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heritage1955 (@heritage1955)

Treating Osteoporosis: What works for you?

Osteoporosis & Bone Health | Last Active: 5 hours ago | Replies (1013)

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@hlp123

I am new to this site. I have had my second injection of Prolia and have been experiencing 3 months of severe bone and muscle pain !!! Can anyone please help me with advice on how to stop taking Prolia. I want this nightmare to end. I don't know what to take instead of Prolia since I understand that you cannot just stop Prolia. Has anyone out there had a successful outcome after stopping Prolia ? Please help !

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Replies to "I am new to this site. I have had my second injection of Prolia and have..."

Hi,

I took 2 shots of prolia and had the same severe bone and muscle pain, especially in my legs and the pain was the worst when lying down. I also experienced hair loss due to prolia. I told my endocrinologist I was stopping it. (Many drs say you cannot stop it but that is not true). My doctor is chairman of endocrinology at a large hospital complex in the Washington, D.C. area. I asked him to calculate my risk of broken bones if I stopped. Given that I have severe osteoporosis, he calculated that I had a 10% chance of a broken hip and a 25% chance of any broken bone in the next 10 years. I will take that chance as I feel great without the prolia. (I had been on other osteoporosis drugs prior to prolia but they all made me sick.) He did describe ergocalciferol, Vitamin D and Vitamin B12 which I faithfully take and I also stay active. I walk about 7000 steps/ day (except in snow or rain) and am generally active and busy.

Remember this is your body and the medical profession is closely allied with drug companies. Do what makes you feel good and is best for you.

Kaye

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