I was, I had a 5 cm myocardial bridge which was unroofed on 12/4/14. My story is too long to post here but MB is a very serious condition and the care I received at the Mayo Clinic by Dr. Lerman was excellent. I am currently working with the team at Stanford as I live in the San Francisco area. If you have any questions I would be happy to talk to you or anyone else. I had a very significant bridge and while the surgery has not completely corrected the endothelial dysfunction the bridge caused it has made a huge improvement in my life. I am back to competitive Ironman competition.
Hello, I am in Las Vegas but was in Bay Area 3 years ago diagnosed with MB after 30 years of symptoms. Last week I flew back to Stanford and Dr Tremmel performed a second cath. for more accurate data. I know Stanford pops up everywhere when doing a search but Cleveland Clinic and Mayo Clinic also have treated this condition. Since having surgery at Mayo and subsequent treatment at Stanford, which of the hospitals is best in your opinion. My visit last week to Stanford left me with a feeling that Sr. Shnitger Tremmel and surgeon Dr. ?? may be of the best but not so comfortable with the Cardio Department as a whole as I believe Cleveland would likely be best. What do you think and would really like to chat live if you would. Jeff
I'm currently at Stanford Dr. Shnitger but also considering Cleveland Clinic and Mayo Clinic. These 3 are the only I've found so far but ignorance is plentiful in regards to this condiition. LEt me know.....Jeff
I will be having surgery on Nov 21 with Dr. D. I have 2 issues an AAORCA with an intraarterial course from left sinus along with a myocardial LAD distal bridge. I am saying huge huge prayers that I get relief. I am UBER confident of my Dr. I have stalked him online and he is pretty amazing. I haven't seen anyone that has BOTH issues, but would like to talk to someone that has. One foot in front of the other!!!
I found this post very helpful, thanks to you all!
Last August, I started to have crazy heart sensations from one morning to the other at rest as well. I felt super tight in the chest, tachycardia (at rest too), feeling of the skipped heartbeat. Now 4 months later still the same. I did an EKG, stress test, Cardiac MRI, and angiogram but it's all normal. I have some PVC/SVT (about 30 per day), a bit of tachycardia (app, 1-2%) and they found one single heart block Moritz 2. I know I am not well at all so I am literally going crazy. Could it be a Myocardial Bridging missed in the image?
It could also maybe be a long covid symptoms...Or vaccine? I don't know...I have another ongoing immune deficiency of unknown origin as of now but with multiple tests its not being found (no autoimmune, infection, cancer, genetics cause etc).
Just joined the group. I hope everything went well with your husband. Myocardial bridging, from what I was told, is not very common. My local hospitals and Drs felt my symptoms were anxiety until I went unresponsive. In April 2018 I was fortunate enough to see a Dr at Mayos that quickly diagnosed severe left side myocardial bridging. I had open heart surgery at 48 yrs old within the week.
I am so sorry to hear that. May I ask how they did the diagnosis (which test)? I just posted a post with my story at the end and I feel that I might be having this...
Hello, I have been recently diagnosed with myocardial Bridge (moderate to severe). Do you know of any doctors that deal with this condition in New York or Cleveland clinic? I don’t seem to be able to find any doctor that is knowledgeable about this and my doctor does not think is a dangerous thing to have m. Thank you
I was recently diagnostic with Myocardial brigde, My symptoms were Fatigue, Chest discomfort and Tachycardia associated with exercises, but lately at rest. ECG was positive for ischemic changes. Strest test rarely improved my ECG changes. CT Angiogram showed MB and small SOVA(Sinus of Valsalva Aneurysm) I have a couple of questions. 1-Why stress test improved my ECG changes? 2-Is there any association between MB and SOVA? It would be greatly appreciated if you could answer my questions. Thank you. Sorry for my english.
Having recently been diagnosed with a Severe Myocardial Bridge after having sever chest and neck pains I began to research. There is an excellent Facebook group called Mycardial Bridge Support Group...anyone can join.....the moderator is a victim and there is a wealth of information with videos and places to go to get it repaired...procedure is called "Unroofing" first used at Stanford Univ. in California....supposedly they are the experts....next is Cleveland Clinic in Ohio and then there is a guy in Gainsville, GA Dr. T. Sloane Guy that does the "robotic surgery unroofing" procedure that does not require the sternum to be cut. Best of luck. The problem is old school thought taught in med schools say that Myocardial Bridging is Benign.....how can it be benign if people are SOB and having pains in their chest and neck and walk around feeling like they are going to expire any minute? The web site I mentioned is fantastic!
Hello, I am in Las Vegas but was in Bay Area 3 years ago diagnosed with MB after 30 years of symptoms. Last week I flew back to Stanford and Dr Tremmel performed a second cath. for more accurate data. I know Stanford pops up everywhere when doing a search but Cleveland Clinic and Mayo Clinic also have treated this condition. Since having surgery at Mayo and subsequent treatment at Stanford, which of the hospitals is best in your opinion. My visit last week to Stanford left me with a feeling that Sr. Shnitger Tremmel and surgeon Dr. ?? may be of the best but not so comfortable with the Cardio Department as a whole as I believe Cleveland would likely be best. What do you think and would really like to chat live if you would. Jeff
Note: There is an excellent Facebook group called Myocardial Bridge Support Group. Join that group and you learn even more. There is a doctor in Gainsville, GA , Dr. Guy, that does robotic surgery for this condition and that means he does not cut the sternum and recovery time is much faster. Good luck and join that FB group...it is truely awesome! Good luck
@raweber, may I ask if you would share a bit more? Have you been diagnosed with myocardial bridging? What are the symptoms associated within condition?
There is an excellent Facebook Group to join for this condition called Myocardial Bridge Support Group. It is excellent and has videos and true stories of people with this condition. The fact that many cardiologist think of it as a Benign Condition (as they are taught in med school) I find somewhat outdated thinking and how can it be benign if people are walking around with SOB and chest and neck pains enough to keep them up at night? FB group is excellent.
Yes, I was diagnosed with myocardial bridging 11/01/17 as a result of a heart cath. Initial symptoms included chest tightness/ache, tingling in arms, shortness of breath, general fatigue and lack of energy. Went to family doctor after not being able to give blood due to my hemoglobin being too low. I have extensive family history of heart disease (mother passed away of heart attack). She initially did an EKG which was abnormal so she sent me to a cardiologist. Cardiologist did a nuclear stress test and echo which came back inconclusive. Then I had a cat scan which showed a blockage. 11/01/17 I went in for a cath thinking I would end up with a stent. Dr. did not place a stent (felt the blockage was not high enough) but told me I had myocardial bridging and he would treat medically. Since this time I have been on medication and attended cardiac rehab. I am still experiencing the same symptoms (some decrease with medication) so I am coming to Mayo April 16 for a consult.
Good luck please keep us posted on this site. I too was diagnosed with a "severe MB" in LAD mid-point. My follow up visit was moved from March to April after being diagnosed at the end of Dec 2022. Stents being put in a MB is a big NO NO. They can dig into the artery and cause it to rupture and/or break due to the constant squeezing action by the heart muscle. Same goes for Nitroglycerin.....should not be given to an MB patient as it could make the condition worse. Not sure how much research you have done but there is an excellent FB support group for this condition called "Myocardial Bridge Support Group" and it has tons of information. The old school thought for MB is it is "Benign". Newer school thought (Examples: Stanford and Cleveland Clinic) is this condition can be serious and cause damage to the heart via ischemia to the vessel and/or heart. I hope Mayo will "fix you" like new again. Keep us posted.
Connect
Connect
Like
Helpful
Hug
Hello, I am in Las Vegas but was in Bay Area 3 years ago diagnosed with MB after 30 years of symptoms. Last week I flew back to Stanford and Dr Tremmel performed a second cath. for more accurate data. I know Stanford pops up everywhere when doing a search but Cleveland Clinic and Mayo Clinic also have treated this condition. Since having surgery at Mayo and subsequent treatment at Stanford, which of the hospitals is best in your opinion. My visit last week to Stanford left me with a feeling that Sr. Shnitger Tremmel and surgeon Dr. ?? may be of the best but not so comfortable with the Cardio Department as a whole as I believe Cleveland would likely be best. What do you think and would really like to chat live if you would. Jeff
I'm currently at Stanford Dr. Shnitger but also considering Cleveland Clinic and Mayo Clinic. These 3 are the only I've found so far but ignorance is plentiful in regards to this condiition. LEt me know.....Jeff
-
Like -
Helpful -
Hug
1 ReactionI will be having surgery on Nov 21 with Dr. D. I have 2 issues an AAORCA with an intraarterial course from left sinus along with a myocardial LAD distal bridge. I am saying huge huge prayers that I get relief. I am UBER confident of my Dr. I have stalked him online and he is pretty amazing. I haven't seen anyone that has BOTH issues, but would like to talk to someone that has. One foot in front of the other!!!
Hi everyone,
I found this post very helpful, thanks to you all!
Last August, I started to have crazy heart sensations from one morning to the other at rest as well. I felt super tight in the chest, tachycardia (at rest too), feeling of the skipped heartbeat. Now 4 months later still the same. I did an EKG, stress test, Cardiac MRI, and angiogram but it's all normal. I have some PVC/SVT (about 30 per day), a bit of tachycardia (app, 1-2%) and they found one single heart block Moritz 2. I know I am not well at all so I am literally going crazy. Could it be a Myocardial Bridging missed in the image?
It could also maybe be a long covid symptoms...Or vaccine? I don't know...I have another ongoing immune deficiency of unknown origin as of now but with multiple tests its not being found (no autoimmune, infection, cancer, genetics cause etc).
Hi @71jismo,
I am so sorry to hear that. May I ask how they did the diagnosis (which test)? I just posted a post with my story at the end and I feel that I might be having this...
Hello, I have been recently diagnosed with myocardial Bridge (moderate to severe). Do you know of any doctors that deal with this condition in New York or Cleveland clinic? I don’t seem to be able to find any doctor that is knowledgeable about this and my doctor does not think is a dangerous thing to have m. Thank you
Having recently been diagnosed with a Severe Myocardial Bridge after having sever chest and neck pains I began to research. There is an excellent Facebook group called Mycardial Bridge Support Group...anyone can join.....the moderator is a victim and there is a wealth of information with videos and places to go to get it repaired...procedure is called "Unroofing" first used at Stanford Univ. in California....supposedly they are the experts....next is Cleveland Clinic in Ohio and then there is a guy in Gainsville, GA Dr. T. Sloane Guy that does the "robotic surgery unroofing" procedure that does not require the sternum to be cut. Best of luck. The problem is old school thought taught in med schools say that Myocardial Bridging is Benign.....how can it be benign if people are SOB and having pains in their chest and neck and walk around feeling like they are going to expire any minute? The web site I mentioned is fantastic!
Note: There is an excellent Facebook group called Myocardial Bridge Support Group. Join that group and you learn even more. There is a doctor in Gainsville, GA , Dr. Guy, that does robotic surgery for this condition and that means he does not cut the sternum and recovery time is much faster. Good luck and join that FB group...it is truely awesome! Good luck
There is an excellent Facebook Group to join for this condition called Myocardial Bridge Support Group. It is excellent and has videos and true stories of people with this condition. The fact that many cardiologist think of it as a Benign Condition (as they are taught in med school) I find somewhat outdated thinking and how can it be benign if people are walking around with SOB and chest and neck pains enough to keep them up at night? FB group is excellent.
Good luck please keep us posted on this site. I too was diagnosed with a "severe MB" in LAD mid-point. My follow up visit was moved from March to April after being diagnosed at the end of Dec 2022. Stents being put in a MB is a big NO NO. They can dig into the artery and cause it to rupture and/or break due to the constant squeezing action by the heart muscle. Same goes for Nitroglycerin.....should not be given to an MB patient as it could make the condition worse. Not sure how much research you have done but there is an excellent FB support group for this condition called "Myocardial Bridge Support Group" and it has tons of information. The old school thought for MB is it is "Benign". Newer school thought (Examples: Stanford and Cleveland Clinic) is this condition can be serious and cause damage to the heart via ischemia to the vessel and/or heart. I hope Mayo will "fix you" like new again. Keep us posted.