Connect
Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
Like
Helpful
HugInterested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
Connect
do not go to these small hospitals not known for arrthymias but to a well known hospital that deals with arrthymias and be sure the person you see has the credentials and experience to diagnosis it. go to your primary and ask for a reference to see an electrophysiologist that specializes in this i have this thats how i know
-
Like -
Helpful -
Hug
1 Reactionsee a electrophysiologist at a hospital that treats this condition alot
These things are slow to develop, angieb16. They sneak up on you and clobber you, but they aren't likely to be dangerous, not yet. You are doing the right things, and so are your medical care givers. They need to consider ways to see exactly what is going on, so wearing a Holter monitor for a full day is likely to show when you have the palpitations. It might interest you to know that palpitations are what YOU feel, not what the EKG shows. The real nature of the arrhythmia, if that is what is going on, will be revealed in time. Meanwhile, a visit to a good cardiologist should have you on an anti-coagulant like apixaban (Eliquis) at the very least, and maybe on a low dose of metoprolol if the heart rate is too high much of the time. Again, see a cardiologist ASAP. Also, if there is an arrhythmia, say it turns out to be atrial flutter or fibrillation, those can often be mechanically fixed by an electrophysiologist. They're heart electricians, but with really nice cars. Also, if you have a fairly high 'burden' of ectopic beats (extra or premature beats), you may have to also take an initially low dose of anti-arrhythmic drugs like flecainide, sotolol, diltiazem, propafenone, and so on. Many of us are still alive years after developing an arrhythmia. Just get the rate and rhythm under control as much as you and a cardiologist, or an electrophysiologist, can. You'll feel better and sleep better, and soon you'll come to accept your new condition. Happens to the best of us.
-
Like -
Helpful -
Hug
2 ReactionsThank you so much for your advice. That is exactly what I will do. So comforting to know I am not alone.
How are you dealing with your PACs?
-
Like -
Helpful -
Hug
2 ReactionsME too I have been doing this some more that n before I feel better and my heart doesn't seem to be running off so much .
I have PPO insurance so I can just call one up but I want to get my results from my cardiologist first see what she says and then I will make an appt with electrophysiologist
They developed within a year because I was going to have surgery and they never told me anything was wrong until now I haven’t had palpitations since that day but my heart does race at night most of the time during the day I am fine but at night it’s when it happens and the chest pain for the most part is all day…I have an appt next Monday for my holter monitor results hopefully they don’t show anything major I will look into going to an electrophysiologist
Bonjour! I'm sorry to intrude into the ongoing conversation. Please skip over my comment to continue with the current topic. I'm just going to say hi. 😀
I'm a 39 years-old Tetralogy of Fallot survivor. I had surgery at age 2 (shunt) and 5 (reconstructive) with check-up appointments until age 12. I've developed a fear of hospitals, and needles, during these years. I've dropped out of sight of the medical system early in my teenage years. I had my heart checked once back in 2016 then went on with my life when told that everything was fine. I'm happily married since 2007 and have two kids (age 12 and 5).
In March 2021, I was diagnosed with third degree block; the scar tissue had expanded and blocked the electrical activity of the lower section of my heart. I had a pacemaker installed. At that time was also found that I had a defective pulmonary valve. A biomechanical replacement was installed in July.
I'm very grateful to be alive today. I was told that my condition left unchecked would have resulted in heart failure shortly. I'm also honestly struggling with my "new" limitations and the frustration that comes with them. I have tried to find support groups in my city, to no avail. Also, my family and friends mean well, but they don't really understand what I'm going through: medication side effects, physical discomfort depending on humidity in the air (around the scars), beating "resonance" when the PM kicks in, etc. I'd like to have an honest conversation that won't end with "take it slowly, give yourself time, forget what you were doing before..."
Anyway, enough babbling, I just wanted to say hi! 😀
-
Like -
Helpful -
Hug
2 ReactionsI have been thru this problem find Dr that you feel confident with and can relate to
I have this issue the hospitals that are bigger and more specialize in your problem like an electrophysiologist is better. A regular cardiologist has not got this training. Look for the. doctors credentials and experience and how good his rating is