Living with epilepsy - Introduce yourself & meet others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 7, 2016

Welcome to the Epilepsy group on Mayo Clinic Connect.
Having seizures, or being told you have epilepsy, affects people in different ways. Let's learn from each other and share stories about living well with epilepsy, coping with the bumps and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. You're likely to also meet fellow member and volunteer patient Mentor, Dawn (@dawn_giacabazi), when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one. Grab a cup of tea, or beverage of you choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

Leonard | @jakedduck1 | Jun 29, 2023

@1775house
@santosha
Have either of you been told you're having nonconvulsive status epilepticus when you have these long episodes.
Could it be possible you are sleeping after the seizure.
Chris, have you ever had focal to bilateral tonic-clonic seizures, previously called secondarily generalized seizures?
Take care,
Jake

Chris Gautier OR Santosha | @santosha | Jun 29, 2023

Hi Jake,
I do believe I had a nonconsulvive status epilepticus in 2018, when I was not yet correctly diagnosed. I was some hours talking about things that made no sense at all. The doctor who diagnosed me with epilepsy in 2019 said to me that this was caused by medication. At that time, I was diagnosed with depression and taking anti-depressive medication.
Yes, I had the experience of a secondarily generalized seizure in 2020 due to the great drop of my sodium level in my blood caused by Trilpetal.
Have a good evening!
Chris