1. < Skin Health

Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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bjv8080 | @bjv8080 | Sep 19, 2022
In reply to @sophiep "I'm currently using Clobetasol cream and taking Acitretin. These seem to help the most, but I've..." + (show)
@sophiep

I'm currently using Clobetasol cream and taking Acitretin. These seem to help the most, but I've been on Acitetin for 4 months and it won't be refilled due to the side effects I'm having including blurred vision and hair loss. Without it I break out head to toe, with it I'm only mildly broken out. I've had to limit the Clobetasol that I've been using for 8 months due to severe skin thinning. I find some relief using zinc oxide creams and menthol creams and powder. The antihistamines had zero help. In the beginning I took Prednisone for approx. 3 1/2 weeks. I had instant relief in the beginning at the high dose. During the taping off when I was down to 2 pills I started to itch. By the time I was down to 1 pill it was as if I wasn't taking anything. So here I am....praying for remission.

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My Prednisone regimen shot my blood sugar up, which is a common side effect. Be careful.

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1 reply
sophiep | @sophiep | Sep 20, 2022
In reply to @bjv8080 "My Prednisone regimen shot my blood sugar up, which is a common side effect. Be careful." + (show)
@bjv8080

My Prednisone regimen shot my blood sugar up, which is a common side effect. Be careful.

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I tried the 3 1/2 weeks of Prednisone 6-8 months ago without issue, but as I tapered down the intense itch returned. If I'm ever taking it again I'll watch out for that. Thanks for the tip!

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tampabay | @tampabay | Sep 20, 2022
In reply to @dermnurse68 "Grover’s disease can be an uncomfortable itchy rash, but the good thing is that it isn’t..." + (show)
@dermnurse68

Grover’s disease can be an uncomfortable itchy rash, but the good thing is that it isn’t skin cancer, and is usually self resolving.
A good way to relieve the itching is by using topical steroids, which your dermatologist should have prescribed to you, and sometimes oral antihistamines are suggested. I would double check with your doctor, and tell him/her that you need some relief.

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They don't work!.....Steroids or antihistamines! and Dermatoligists are lost for treating the disease.....after years of Flare ups I speak with experience!

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2 replies
suffragent | @suffragent | Sep 27, 2022
In reply to @tampabay "They don't work!.....Steroids or antihistamines! and Dermatoligists are lost for treating the disease.....after years of Flare..." + (show)
@tampabay

They don't work!.....Steroids or antihistamines! and Dermatoligists are lost for treating the disease.....after years of Flare ups I speak with experience!

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GD: I've now been trying cilantro for around 10 days and I think I'm starting to feel a little less itchy, so I'll keep it going for a bit. I found an easy way to down the cilantro without making a smoothie that adds lots of carbs and sugar. In a Nutribullet I mash 15 - 20 grams of fresh cilantro with 1\2 cup of frig-cold water, then I drink it in about 5 - 6 gulps. But here's the trick - I keep my epiglottis closed while I do it, so I taste nothing. It's the same as pinching your nose, only easier. Anyone who's done a little snorkeling will know what I mean. When I finish drinking, I rinse the cup with a little tap water then rinse my mouth and spit it out. Then, with my epiglottis still closed, I rinse my mouth with a little Listerine or similar mouthwash. Then I start breathing through my nose again and there's no cilantro aftertaste. The last couple of days I've tossed some parsley into the brew. I might even try some kale. HTH 🙂

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pwhitney801 | @pwhitney801 | Oct 6, 2022
In reply to @suel222 "I’ve been using for almost 2 weeks now and red dots are slowly going away. I’m..." + (show)
@suel222

I’ve been using for almost 2 weeks now and red dots are slowly going away. I’m gonna keep it up till they are hopefully gone. In 10 yrs I’ve never been “dot free” so we’ll see. This has been the only remedy that has helped me..

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Curious to know now that time has past. Did your dots go away with continued use? Did you just spot treat or rub it all over?

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1 reply
suel222 | @suel222 | Oct 7, 2022
In reply to @pwhitney801 "Curious to know now that time has past. Did your dots go away with continued use?..." + (show)
@pwhitney801

Curious to know now that time has past. Did your dots go away with continued use? Did you just spot treat or rub it all over?

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Some of them did go away, almost entirely cleared up.

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pitbuell | @pitbuell | Oct 7, 2022

I wish I had the red dots instead of the lesions I have now …. Itch and burn mostly on my thighs, back of my legs, hips and on the inside of my right arm.

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3 replies
nodgabnoj | @nodgabnoj | Oct 7, 2022
In reply to @pitbuell "I wish I had the red dots instead of the lesions I have now …. Itch..." + (show)
@pitbuell

I wish I had the red dots instead of the lesions I have now …. Itch and burn mostly on my thighs, back of my legs, hips and on the inside of my right arm.

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I read on the F/B GD site about a French cream available at Amazon called Avene Xercalm Lipid Replenishing cream. I haven't looked at it yet, but apparently at least two people have had very positive results. Good luck. I hope you find some relief.

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2 replies
pitbuell | @pitbuell | Oct 7, 2022
In reply to @nodgabnoj "I read on the F/B GD site about a French cream available at Amazon called Avene..." + (show)
@nodgabnoj

I read on the F/B GD site about a French cream available at Amazon called Avene Xercalm Lipid Replenishing cream. I haven't looked at it yet, but apparently at least two people have had very positive results. Good luck. I hope you find some relief.

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I ordered some! I hope it works for me. I take Allegra daily and it helps with the itch but I wish these lesions would go away, the only thing that works is prednisone and I can’t keep taking that …

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1 reply
lisa923 | @lisa923 | Oct 7, 2022
In reply to @pitbuell "I ordered some! I hope it works for me. I take Allegra daily and it helps..." + (show)
@pitbuell

I ordered some! I hope it works for me. I take Allegra daily and it helps with the itch but I wish these lesions would go away, the only thing that works is prednisone and I can’t keep taking that …

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Have you tried cilantro smoothies with chlorella powder and spiralina? I drink one every day and it has put my Grover’s in remission.

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