Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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My neuropathy began after my booster shot. Never had it before I got the Pfizer COVID vaccine.

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Profile picture for faust73 @faust73

My neuropathy began after my booster shot. Never had it before I got the Pfizer COVID vaccine.

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My small fiber neuropathy symptoms intensified as I got Moderna shots 1,2 and 3.

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Mine began around the same time as initial shot and has gotten worse Wish they would look into this and see if this is an issue. Also on statin so I figure its one of the two.

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My neuropathy started after second Moderna shot, but I had Covid 4 months prior. Have seen Neurologist several times, but no real help. I’m not in pain, just numbness and tingling in feet and toes during the day, frostbite-like cold burning at night. I do notice heat and humidity make it worse. I live in Florida, but have been in S Dak for holidays visiting my Dad, and the cold sure makes a difference, in a good way!! Had the shot in April, no relief as time goes by. Just had my bloodwork done, still positive for antibodies, 15+, whatever that means, so I’m waiting on the booster.

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Profile picture for silvern12 @silvern12

Mine began around the same time as initial shot and has gotten worse Wish they would look into this and see if this is an issue. Also on statin so I figure its one of the two.

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Statins can cause neuropathy google stations & neuroathy

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Profile picture for pogo @pogo

Statins can cause neuropathy google stations & neuroathy

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Oops meant stains not stations I hate predictive spellings

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I have a question for those who have experienced either new onset neuropathy, or neuropathy flares post vaccine. Or, if the question just generally applies to your neuropathy please comment. How much twitching, if any, do you experience with your neuropathy? Other than the burning and stinging in my feet, legs, hands and sometimes other random body areas, twitching and a slight feeling of weakness in my right leg has been a very predominant thing for me. I know that some neuropathy does cause twitching. And I do have nerve compression issues at S1 which my neurologist theorizes got very ramped up after the vaccine. I just wondered how much anyone else experiences this. Please refer back to my earlier posts if interested in my back story. I would also like to say thank you for the support of this group. The past year has been so very difficult and reading some of the stories and comments here has at least let me know that I am not alone and not crazy! I pray that each and every one of us has a marvelous 2022!

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Profile picture for lk61 @lk61

I have a question for those who have experienced either new onset neuropathy, or neuropathy flares post vaccine. Or, if the question just generally applies to your neuropathy please comment. How much twitching, if any, do you experience with your neuropathy? Other than the burning and stinging in my feet, legs, hands and sometimes other random body areas, twitching and a slight feeling of weakness in my right leg has been a very predominant thing for me. I know that some neuropathy does cause twitching. And I do have nerve compression issues at S1 which my neurologist theorizes got very ramped up after the vaccine. I just wondered how much anyone else experiences this. Please refer back to my earlier posts if interested in my back story. I would also like to say thank you for the support of this group. The past year has been so very difficult and reading some of the stories and comments here has at least let me know that I am not alone and not crazy! I pray that each and every one of us has a marvelous 2022!

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I was thoroughly shocked recently when diagnosed with neuropathy. I thought only people with diabetes (which I don't have) suffered with neuropathy. However, I do have polymyalgia rheumatica, giant cell arteritis, and rheumatoid arteritis. When first diagnosed with this neuropathy I couldn't believe God would be so cruel as to let this happen to me since I'm dealing with so much already. I found a new rheumatologist who after many tests informed me that because my last rheumatologist kept me on Prednisone for such a long time, I now have osteoporosis as well. My first symptoms started with a hot crawly feeling in the soles of my feet at night. A few weeks later I started waking at night with burning on my legs from my knees to my ankles. Now, I've developed twitching in my face that wakes me from a sound sleep as well as severe headaches. I found a team of neurologists who treat people who suffer migraine headaches, diabetic and peripheral neuropathy as well as other disorders of the nervous system and am praying they can help me. I'd just like to say_ from all I've been reading I feel as though I'm at the very beginning of what will eventually become a horror story for me. I deal (on a daily basis) with pain from polymyalgia, back aches from osteoporosis, pain in all of my joints from arthritis, but he worst of it all is the almost unbearable anxiety that hovers over me constantly. I try to explain this all to my husband, but he just doesn't understand which leaves me alone in my world of aches, pains and anxiety.

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I get what your saying my husband also has no clue what I’m going through I really would like to know if from vaccine never had a problem just osteoarthritis not serious

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Profile picture for pogo @pogo

Statins can cause neuropathy google stations & neuroathy

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Since booster I am getting tingling all over body at night feels like electrical shocks impossible to get appt with neurologist and Mayo won’t accept new patients here

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