Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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@amandajro

Hello @kfuentes21 and welcome to Mayo Clinic Connect. I am so sorry you have been experiencing all of this. You aren't alone in what you are describing as there have been other members who have shared similar experiences.

You will notice that I have moved your post into an existing discussion on the topic of Internal Vibrations so that you can more easily connect with others and read what they have shared as well. You can find the discussion here:
- Has anyone experienced internal vibrations?: https://connect.mayoclinic.org/discussion/internal-viberations/

Members such as @teddi @birdiegirl1 @rajiv33 and @rwinney may be able to come in and share a bit more with you based on what they've experienced.

Do you feel like you are wanting to get a second opinion?

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Hello @kfuentes21, welcome. I'm Rachel, its nice to meet you. I've been where you're at and am real sorry you are experiencing these neurological disruptions. I know how dismantling the variety of symptoms can be physically, emotionally and behaviorally.

Yes, I was diagnosed with small fiber neuropathy via skin punch biopsy and what you describe is what I also struggled with. I was ironically 46 as well and had a plethora of tests to rule out auto immunes and everything under the sun. How do you feel about your doctors plan? Do you feel you should have further testing like a lumbar puncture?

There are two sides of testing -

1. The negative effects continued testing can have on your body by causing a stir up to the central nervous system which in turn creates an uptick in neurological symptoms and emotional distress. If a doctor is very experienced, they may feel strong about how they see it and try to reduce what they feel is unnecessary testing.

2. On the other hand not all docs are correct or go the extra mile. At the end of the day it comes down to your gut and your trust in your doctor. If you have doubt or concern and need to satisfy yourself then you have every right to seek a second opinion or request more from your current doctor.

What are your thoughts?

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Has anyone been told it’s due to the vegus nerve overstimulation? Sugar and caffeine make it worse also carb intake.

If I eat low carbs, no sugar (no sugar in any form not artificial sweeteners); It helps.

I notice them at night when trying to go to sleep but also when sitting still. I think they come when I’ve not eaten enough protein and ate mostly carbs.

I know what low blood sugar shaking feels like and this is not it. It’s an internal shaking similar to a cat purring in my core. It will wake me up in the middle of the night if I haven’t eaten enough protein or the protein had been digested.

I really get them if I drink a full sugar soda especially if has caffeine.

Any part of your body can be affected since your vegus nerve is through out your body. It’s your nerve system in your body.

My heart doctor just told me to limit caffeine and sugar. It does help. I think over time it can escalate so it would seem that it can become more and more sensitive over time if not controlled.

I do take 5 mg Bystolic because it helps me be less anxious. I’m not on any other meds and do take vitamins and do more natural type and f treatments.

Since there can be so many variations of symptoms no one is identical.

I do not believe it has anything to do with anxiety and is fully due to diet.

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@asquires

I have internal vibrations c3 yrs. I’m told it’s just pins and needles. I can’t function because of this. They never stop

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Have you tried low carb, no sugar or caffeine? It helps me. I have been told it could be my vegus nerve overstimulation. Vegus nerve is all the nerves throughout your body. I have posted more info.

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Did the doctor at the clinic test you for Lymes, or was it just his theory. Doxycycline is a strong antibiotic for Lyme's and other things. The gabapentin is for nerve pain. Valium is obviously for anxiety.
Go to a good Rheumatologist and have him/her do a lot of testing via blood and other stuff. Just to make sure… To rule out other stuff.
Good Luck…I hope you feel better soon 🙏🏻

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@jesussaves1

I am new to this forum and I’m not sure if you are still having the issue, I had a similar situation for two years and it was finally resolved. I realize your post is nine months old I’m just curious if you’re still having the same vibration issue.

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Can you tell me more about how it was resolved?

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@nana54

Have you tried low carb, no sugar or caffeine? It helps me. I have been told it could be my vegus nerve overstimulation. Vegus nerve is all the nerves throughout your body. I have posted more info.

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Where can I find more info on what you posted? Is working with the vagus nerve helping with your vibrations?

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@kmcalla

Did you ever get a diagnosis? I haven't started yet. I have had for about 6 most and also have tinnitus. Both are nerve racking.

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I have the same thing! The internal vibrations and tinnitus came on at the same time. Have you figure it out yet?

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hello i am having a hard time just doing this ihave it in my wrist and my legs going to dr. as soon as ican i do seem to calm down after i take 2 gabapintin 400 ml each then all i want to do is sleep this is not fun at all i wish i could wak up i day and not struggle whit this issue

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Yes, I started having them about 3 weeks ago, at first I thought I was having an anxiety attack, then realized the tremors never stopped even after I controlled my breathing. I eventually became fearful and went to the emergency room explaining the symptoms as best as I could because the tremors are internal not external. Of course the doctors asked if I were confusing it with chills and I answered no. They ran blood test and my results only came back that I was a little dehydrated with a UTI which they said could possibly cause what I was feeling. I was given an antibiotic and was told to stay hydrated. This is week 3 and the tremors still here. The tremors are in my upper and lower legs, sometimes all over my body as if I drank about 20 cups of caffeine. Its the worse feeling I've ever felt especially at night when trying to sleep or relax. I also spoke with my primary doctor who also asked if the feeling was the feeling of chills? again I answered no. I'm hoping this feeling will go away, I have been under a lot of stress do to me losing my husband last year to Covid-19, I also had it where I almost didn't make it, so I'm hoping that my tremors are coming from stress or anxiety that can be resolved and not something more serious.

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@cathy514

yes I have them all day every and cannot get diagnosed 2 neurologist same office say anxiety it is NOT anxiety no reslove I am miserable and have tinnitus too

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Same here, I have the internal tremors now for 3 weeks with Tinnitus that Ive also had for about 5 years now. Since having the tremors the pitch has changed to an even louder pitch and now Ive been having some eye twitching as well. Im sure If I tell my primary again he is going to shove it off and say its more than likely Anxiety.

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