1. < MAC & Bronchiectasis

Again, which nebulizer...HELP!!

Posted by fdixon63 @fdixon63, Dec 10, 2022

Why are things so complicated these days? I'm on my second compressor and it is taking an hour to do a treatment. You hear of folks that say, "I'm done in 5-10 mins." I first neb 3.5% Sodium Chloride mixed with Budesonide followed by Tobramycin. The Budesonide instructions say only use a jet neb NOT an ultrosonic neb. The Tobramycin instructions say you must use the PARI-LC kit. I had to be in the hospital recently for GI bleeding and my inhaled treatments went really quickly but they use the oxygen ?input and can control the flow. We, on the other hand, only have an off and on switch. If anyone out there has any knowledge or thoughts on this matter, it would be greatly appreciated.

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Mentor
Sue, Volunteer Mentor | @sueinmn | Dec 10, 2022

Hi Faye, Are you mixing your own (dry) budosenide in water to neb? If so, you can ask for 3 or 4 ml vials. I use them in my innospire Go all the time. I used the Pari cup for my Toby but with my old green machine instead of the travel one.

REPLY
fdixon63 | @fdixon63 | Dec 11, 2022

The budesonide is a premixed vile 0.25 mg/2mL. As I said in my initial post, the Tobramycin instructions say you must use the PARI-LC kit. Today after 30 mins of doing the Tobi part of the treatment it did not appear any of the level was going down. I finally changed it to a basic type of neb med cup and it went down. The mist would come out of the mouth piece so I just don't know why it was not being used up. I looked at the innospire Go and they are $250 but if I knew if it worked I would invest in it. So do I understand it correct... you use the innospire Go regularly. Also what is the old green machine?? Thanks for the input.

REPLY
1 reply
turnbacktheclock | @turnbacktheclock | Dec 11, 2022

Sue,
How durable is the Innosphere Go? I bought another brand, when the Innosphere Go wasn’t available, and the one I have has not been dependable.
Also, which of the non-portable nebulizers are quiet? Thanks.
J

REPLY
1 reply
crepass | @crepass | Dec 13, 2022
In reply to @fdixon63 "The budesonide is a premixed vile 0.25 mg/2mL. As I said in my initial post, the..." + (show)
@fdixon63

The budesonide is a premixed vile 0.25 mg/2mL. As I said in my initial post, the Tobramycin instructions say you must use the PARI-LC kit. Today after 30 mins of doing the Tobi part of the treatment it did not appear any of the level was going down. I finally changed it to a basic type of neb med cup and it went down. The mist would come out of the mouth piece so I just don't know why it was not being used up. I looked at the innospire Go and they are $250 but if I knew if it worked I would invest in it. So do I understand it correct... you use the innospire Go regularly. Also what is the old green machine?? Thanks for the input.

Jump to this post

I am really loving my innospire go. I don't nebulize medications just 7% NS. It has been a game changer the last 3 weeks. I get nebulized, aerobikized, and postural drainage all done within 20 minutes now. Hard to spend the money but my quality of life is looking up. It does the job of airway clearance much better as well.

REPLY
1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | Dec 14, 2022
In reply to @turnbacktheclock "Sue, How durable is the Innosphere Go? I bought another brand, when the Innosphere Go wasn’t..." + (show)
@turnbacktheclock

Sue,
How durable is the Innosphere Go? I bought another brand, when the Innosphere Go wasn’t available, and the one I have has not been dependable.
Also, which of the non-portable nebulizers are quiet? Thanks.
J

Jump to this post

The head (nebulizer portion) of the Innospire Go lasts me a little over a year before it needs replacement (about 1/2 the cost of the whole thing.) The battery pack seems to be fine after 3 years. But, I heard that while it was off the market, they were "tweaking" the design, so maybe it is better now.

I haven't found a truly quiet non-portable nebulizer. Anyone else? @thumperguy @poodledoc @becleartoday @windwalker @cate123456
Sue

REPLY
4 replies
fdixon63 | @fdixon63 | Dec 14, 2022
In reply to @sueinmn "The head (nebulizer portion) of the Innospire Go lasts me a little over a year before..." + (show)
@sueinmn

The head (nebulizer portion) of the Innospire Go lasts me a little over a year before it needs replacement (about 1/2 the cost of the whole thing.) The battery pack seems to be fine after 3 years. But, I heard that while it was off the market, they were "tweaking" the design, so maybe it is better now.

I haven't found a truly quiet non-portable nebulizer. Anyone else? @thumperguy @poodledoc @becleartoday @windwalker @cate123456
Sue

Jump to this post

Thanks Sue. The search continues.

REPLY
poodledoc | @poodledoc | Dec 14, 2022
In reply to @sueinmn "The head (nebulizer portion) of the Innospire Go lasts me a little over a year before..." + (show)
@sueinmn

The head (nebulizer portion) of the Innospire Go lasts me a little over a year before it needs replacement (about 1/2 the cost of the whole thing.) The battery pack seems to be fine after 3 years. But, I heard that while it was off the market, they were "tweaking" the design, so maybe it is better now.

I haven't found a truly quiet non-portable nebulizer. Anyone else? @thumperguy @poodledoc @becleartoday @windwalker @cate123456
Sue

Jump to this post

I had the green Pari Vios but it died over a year ago. Now use the Pari ProNeb Max. It is advertised to be quieter and faster with medicine delivery. My impression is it was about 2 minutes quicker with 4ml of 7% saline and somewhat quieter. I have a Decibel Meter app and it measures 80 decibels which is not quiet by any means. I use noise cancelling headphones and listen to music as I nebulize. I also have the Innospire Go and it is very quiet and quicker by about 50%, I normally reserve it for time away from home. Bill

REPLY
3 replies
becleartoday | @becleartoday | Dec 15, 2022
In reply to @sueinmn "The head (nebulizer portion) of the Innospire Go lasts me a little over a year before..." + (show)
@sueinmn

The head (nebulizer portion) of the Innospire Go lasts me a little over a year before it needs replacement (about 1/2 the cost of the whole thing.) The battery pack seems to be fine after 3 years. But, I heard that while it was off the market, they were "tweaking" the design, so maybe it is better now.

I haven't found a truly quiet non-portable nebulizer. Anyone else? @thumperguy @poodledoc @becleartoday @windwalker @cate123456
Sue

Jump to this post

I have three nebulizers. I have my workhorse nebulizer which is the Ombra Jet nebulizer, the Trek S from Pari for traveling and the Innospire Go mesh when I need to do my clearance quickly or when I’m on my exercise bike. The Ombra is the nosiest and the Innospire Go is silent.

I think the best one is the one you’re willing to use. As much as I like the Innospire, I am not comfortable replacing the jet nebulizer with using the mesh one exclusively. I like to hedge my bets and so I use both technologies.

Best,
Linda Esposito

REPLY
3 replies
fdixon63 | @fdixon63 | Dec 15, 2022
In reply to @poodledoc "I had the green Pari Vios but it died over a year ago. Now use the..." + (show)
@poodledoc

I had the green Pari Vios but it died over a year ago. Now use the Pari ProNeb Max. It is advertised to be quieter and faster with medicine delivery. My impression is it was about 2 minutes quicker with 4ml of 7% saline and somewhat quieter. I have a Decibel Meter app and it measures 80 decibels which is not quiet by any means. I use noise cancelling headphones and listen to music as I nebulize. I also have the Innospire Go and it is very quiet and quicker by about 50%, I normally reserve it for time away from home. Bill

Jump to this post

Thanks Bill.

REPLY
turnbacktheclock | @turnbacktheclock | Dec 15, 2022
In reply to @becleartoday "I have three nebulizers. I have my workhorse nebulizer which is the Ombra Jet nebulizer, the..." + (show)
@becleartoday

I have three nebulizers. I have my workhorse nebulizer which is the Ombra Jet nebulizer, the Trek S from Pari for traveling and the Innospire Go mesh when I need to do my clearance quickly or when I’m on my exercise bike. The Ombra is the nosiest and the Innospire Go is silent.

I think the best one is the one you’re willing to use. As much as I like the Innospire, I am not comfortable replacing the jet nebulizer with using the mesh one exclusively. I like to hedge my bets and so I use both technologies.

Best,
Linda Esposito

Jump to this post

Hi Linda,
The Pari Trek S has a lithium ion battery. Will airlines allow me to travel with it? Thanks.
J

REPLY
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