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Reversal of a fundoplication

Posted by Pawsboy9 @pawsboy9, Aug 5, 2012

I had a hernia and the fundoplication done in February as post this my chest is on fire. Going back to see the surgeon who did it on Tuesday. Has anybody had the same experience? If this guy does not have a answer heading for Mayo.

Thanks
Dennis

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Profile picture for deb1987
deb1987 | @deb1987 | May 24, 2017
In reply to @kanaazpereira "Hello @deb1987, I'd like to add my welcome, and thank you for sharing your history; I..." + (show)
Profile picture for Kanaaz Pereira, Connect Moderator @kanaazpereira

Hello @deb1987,

I'd like to add my welcome, and thank you for sharing your history; I can only imagine how very frustrating this must be.

We have a few other recent discussions on Nissen Fundoplication reversal, which I would sincerely encourage you to view:
Nissen Fundoplication reversal: http://mayocl.in/2pBIoLN
Failed Nissen w/gastroparesis & possible MALs: http://mayocl.in/2poaPBn

In the meantime, I'm tagging @myskye @cowboy1997 @peck1944 @kozlo52 @tgirl @robatk17 @gregoryd @katmandoo so that they may join in and share their experiences.
I’d also like to introduce you to one of our Mentors, @kdubois who can give you some valuable insights about her Nissen experience.

@brie87144 @pattitoo @squaredancer and others have posted about esophageal issues and dilation in this discussion, "Esophagus issues" http://mayocl.in/2pCGDyI. I wonder if they may have any suggestions?

@deb1987, I'd like to echo @hopeful33250's suggestion about getting a second opinion, perhaps at Mayo Clinic in Arizona; how are you coping with the pain and fatigue at present?

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Thank you for all the info.I am coping with it all .Been coping with it all for 3 1/2.years .Actually even before then .So what i was wondering .jas anyone had it loosened ? If so how did their surgery go and are the so much better now since having it done SK

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deb1987 | @deb1987 | May 24, 2017
In reply to @deb1987 "Hi my name is Deb.I had my Nissan done over 3 years ago .I have had..." + (show)
Profile picture for deb1987 @deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don't .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it's to tight then does barium swollow ,which shows my esphogus closing up .But says on it's not your wrap it's espogeal spasms .Im like really .So go back to surgeon now he saying i really don't want to do it "Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Thank you Kelly .It is so nice to be able to talk to someone that understands what i have been and am going through .Its so frustrating when for 3 years since this darn thing i keep explaining to every data doctor over and over what's going on .I know that heir are risk but yeah i shouldn't have to look vex like this anymore

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deb1987 | @deb1987 | May 24, 2017
In reply to @deb1987 "Hi my name is Deb.I had my Nissan done over 3 years ago .I have had..." + (show)
Profile picture for deb1987 @deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don't .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it's to tight then does barium swollow ,which shows my esphogus closing up .But says on it's not your wrap it's espogeal spasms .Im like really .So go back to surgeon now he saying i really don't want to do it "Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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That's awesome your gastroparesis pacemaker is helping .Mine never helped .I still constantly couldn't keep my food down .The only thing that helped me is this wrap .But i am in constant pain and discomfort.Always bloated up ,constraint ,heartburn ,pain,so on and so on .Its frustrating .

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Linda | @llanderson57 | May 25, 2017

I had my fundoplication redone in Nov. 2016. It had come totally unwrapped from a surgery 15 years ago. The second surgery proved to be a very difficult recovery for me. A year later, I have symptoms back again. Pain in upper gastric area, it is very tender along my lowest ribs on both sides. I feel sick all the time. The pain gets worse after I eat and eases up a couple of hours later but never goes away. Today I found out that the fundoplication wrap is a little too tight. Trying meds and dilation of the wrap if the meds don't work. All of this is so stressful. What if these things don't work? I don't know....

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deb1987 | @deb1987 | May 25, 2017

So sorry to hear the second time was worse .Hope you get relief soon .

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peck1944 | @peck1944 | May 25, 2017
In reply to @deb1987 "Hi my name is Deb.I had my Nissan done over 3 years ago .I have had..." + (show)
Profile picture for deb1987 @deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don't .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it's to tight then does barium swollow ,which shows my esphogus closing up .But says on it's not your wrap it's espogeal spasms .Im like really .So go back to surgeon now he saying i really don't want to do it "Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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I have gastroparesis as a result of the Nissen Fundoplication. I have considerable difficulty with gas and bloating as well as nausea. My diet is limited and even when I am careful I still have problems sometimes. Also, being on a very low fiber diet has created constant constipation problems. This disease has changed my life.

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deb1987 | @deb1987 | May 27, 2017
In reply to @deb1987 "Hi my name is Deb.I had my Nissan done over 3 years ago .I have had..." + (show)
Profile picture for deb1987 @deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don't .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it's to tight then does barium swollow ,which shows my esphogus closing up .But says on it's not your wrap it's espogeal spasms .Im like really .So go back to surgeon now he saying i really don't want to do it "Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Hi sorry to hear all issues since your wrap. I had gastroparesis and all those issues before he did my wrap . The wrap has made my gastroparesis even worse .The reason why we did the wrap was because I couldn't keep Any of food down.we did put in nuero stimulator pacemaker it did nothing for me so we took it back out when he did the wrap. So ever since the wrap can't throw up at all even when I had to food poison real bad twice twice and stomach virus place so I would have to go to the hospital and get IVs and everything . Stomach is constantly bloated and I'm the opposite I can't lose weight I keep gaining weight and constantly bloated stomach and all over the body crashes all the time constantly paying everywhere especially upper back and chest between shoulder blades .has made my Aorta Arthoscoliosis really bad ..It sucks. You explain this all to the doctors and I look at you like you're weird and then you get OK if you want to listen I'll do it but I'll never see you again and not happy to do it .so when do doctors start listening to patients?I hope you get some answers feeling better

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Profile picture for peck1944
peck1944 | @peck1944 | May 27, 2017
In reply to @deb1987 "Hi my name is Deb.I had my Nissan done over 3 years ago .I have had..." + (show)
Profile picture for deb1987 @deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don't .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it's to tight then does barium swollow ,which shows my esphogus closing up .But says on it's not your wrap it's espogeal spasms .Im like really .So go back to surgeon now he saying i really don't want to do it "Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Yes, I had food poisoning and of course could not throw up. Gastroparesis is a terrible disease and it is very difficult to get a doctor to listen. If they can't fix something surgically, they aren't interested.

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kozlo52 | @kozlo52 | Aug 18, 2017
In reply to @myskye "I had a Nissen Fundoplication procedure done last Oct. I have not have success with it..." + (show)
Profile picture for myskye @myskye

I had a Nissen Fundoplication procedure done last Oct. I have not have success with it at all. The wrap was to tight and I have to have a dilation done almost every two months. I am looking at have a reversal done and wonder if anyone has had this done and if so, did things improve Thank You

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has anyone out there had a360 degree nissen fundoplication and then began developing oral thrush on their tongue and possibly throat? I've been battling oral thrush for 10 months since my operation and alll i am being given is nystatin for swish swallow and spit. This stuff is terrible to swallow. I'm still battling what i feel is heartburn after eating. The original thoracic surgeon wants me to have another 48 hr bravo test. The esophagael monometry test done after the surgery indicates that the wrap may still be too tight. I cannot make the link between the wrap being too tight and the heartburn sensation, which the surgeons don't seem to explain well. Antacids don't seem to help. Any insights would be helpful....kozlo52

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Profile picture for Gail Benson Ledesma , Alumni Mentor
Gail Benson Ledesma , Alumni Mentor | @gailb | Aug 18, 2017
In reply to @myskye "I had a Nissen Fundoplication procedure done last Oct. I have not have success with it..." + (show)
Profile picture for myskye @myskye

I had a Nissen Fundoplication procedure done last Oct. I have not have success with it at all. The wrap was to tight and I have to have a dilation done almost every two months. I am looking at have a reversal done and wonder if anyone has had this done and if so, did things improve Thank You

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I've not had your surgery, but I've had a problem with thrush of the throat and mouth recently. My ENT physician said to increase my water intake to 64-80 oz. a day and I should not have to worry about recurrence of thrush. I think this is good advice so am letting you know as drinking more may help your recurring thrush. I agree the Nystatin is pretty tough to swallow. It does provide relief of symptoms so I really appreciate it. Gail B. Ledesma

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