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Anyone with Meniere's Disease been prescribed Betahistine?

Posted by morninglory @morninglory, May 13, 2018

Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

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artist01 | @artist01 | Mar 16, 2021
In reply to @cinnamonkat "Do the headphones really work? Or is it a toss up?" + (show)
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Do the headphones really work? Or is it a toss up?

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@cinnamonkat I've had the "sound-making" hearing aid and in my opinion the "white sound" headphones would work as well or better, but it's' just a helping kind of solution, a bandaid solution you might say.

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december1011 | @december1011 | Aug 12, 2021
In reply to @morninglory "Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs..." + (show)
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Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.

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I take it and it seems to help

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jr421 | @jr421 | Nov 23, 2021
In reply to @morninglory "Thank you so much for your information. Have had a Meniere's diagnoses by ENT but am..." + (show)
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Thank you so much for your information. Have had a Meniere's diagnoses by ENT but am eagerly awaiting my appt. at Mayo Rochester in June for further testing. The test they have avail here is simply a hearing test and then a test for vestibular problem given by a p.at.
Was hoping to flunk the vestibular testing but I didn't so was deposited in the Meniere column. I have cut salt daily intake to under 1000mg and seems to help, but still have had some momentary dizziness lately. Have not had a full blown Meniere's attack in over a month and appreciate any info at all about the problem. It does change your life and not in a good way.

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Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!

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Amanda Burnett | @amandaa | Nov 24, 2021
In reply to @jr421 "Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But..." + (show)
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Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!

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Hi @jr421 and welcome to Mayo Clinic Connect. It can take a bit of time to ascertain an appointment, however, if you can get their local MD to send over a referral and then call the appointment office at 507-538-3270; open 7 a.m. to 6 p.m.; Central time; Monday through Friday and ask them where your family member stands.

Have you called the appointment office to check on the status of your request?

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Colleen Young, Connect Director | @colleenyoung | Nov 24, 2021
In reply to @jr421 "Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But..." + (show)
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Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!

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@jr421, I believe that you were directing your question specifically to @morninglory, so allow me to tag her so that she gets a notification of your query about going to Mayo Clinic for Meniere's disease.

I agree with Amanda that you can call the appointments office to check on the status of your request.

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morninglory | @morninglory | Nov 24, 2021
In reply to @jr421 "Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But..." + (show)
Profile picture for jr421 @jr421

Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!

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My appt. for the Meniere's test was one of several appts. I had at the time at Mayo. I have been going to Mayo since 2000 and usually have to make them either 2 or 3 months ahead of time. Do not get discouraged, call and check with them as to where you may be time wise for the appt. I'm sure you will have the appt. asap. Good Luck
Morninglory

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mwsa1945 | @mwsa1945 | Nov 30, 2021

Good Evening…I have been experiencing vertigo with increasing episodes after I started using a solid ear mold for my left ear to prevent it from being dislodged while talking, eating, etc. The same mold for my right ear was great so I decided to get one for the left ear. I just changed back to the original silicon dome and these episodes have stopped. My ENT has possible tubes to be put into both ears. I am currently taking Azalestine for allergies. Would welcome comments from this group, especially the medication Betahistine since neither my ENT or primary care physician has mentioned it. Thanks

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Coppermoon | @coppermoon | Dec 15, 2021
In reply to @estrada53 "Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years..." + (show)
Profile picture for estrada53 @estrada53

Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years of episodes, vertigo and hours of regurgitation. I would literally crawl to the bathroom, because I couldn't walk. I was given diazepam to calm the vertigo, along with nausea medication and all to no avail. I had an episode while driving 60 miles an hour on Lake Shore Drive in Chicago. Nearly killed myself and other folks. Then I stopped using caffeine, lowered my sugar intake and went all low-sodium. I have not had an episode in over 12 years. I do have tinnitus - the ringing in my right ear, where I am now deaf. I wear bi-cross hearing aids. I have tried Lipo-Flavonoid - available at most pharmacies and at Target, etc and online. I did notice a decrease in the ringing. Rehab absolutely worked and I kept the pictures of the exercises on my inside cupboard doors for many years. Whenever I would begin to "feel" the onset of an episode I would begin the exercises. Retraining the brain. Hope this helps someone.

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What are bicross hearing aides?

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Coppermoon | @coppermoon | Dec 15, 2021

I had some similar symptoms 25 years ago and also succeeded in overcoming them with low caffeine, no alcohol, and taking meclizine if needed.

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estrada53 | @estrada53 | Dec 15, 2021
In reply to @coppermoon "What are bicross hearing aides?" + (show)
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What are bicross hearing aides?

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Hi coopermoon! Bicross aides have a device in each ear. Because I am deaf in my right ear the device there acts as s transmitter to send sound, voice etc to a receiver in my left ear. The left ear device also acts as a hearing aid because I have a moderate to profound loss there too.
They work well. If you have any other questions I'm happy to help if I can.

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