Reversal of a fundoplication

I am reaching out on here as I’ve run into many dead ends. I had a nissen 11/14/2016. Since that time it’s been nothing but problems. I’ve been dilated 4 times, lost 28% of my body weight, and most recent a 6 day hospital admission for erosive esophagitis. My wrap is too tight and I can feel it. My most recent test say everything is now “normal” but I’m still having issues daily. I’ve been turned down by the best hospital in my state and even received a letter that the Mayo cannot help either. What can I do? Has anyone experienced this? Is there anyone in the WORLD that will reverse/revise a nissen to provide a patient with relief?

Dennis, My 20 year old son (who was born with a congenital problem of his stomach) He had his 2nd NF of his life in 2014. That surgeon did the wrap too tight and too high up on his esophagus. He lost 30 pounds and currently has a feeding tube due to other health problems because of the too tight NF. Please go online and look up on youtube. Steven P Bowers MD - Jacksonville Mayo. Instead of doing yet another NF on my son he inserted and performed augmentation of the linxs device. magnetic beads form to close and open with food. It is a fairly new procedure hopefully it will take over as the standard not many surgeons know of it. I would highly recommend it. The evening of surgery you are able to eat real food. In fact it's encouraged to eat to keep the beads moving so not to fuse over. Good luck.

Does anyone know if failed Nissen Fundpolication can be change to Linx?

Hi, @mmax. Welcome to Mayo Clinic Connect. I'd like to invite @miserablenissen @darcy29 @link1030 @ed_85 @kozlo52 @myskye @katmandoo @peck1944 to share some of their experiences and any information they may have about possible change of a failed Nissen fundpolication to the LINX procedure.

@chrisone - will you share more about your story related to a failed Nissen fundpolication?

I had my first nissen done at mayo's in 2010. I had nothing but misery. Mayos didn't want to do anything to help me AT ALL and said it can't be taken down. My second was at johns Hopkins's after they said the first one failed. Again same problems. After 8 years of suffering I finally got it taken down successfully 10 days ago in Juarez Mexico of all places: The NIH (google their website since I cannot post the link here) recommends that failed nissens can be taken down for a Roux en y bypass and therefore acid reflex is also still eliminated. ( the link to their website is up top ) it's only been a week but I feel like a new woman! All the top hospitals in America couldn't help me. It seems in the bariatric world they take down nissens quite often and are very familiar with it. Thoracic surgeons and bypass surgeries need to combine their knowledge. Dr. Rodriguez is board certified in the US But obviously it is cheaper for American patients to do it in Mexico if your insurance will not cover. And he does more than anyone in the United States. higher numbers means less complications. Best of luck!

Hi, @mmax. Welcome to Mayo Clinic Connect. I'd like to invite @miserablenissen @darcy29 @link1030 @ed_85 @kozlo52 @myskye @katmandoo @peck1944 to share some of their experiences and any information they may have about possible change of a failed Nissen fundpolication to the LINX procedure.

@chrisone - will you share more about your story related to a failed Nissen fundpolication?

Wow. Just read thru all these posts. I’m scared.
My surgeon who just did the 4th RFA on my Barrett’s esophagus yesterday says my Nissen fundiplication has come completely undone and he wants me to have it done again before my next RFA in December.
Most of the posts on this thread are very negative — and understandably so! I’m so sorry for everyone who has suffered from such terrible complications after having the Nissen fundiplication.
But there were a few positive posts.
My question is this: does anyone know what the success rate is for Nissen fundiplication? Or does anyone know where I could find that kind of information?