Treating Osteoporosis: What works for you?

@contentandwell Hope you are well and doing good with Tymlos. I finally got to 8 for a week then the side effects started. So then went back to 7 this last week with no problems. I guess I will stay at 7 for the rest of my two years. I can not stand my B/P and P so high. 7 should do me some good. It is amazing that one click of the pen can make so much difference

Do you take Vit K and boron? If so how much? Also, where do you find all the facts about these drugs? Thank you for being there. KLH

@kilh I have never had a problem with Tymlos and heart rate or BP. My resting heart rate tends to be somewhat low so after my shot, the highest my heart rate has gotten is in the low 80s, not what I would consider a concern. I have not checked my BP. I have been on 8 clicks from day 1.

I do take K and Boron. I'm not sure that boron is much help, you need little and it is in foods, so I am considering discontinuing it. I had read that it was good for osteoporosis in a forum somewhere. My endocrinologist suggested eating prunes, 5-6 a day, without specifying why but prunes have boron in them. Prunes seem to have an unsavory reputation so I have noticed many brands refer to them as dried plums now!

I do also take vitamin K. I have the Harvard Health publication on Osteoporosis and it mentions vitamin K so I figured if Harvard recommended it then it must be legitimately beneficial. It's an excellent publication but is not free. I'm fairly attached to Harvard and Mass General since my liver transplant was at MGH and when younger I lived in the shadow of those institutions. I am in southern NH now so not too far still.

The Boron I have been taking has 5mg in it.
The Vitamin K has 3 forms of K for a total of 6,090mcg.
If you are considering either or both of them though you should consult with the doctor who is managing your osteoporosis. Neither of them is generally considered to be harmful but anything in large doses can cause problems.
JK

@contentandwell Thanks for the reply. How long have you been on Tymlos? Does your come from Radius or Pharmacy? I was fine on Tymlos for four months and I could not do the side effects anymore. I was off a month and then started back at 2 clicks. I have worked my way back to 8 but after 8 days I went back to 7. I have no problem at 7. It is amazing that 1 can make all the difference. My doc and PA have very few patients on Tymlos and have never shared the side effects of others. So they are learning from me. They never thought to start low and work back up but they were ok with it. I need to check in with them since I did not have an appt. till May. Glad you are doing so well and staying healthy. KLH

@kilh I started on Tymlos last March so I'm in my 11th month now.

I get my Tymlos from a CVS Specialty pharmacy, they have it shipped to me and I have no problems with getting it that way. I also get my immunosuppressant from a CVS Speciality pharmacy and have never had a problem with that either. Interestingly, one comes from a CVS in Boston, the other from a CVS in NJ!

I'm glad that at 7 clicks you are doing well with Tymlos. I have heard of very good results with it. For a person who qualifies to get it, who tolerates it, and can manage to pay for its pricey cost, I think it's definitely a great way to go. We look at it as a sacrifice but a worthwhile one.
JK

I paid for the first six months but after I retired I applied for Radius Assist and I was accepted. So I get 18 months free. But the first 6 months cost me over $2000. I was afraid when I stopped that month I would lose my $. Thank goodness for a little help.

Thanks for giving age and scan results. I read about side affects often but rarely see info on if the meds actually work.

I was reading about osteoporosis vibration belt. Wondering if anyone has discussed this treatment technique with their doctors. They say "Low Intensity Vertical vibration machines are effective for osteoporosis. The low intensity vertical vibration machines are the ones that produce a maximum of 0.3 G’s". Maybe as an add-on to Tymlos or other osteoporosis meds.

I am interested to know more about this.

Is this similar to Magna Wave PEMF? I understand that this procedure facilitates healing. Here's a description " A pulsating electro- magnetic field delivered to the body through a coil is said to produce one main result: stimulating cell metabolism. The action is thought to cause a chain of processes in the body that could lead to improvement of health without side effects. Increased oxygenation and blood flow helps support the body's natural function and optimal wellness in a drug free way."

I understand that some chiropractors offer this service. Has anyone tried this?

As I understand it, this procedure has been used on horses to promote their healing when healing an injury. Since then it's been adapted for human use.

I am new to this site. I have had my second injection of Prolia and have been experiencing 3 months of severe bone and muscle pain !!! Can anyone please help me with advice on how to stop taking Prolia. I want this nightmare to end. I don't know what to take instead of Prolia since I understand that you cannot just stop Prolia. Has anyone out there had a successful outcome after stopping Prolia ? Please help !