Fodmap Eating Plan

Posted by Teresa, Volunteer Mentor @hopeful33250, Jun 13, 2020

I will be starting on the fodmap eating plan next week and I'm looking for some suggestions about following this plan for the first four weeks. Did you have the guidance of a dietician? Did you find any books, recipes, YouTube videos that helped you? I'm also wondering how you went about the addition of foods after the four-week restricted period?

Any success stories (I'd really like to hear them). Anything that was particularly helpful or difficult for you?

@astaingegerdm @thull @nancybev

Interested in more discussions like this? Go to the Digestive Health Support Group.

@hopeful33250

I hope that the nutritionist at your new residence is able to find a good eating plan for you, @artist01 . You said that you are missing a nutritional level. Is that because you feel tired or hungry? I do understand the restrictions that come with the fodmap eating plan. What would type of food would you like to add?

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@hopeful33250 Hi again, Teresa. I'm adding to your query as to what type of nutrition I'd like. I know I'm sadly lacking Vitamin C so far, essentially bc I can't tolerate acidic foods or beverages due to OLP. This morning, the head nurse came to see me (Yay! Young, smart, keen to help.) I requested a Vitamin C supplement so she's going to contact my Assigned Doctor here and request that. Other than that, one of our great Connect members suggested contacting Monash University, who apparently lead the way in IBS research, regarding the Fodmap diet. I looked them up online and read the content of the Fodmap Diet as well as their other website content.
I also emailed them for a bit more info. and will await their response. Upon reading the details of the Fodmap plan, I see many foods I could have IF the kitchen here can comply. Doubtful though!
Hopefully Laurie

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@artist01

@hopeful33250 Hello Teresa. Thankyou for your response, and your kind words.
You're so right about eating. I once loved food and now I approach every meal with apprehension. Eating is now, indeed, an Eat to Live strategy, and not a Live to Eat anymore! I've never had a weight problem and was always active with hiking the Rocky Mountains, long walks with my dogs, etc. It's so true that exercise is vital to our health and welfare. I hope to be back to walking outdoors once the snow clears and the frigid temperature goes up. Thanks so much for your encouragement! 😊 Laurie

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@artist01

And I thank you for your encouragement as well, Laurie. Will you keep in touch and let me know how you are progressing with your eating plan?

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@artist01

@hopeful33250 Hi again, Teresa. I'm adding to your query as to what type of nutrition I'd like. I know I'm sadly lacking Vitamin C so far, essentially bc I can't tolerate acidic foods or beverages due to OLP. This morning, the head nurse came to see me (Yay! Young, smart, keen to help.) I requested a Vitamin C supplement so she's going to contact my Assigned Doctor here and request that. Other than that, one of our great Connect members suggested contacting Monash University, who apparently lead the way in IBS research, regarding the Fodmap diet. I looked them up online and read the content of the Fodmap Diet as well as their other website content.
I also emailed them for a bit more info. and will await their response. Upon reading the details of the Fodmap plan, I see many foods I could have IF the kitchen here can comply. Doubtful though!
Hopefully Laurie

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@artist01
How wonderful that you have a nurse who is trying to help you, Laurie. That is just great. I'll have to look up the Monash University research about Fodmap.

Will you let me know how they respond to your query?

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@hopeful33250

@artist01

And I thank you for your encouragement as well, Laurie. Will you keep in touch and let me know how you are progressing with your eating plan?

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@hopeful33250 Hi Teresa. I'll certainly keep in touch. Thankyou!
Happy New Year!

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I have Parkinson’s, RA, previously on long term triple antibiotics for MAC lung infection. Frequent chronic diarrhea , urgency, gas, abdominal distension- worse some days- haven’t figured out correlation with diet. I know people with PD have altered microbiome and there is probable gut brain connection in PD. Interested in potential role or harm of FODMAP diet or pre/probiotics but the subject a bit complex and I am in search of clinical guidance but not finding much on internet. I’d like to optimize my gut health to minimize its negative impact on my PD and brain. Any direction appreciated.

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@susantam

I have Parkinson’s, RA, previously on long term triple antibiotics for MAC lung infection. Frequent chronic diarrhea , urgency, gas, abdominal distension- worse some days- haven’t figured out correlation with diet. I know people with PD have altered microbiome and there is probable gut brain connection in PD. Interested in potential role or harm of FODMAP diet or pre/probiotics but the subject a bit complex and I am in search of clinical guidance but not finding much on internet. I’d like to optimize my gut health to minimize its negative impact on my PD and brain. Any direction appreciated.

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@susantam, welcome. I moved your message and search for tips to this existing discussion

- Fodmap Eating Plan: https://connect.mayoclinic.org/discussion/fodmap-eating-plan/

I did this so you can read the past messages and connect easily with others exploring and eating according to the FODMAP guidance. In particular, I'd like to introduce you to @hopeful33250 who also lives with Parkinson's disease and digestive issues.

Susan, related to the health issues you mention, I also encourage to follow these related groups:
- Autoimmune Diseases (for discussions on RA) https://connect.mayoclinic.org/group/autoimmune-diseases/
- MAC & Bronchiectasis https://connect.mayoclinic.org/group/mac-bronchiectasis/
- Parkinson's Disease https://connect.mayoclinic.org/group/parkinsons-disease/

I'm sure others will benefit from your experiences and you can ask questions any time.

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EatingForGP_iBook.pdf might be helpful. . . Crystal Zaborowski Saltrelli
Patient-Expert & Certified Health Counselor

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@susantam

I have Parkinson’s, RA, previously on long term triple antibiotics for MAC lung infection. Frequent chronic diarrhea , urgency, gas, abdominal distension- worse some days- haven’t figured out correlation with diet. I know people with PD have altered microbiome and there is probable gut brain connection in PD. Interested in potential role or harm of FODMAP diet or pre/probiotics but the subject a bit complex and I am in search of clinical guidance but not finding much on internet. I’d like to optimize my gut health to minimize its negative impact on my PD and brain. Any direction appreciated.

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There are amazing Registered Dieticians that are very knowledgeable on the Fod Map Diet . Not all are.
You can buy the app for your phone by Monash on Fod Map it is very helpful around $10.00.

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@kamama94

EatingForGP_iBook.pdf might be helpful. . . Crystal Zaborowski Saltrelli
Patient-Expert & Certified Health Counselor

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Crystal’s Book Is where I got started when I was diagnosed with Gastroparesis…… She also has a podcast….. I got little or no help from my gastroenterologist…..just change your way of eating…..

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@peggyjean

Crystal’s Book Is where I got started when I was diagnosed with Gastroparesis…… She also has a podcast….. I got little or no help from my gastroenterologist…..just change your way of eating…..

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@peggyjean, I feel the same way about gastros in my area! And I'm not the only one who's unhappy with the GI peeps, I've noticed several others around the USA are equally disappointed in GI care.

As someone with renal failure, diabetes, and gastroparesis and with the three diets in conflict with one another, I'm having to do quite a balancing act with meal planning, food choices, insulin management, etc.

GP is serious enough in and of itself but not immediately life threatening (for now) while renal failure and diabetes can be. So I have had to exceed recommended fiber on the GP diet, for example, in favor of kidney friendly and diabetic friendly foods which have more fiber than a GP diet recommends. At my age I have dentition problems as well, so soft foods work for me but I've had to get creative with acceptable seasonings added to baby food turned into soups which are renally acceptable and don't interfere with blood sugars and/or insulin.

Because I had to switch to a vegetarian diet to slow down the progress of CKD, getting enough protein is a challenge because GP acceptable breads with enough protein (added to plant protein) put me over the diabetic diet carb limit.

Other foods I can tolerate which are good for a renal diet and a diabetic diet can be higher fat than recommended on a GP diet.

I appreciate all the help and suggestions I can get.

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