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Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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aerc25 | @aerc25 | Dec 21, 2021
In reply to @mawmaw3 "My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that..." + (show)
Profile picture for mawmaw3 @mawmaw3

My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that either started or worsened after the vaccine. She said their symptoms seem to worsen over several months, then plateau. Once again she said she hoped it would improve or go away, but vaccines haven’t been out long enough to see.

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Can you share the name of your doctor and where they are please? Thank you!

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mawmaw3 | @mawmaw3 | Dec 21, 2021
In reply to @aerc25 "Can you share the name of your doctor and where they are please? Thank you!" + (show)
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Can you share the name of your doctor and where they are please? Thank you!

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She’s in Falls Church, VA. Has wonderful nurse practitioners and physicians’ assistants.

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keinalem | @keinalem | Dec 21, 2021

I’m 80 and have neuropathy from chemo. I’ve had two Pfizer vaccines, the flu vaccine and the Pfizer booster with no side effects except a very slight sore arm.

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keinalem | @keinalem | Dec 21, 2021

I read your further questions after I posted my reply stating that I’ve had no I’ll effects from the Pfizer vaccines including then booster and want to add that I received the booster two months ago at Houston Methodist Hospital in the Texas Medical Center. My oncologist Dr Erik Bernicker recommended and strongly urged that I get any and all Covid vaccines.

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raebaby | @raebaby | Dec 22, 2021

I have foot neuropathy from chemo. I had both Moderna vaccines, the booster and a flu shot. I experienced no reactions to any of them. My feet are also improving. I'm 80 years old and still getting chemo.

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twobrooklyn | @twobrooklyn | Dec 22, 2021
In reply to @mawmaw3 "My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that..." + (show)
Profile picture for mawmaw3 @mawmaw3

My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that either started or worsened after the vaccine. She said their symptoms seem to worsen over several months, then plateau. Once again she said she hoped it would improve or go away, but vaccines haven’t been out long enough to see.

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The problem is PN is not curable regardless of the reason.

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pacer3702 | @pacer3702 | Dec 22, 2021

The vaccine-related flares may be specific to immune-mediated PN.

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maureenkay69 | @maureenkay69 | Dec 23, 2021
In reply to @mawmaw3 "My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that..." + (show)
Profile picture for mawmaw3 @mawmaw3

My neurologist told me today they have many patients with post Covid vaccine neuropathy symptoms that either started or worsened after the vaccine. She said their symptoms seem to worsen over several months, then plateau. Once again she said she hoped it would improve or go away, but vaccines haven’t been out long enough to see.

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This sounds like what has happened for me. I’m nine months out from my second moderna dose and finally seem to have plateaued with possibly some improvement…but it’s been a rough nine months and now wrestling with what to do about the booster. Hard choices.

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silvern12 | @silvern12 | Dec 23, 2021

I just got the pheizer booster . I was really worried about my neuropathy. It did not make it any worse but my muscles are killing me especially calves and shoulders. Have a low grade fever lasted a day It is third day and still under the weather but so far glad I did it but that’s it for me. No more

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mdd | @mdd | Dec 23, 2021
In reply to @chezpl69 "Hi have your symptoms improved? I got symptoms three weeks after the first pfizer shot. I..." + (show)
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Hi have your symptoms improved? I got symptoms three weeks after the first pfizer shot. I have burning in thighs and face. some needles in my arms hands and legs It seems like every day I get a little more. I have already postponed the second shot twice. My neurologist suggested today that I go for the second shot. I'm not convinced.

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How are you doing? I've had the same symptoms after my vaccine with no prior neurological symptoms. I'm still experience symptoms 11 months later and do not want to get the booster. I'm wondering if others have continued burning/tingling in face, thighs and some in hands and toes?

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