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Again, which nebulizer...HELP!!
Why are things so complicated these days? I'm on my second compressor and it is taking an hour to do a treatment. You hear of folks that say, "I'm done in 5-10 mins." I first neb 3.5% Sodium Chloride mixed with Budesonide followed by Tobramycin. The Budesonide instructions say only use a jet neb NOT an ultrosonic neb. The Tobramycin instructions say you must use the PARI-LC kit. I had to be in the hospital recently for GI bleeding and my inhaled treatments went really quickly but they use the oxygen ?input and can control the flow. We, on the other hand, only have an off and on switch. If anyone out there has any knowledge or thoughts on this matter, it would be greatly appreciated.
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For me, I chose the Innospire Go for 4 reasons:
I was nebbing 2-3 solutions 2-3 times a day, and travelling 6-7 month of the year. Speed, portability & battery length were of paramount importance to me. My daughter, 40yo with SEVERE lifelong asthma, mild bronchiectasis & post-Covid lung issues has used about 5 different mech nebulizers, and this one, in spite of its shortcomings, was the only one she recommended.
It was okayed by my pulmonologist should I need to use inhaled Tobramycin or Arikayce again (likely.)
I was able to afford the $250 due to a few dollars in my health incentive account that made it affordable.
I now have recovered to the point that I need to neb less, but I still appreciate being able to do it easily, anyplace & anytime. And it is reliable - I know when the head begins to leak, I have about a month to replace it. So I am able to always have it available.
If I was stationery & didn't care about the noise & speed of nebbing, I would not have spent the money, but it absolutely suits my life at this point.
Sue
Sue
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2 ReactionsI have used the Parí Trek S compressor and Sprint Neb cup for three years. It is small, quiet and easy to travel with. I didn’t get the battery which ups the price, but it’s rare not to have a place to plug it on trips. It also plugs into a car. Works great and not expensive.
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3 Reactions@sueinmn, I love my Innospire Go, and I'm getting ready to start Arikayce in January. I had understood that the drug company would require me to use a particular nebulizer for the Arikayce, one with a compressor. Is it your understanding that I (or my pulmonologist) might have a choice about that? All input is appreciated as I get this new regimen started!
Martha
The Lamira nebulizer was developed (by Pari) specifically for use with the Arikayce to optimize delivery so they will want you to use it for that medication. It will be provided to you with your first month of medication. It actually is pretty quiet and lightweight, and it comes with a carrying case. You will still want to use your regular nebulizer (the Innospire Go) for saline and any other medications.
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2 ReactionsThis is such helpful information! I was provided a Drive Power Neb Ultra by prescription and have tried several portable mesh nebulizers, which I liked because they were faster and silent, but none last more than 3 or 4 months, less when I nebulize 2x a day. Innospire Go sounds like it would be worth it, but is "temporarily unavailable" everyplace I've checked. Hope it comes back.
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1 ReactionI’ve had this little Omron jewel of a nebulizer for four years and never had to replace a part or anything. The cup gets boiled or soaked in alcohol and has lasted four years with out replacing. Easy to clean the cup parts. It’s not very loud — I can watch TV while using it and it’s small and powerful., and you can’t beat the price!!
https://justnebulizers.com/collections/omron/products/omron-compair-nebulizer-system-ne-c801Nebbing 4 ml takes 15 minutes.
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1 ReactionI have the philips respironics innospire elegance machine which I got about a month ago. It doesn't seem that loud and it takes me maybe 7-9 minutes to do 4 ml sodium chloride 3%. I am new to this so I hope I am doing it right. The problem I have is that the parts I wash afterwards don't completely air dry by the time I have to do it again so I had to buy extra sidestream reusable mouthpieces (Medicare would only cover 1 every 6 months) so that I would have a dry one for the evening event. (wash in hot soapy water and rinse for 2 min. every use and boil or microwave once a week). Having an extra one or two gives me some leeway over timing so I bought 2 extra.
Linda do you know if the nebulizer cups for the Ombra can be sterilized in alcohol? I asked the company and they said they would check and call me back but they never did. Also I like to replace the tubing every two weeks. Have you been able to just order the tubing alone for it? Thanks
Hi Irene,
The sterilization instructions do not mention alcohol.
Their tubing is packaged with a cup so it is expensive. I use the Pari tubing--
https://www.healthproductsforyou.com/p-pari-wing-tip-tubing.html
Best,
Linda
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1 ReactionYou can order tubing here: https://justnebulizers.com/products/7-air-tubing?variant=41324869648540
May I ask why you replace it so frequently? My ID doc recommended every 6 weeks, with the cup, when used daily.
If your tubing stays dry, or you use the compressor to expel any moisture before turning it off, there is nowhere for bacteria to grow in it.
Sue