Grover's Disease: What works to help find relief?

Have you tried cilantro smoothies with chlorella powder and spiralina? I drink one every day and it has put my Grover’s in remission.

I was diagnosed with Transient Acantholitic Dermatosis (Grover’s) in 1976. As the name implies, it has been “transient” in that it has come and gone throughout the years.

No dietary changes have ever proven helpful in my case. Photo Therapy has been very beneficial, however. OTC remedies that have been effective are menthol lotions, such as Gold Bond anti-itch (I use Walmart's brand).

It’d also advise keeping a spray bottle of equal parts water and Witch Hazel in the fridge for instant relief from irritation.

I’m on a forum for Grover’s and pretty much tried everything recommended to stop itching. I’m 76 female and was diagnosed by a biopsy for GD. Its been a year of misery with itching, a steroid creme got rid of most of the rash but can’t be on that for long. What has helped me most is the witch hazel also along with the Gold Bond Medicated lotion. I keep a couple spray bottles around the house with just the WH no watering it down or refrigerate as it seems to spray on cold enough for me. I get relief almost immediately but have to spray often. Nights are the worse!

I have mentioned that a number of people have had success with Avene Xercalm Lipid replenishing cream available at Amazon. There is no "one size fits all" when it comes to this affliction. You just have to keep trying different remedies to see what works for you. Highly recommend reading a number of the earlier posts on this site. Lots of information.

Everyday for months … it has helped but it just won’t go away …..🥺

@pitbuell @hawkssr, @nodgabnoj Good morning. I read all of your posts this morning and feel just tortured by all of your efforts to withstand this disease for which the symptoms originates from within your body. I have been working on finding a solution to what I call neuropathic itch.

I may have a solution for some of you and is Dupixent. On the website there is a section on PN that includes research and evidence of positive results.
The site is http://www.dupixent.com/prurigo-nodularis.
Please take a moment to read it. I can also give you this number to call for assistance: 844 387-4936. You will be speaking to medical professionals, many who have helped me. Camille is one of my favorites.

After getting prior approval and becoming a member of Dupixent My Way which covers my copay, I began the injections every two weeks about 2 months ago. I wish you could see my skin and my smile. I have had absolutely no itching, scratching, and inflammation since the first week. There are no steroids. There is no risk to your skin. In fact, my arms have healed quite nicely. I can sleep through the night without getting up to put ice packs on my legs and hands.

It has taken me two years to find this internal medication so that the healing can happen from within where the issue begins. Please let me know if you have additional questions. I am already developing a rousing cheer for all of you. And no I am not a hired marketing guru.

May you all be free of suffering and the causes of suffering.
Chris

@pitbuell @hawkssr, @nodgabnoj Good morning. I read all of your posts this morning and feel just tortured by all of your efforts to withstand this disease for which the symptoms originates from within your body. I have been working on finding a solution to what I call neuropathic itch.

I may have a solution for some of you and is Dupixent. On the website there is a section on PN that includes research and evidence of positive results.
The site is http://www.dupixent.com/prurigo-nodularis.
Please take a moment to read it. I can also give you this number to call for assistance: 844 387-4936. You will be speaking to medical professionals, many who have helped me. Camille is one of my favorites.

After getting prior approval and becoming a member of Dupixent My Way which covers my copay, I began the injections every two weeks about 2 months ago. I wish you could see my skin and my smile. I have had absolutely no itching, scratching, and inflammation since the first week. There are no steroids. There is no risk to your skin. In fact, my arms have healed quite nicely. I can sleep through the night without getting up to put ice packs on my legs and hands.

It has taken me two years to find this internal medication so that the healing can happen from within where the issue begins. Please let me know if you have additional questions. I am already developing a rousing cheer for all of you. And no I am not a hired marketing guru.

May you all be free of suffering and the causes of suffering.
Chris

I’ve been researching this myself. My doctor got it approved for me. I was only hesitant that it was immunosuppressive but it looks like it does not suppress your whole immune system. Only IL4 and IL13 and doesn’t show any increase in malignancies. Not sleeping for 10 months due to itching and no cream, pill, or anything else I try has helped, I am going to give Dupixent a try. I’ve seen on other sites people with Grover’s said it is a game changer for them. Have you had any side effects? Especially eyes? That seemed to be most reported side effect.

I wish I had the red dots instead of the lesions I have now …. Itch and burn mostly on my thighs, back of my legs, hips and on the inside of my right arm.