time when you were asleep after the seizure ended?
Of all the seizures I had in the last 50+ years I’ve never had a headache as a result from one.
Here is some information from the Epilepsy Foundation regarding headaches
https://www.epilepsy.com/stories/seizures-and-headaches-they-dont-have-go-together
Take care,
Jake

Excellent article. Thanks for sharing. All I know, was that I was unconscious for over 2 hours. Someday, I would like to compare notes with you, if you’re interested. Wish you the best!

Hello I’m Jean and just found this site. I have a seizure disorder since age 12 and I’m 62 now. I take anti seizure meds and have a VNS. Looking forward to meeting others!!

A very warm welcome, Jean!
Wishing you all a good weekend!
Santosha

Thank you so much have a good weekend as well.
Jean

Hello….my first time and I feel like I don’t have enough information on having seizures or dealing with having them…

Hi @senoj18 Good Morning
A warm welcome to this group.
Reading and learning about epilepsy could be very helpful at this stage. At least it has helped me much when I got diagnosed in 2019. I could understand certain reactions I have had in the past (I have lived with epilepsy without knowing it for 30 years). The Mayo Clinic has several nice materials on epilepsy. Have also a look at the Epilepsy Foundation website.
Have a nice Sunday!
Santosha

Hi, Perhaps I am late for connecting with this group but perhaps there is no such thing as never too late. At 39, 30 yrs ago I had my 1st seizure (maybe) w/ 3 kids not being able to drive was the worst thing I could think of. Having the seizure because of a stroke (?) wasn't great either but that was ruled out but permanent right side weakness occurred. After 12 mos I did get to drive again but finally 7 years later after my 3rd accident they found out I was having continuous generalized seizures and took away my license I was angry later called highway patrol officer and thanked him who knows whose lives he may have saved. I've dealt with severe depression but finally have gotton to the point where I am like I same I am no different than a doctor with a really crappy day with a whole lot less money and goodies but frankly thats life. I got a VNS implant 5yrs ago and the intermittent "shakes" are gone. I turn 70 in a few months my kid once 8,10 &13 are all in their 40s nearly 50 yrs of marriage and a lot of up and down there too life hasn't been easy so I realize all of you coping with epilepsy especially those with grand mal and more complicated mine probably seems like a walk in the park so whether you are at the beginning or middle or don't know where (like me) well ==== Leslie == Oh if you are diabetic, with eye problems, GI problems, Kidney, back, == well I here for all that too. I kind of have cornucopia of issues. 🙂