Ascending thoracic aneurysm: What should I do and not do?

Posted by mustangsally67 @mustangsally67, May 6, 2020

Last year I was diagnosed with a dilation, that measured 3.9 had a Thoracic CT on now it is 4.3. The cardiologist said to repeat in one year. Is this ok. I am 71 yrs old. Also what should I not be doing, and also what should I be doing

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@suz1950

I wanted to express my heartfelt thanks for this comment, @pete398
I read it when I was first diagnosed 2 months ago. It gave me great comfort then and continues to do so. The most impactful line was, "enjoy however much of life you have left." This has become a daily mantra for me that I repeat to myself over and over and try to stop stressing over things in typical Type A fashion. Thank you, thank you, thank you!
-Suz1950

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I was just diagnoised with this too 3.8. I see the Dr Monday.

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@suz1950

I wanted to express my heartfelt thanks for this comment, @pete398
I read it when I was first diagnosed 2 months ago. It gave me great comfort then and continues to do so. The most impactful line was, "enjoy however much of life you have left." This has become a daily mantra for me that I repeat to myself over and over and try to stop stressing over things in typical Type A fashion. Thank you, thank you, thank you!
-Suz1950

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I'm so happy that the phrase gives you comfort. It helps me sort out what is important from the chatter,

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@pete398

I'm so happy that the phrase gives you comfort. It helps me sort out what is important from the chatter,

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and I'm now 83 with no intervention.

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@pete398

and I'm now 83 with no intervention.

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Wonderful! I am so glad to hear that you are doing well and have not needed intervention to this point! Initially, it was hard for accept (or even grasp) the guideline of "watchful waiting," but I understand it now. I firmly believe that my acceptance of this approach also resulted from fully incorporating your guidance.
Something else that helped me understand watchful waiting was the article, Commentary: "Surgical threshold for ascending aortic aneurysm: A moving target begging for randomized controlled data," published in Journal of Thoracic and Cardiovascular Surgery, Feb. 2021 . [Especially the last 3 sentences.]

"Over the years, results have improved, and elective ascending aorta replacement has
become a safer and more reproducible operation. In a recent analysis from the Society of Thoracic Surgeons database, including >22,000 patients who underwent isolated ascending aorta replacement, in-hospital mortality was 3.4%.1 Conversely, surgery in the context of acute aortic dissection is a more complex operation, with mortality ranging between 10%and 25%in large series. In the latest International Registry of Acute Aortic Dissections report,
in-hospital mortality after type A dissection surgery was 22%.2,3
This stark difference in outcomes highlights the need to operate on patients with aortic aneurysm before dissection, or even worse, rupture. Presented with such data, most
patients would choose prophylactic surgery instead of an emergency operation associated with a higher risk of mortality. However, aortic aneurysm being an indolent and silent disease, surgery aims to alter the course of the disease rather than to alleviate symptoms. Consequently,
because surgery does not help patients “feel better,” it is crucial to ensure that the procedure does not portend a higher risk of death than watchful waiting. In the short
term, this is almost impossible to achieve. In fact, for a given patient, the risk of death on the day of an elective ascending aorta replacement almost certainly outweighs that of watchful waiting during that same day. However, over time, the hope is that this early risk will translate
into long-term benefits and survival. Thus, following a concept known as “time until treatment equipoise,” there comes a point after surgery where the risk of the intervention is outweighed by the cumulative risk of conservative management (Figure 1).4"

Suz1950

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@bgillespie

I was just diagnoised with this too 3.8. I see the Dr Monday.

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It's great you are seeing your Dr. on Monday. Coincidentally, I am having a 2 month follow-up after the initial consult. At that time, my cardiologist ordered the CT Cardiac Scan that revealed the 4.8 cm aneurysm. After seeing the results, he doubled the dose of my statin and ordered some lab tests (C-reactive protein, Lipid protein (d), and a lipid panel). This seems to have worked from what I can see about the results, so I am excited to find out if the results are as positive as I think they are. I'm also curious to see if he wants to follow up on doing an echocardiogram as he had mentioned at the first visit.

I'm so glad you found this group, I've found it very helpful and I hope you do too! I've received a lot of great advice and heard people's experiences which help me feel that I am not alone. All the best to you--will be thinking of you on Monday 🙂
suz1950

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Thank you Suz1950! I enjoyed reading your excerpt from the Journal of Thoracic and Cardiovascular Surgery! Very very informative, as I heavily consider stats on outcomes in weighing my medical decisions. Quality of LIFE is the biggest element! My recent cardiac visit revealed that my ascending aneurysm is holding steady at 4.2 and my stats have actually improved. So it will be a wait and monitor scenario. Pretty cool! So I plan to approach living today in mindfulness, and appreciation! My other issues are being dissected out and addressed. That to is really nice! As a result of this reassurance, I feel more in control of myself/my body/ my mind. My happiness levels have just been increased ten-fold! I hope the readers of this blog, with the excellent info it provides, can also achieve a higher level of "Happiness".
UPArtist 😊

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@upartist

Thank you Suz1950! I enjoyed reading your excerpt from the Journal of Thoracic and Cardiovascular Surgery! Very very informative, as I heavily consider stats on outcomes in weighing my medical decisions. Quality of LIFE is the biggest element! My recent cardiac visit revealed that my ascending aneurysm is holding steady at 4.2 and my stats have actually improved. So it will be a wait and monitor scenario. Pretty cool! So I plan to approach living today in mindfulness, and appreciation! My other issues are being dissected out and addressed. That to is really nice! As a result of this reassurance, I feel more in control of myself/my body/ my mind. My happiness levels have just been increased ten-fold! I hope the readers of this blog, with the excellent info it provides, can also achieve a higher level of "Happiness".
UPArtist 😊

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This is wonderful news, upartist! So happy for you. It' s amazing how this kind of health news can make such a big difference. Glad you enjoyed the excerpt, too! I hope you and all of us can continue to find more and more ways to enhance our happiness and quality of life 🙂
suz1950

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I'm 74 and was diagnosed with an ascending aortic aneurysm 12 years ago after a CT scan after a car accident. Mine has been holding steady at 4.6, I originally had a CT scan done every year, seeing as there has been no changes I get a scan done every 2 years. I don't dwell on the fact that I have an aneurysm, I try and not lift anything too heavy and that's about it. Live life, there's lots of other things that'll kill you too, can't worry about them all.

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@pete398

Hi Mustang Sally, I am 81 and 13 years ago my aneurysm measured 3.8cm. it is now 4.9cm. Watchful waiting is the best option. There are many things out there that can kill you and me. Don't smoke, get your blood pressure under control, drink moderately or not at all, eat a sensible diet, exercise and enjoy however much of life you have left. See your cardiologist and primary care MD.

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i also am 81. Just back from the Cleveland Clinic. Aneurysm measure 4.7 but did not get larger in the past year. Play golf, garden and bike. No heavy lifting. Dr said reaching 90 is possible. What ever, keep going and live life to its fullest.

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@cobweb

i also am 81. Just back from the Cleveland Clinic. Aneurysm measure 4.7 but did not get larger in the past year. Play golf, garden and bike. No heavy lifting. Dr said reaching 90 is possible. What ever, keep going and live life to its fullest.

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I am also 81 and my "mildly dilated" ascending aorta was noted in '04 as result of seeing a Cardiologist for PVC's observed during my treadmill stress test. An Echocardiogram showed my AoD to be 4.4 cm. In 2007 a CT w c measured 4.8 cm. Since then, I have had 10 CT's showing the aorta to be anywhere between 4.4 to 5.0 cm. The latest was 4.8 cm. The Echo AoD's have ranged between 4.4 and 3.7 cm with the latest being 3.8 cm. Point being a dilated aorta does not necessarily mean the end is near. One thing I find fascinating is that the CT Program can extract an image of the aorta. Earl the Pearl

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