Hi again I am sorry I lost track of this group.... have been chugging along and dealing with the usual issues plus tooth extractions gone wrong but I "think" yesterday may have had my first Meniers attacks?
Been awake since 5 and as usual put in earbuds softly to listen to tapes... had been nursing sore gum and sore throat... moved head on pillow and wham: have tinnitus but was like hearing cut off; sat up and head was not dizzy-dizzy but felt like pressure and as if inside top of head/brain being pushed and pulled and trod on..... then (and I have had double vision occasionally with dry eyes, etc) this was not only double vistion but as if I could not control my eyeballs and each one looking at a different scene: I was so scared and actually crawled over the old carpet into my husband's bedroom to wake him up, it sort of stopped and he said come and lie down here I said no going back to my bed as I did same thing happened only worse and I started to "scream" and onto floor - I didnt fall down but felt safer there - and my left arm and leg went out - I suppose I was panicking by then I dont know but I said call ambulance.
Got to our reasonably small hospital one dr. on call at emerge and as I sat explaining to intake nurse what happened I had third one.... he just kept saying take a deep breath and it went away but same symptoms....torture but no pain just like body blowing up!
So Dr. said blood presssure ok, temporature ok, but in midst of it sent a social worker to see me as once you mention depression and S.I. they focus on that but I had a good chat with the young lady. Dr.back in.. 2 x 500 tylenol and sent me home.
I didnt even want to go back to my bedroom. My dad died in UK in 1985 same time as I was being treated for cancer of cervix in Toronto but one of only couple relatives live there said they think my Dad had Menieres.
Have had tinnitus long time and feeling of fullness in ears and pain and co incidence afgter waiting months for telephone call from ENT, he phoned last week and was in a bad mood and yelled at me for ten minutes....talking about his work load etc. I wrote 2 letters to him and tore them up as no use. But now this has happened I am frightened. I can barely manage my other mental and physical pain but if I start having surprise attacks as bad as this am not sure how I will cope and my sincere condolences and thoughts to those who have been doing so. I dont know what to do next. 👵🏻 I have no family dr. but have a call in to online clinic for tomorrow , thanks. Am 77.
Hi again I am sorry I lost track of this group.... have been chugging along and dealing with the usual issues plus tooth extractions gone wrong but I "think" yesterday may have had my first Meniers attacks?
Been awake since 5 and as usual put in earbuds softly to listen to tapes... had been nursing sore gum and sore throat... moved head on pillow and wham: have tinnitus but was like hearing cut off; sat up and head was not dizzy-dizzy but felt like pressure and as if inside top of head/brain being pushed and pulled and trod on..... then (and I have had double vision occasionally with dry eyes, etc) this was not only double vistion but as if I could not control my eyeballs and each one looking at a different scene: I was so scared and actually crawled over the old carpet into my husband's bedroom to wake him up, it sort of stopped and he said come and lie down here I said no going back to my bed as I did same thing happened only worse and I started to "scream" and onto floor - I didnt fall down but felt safer there - and my left arm and leg went out - I suppose I was panicking by then I dont know but I said call ambulance.
Got to our reasonably small hospital one dr. on call at emerge and as I sat explaining to intake nurse what happened I had third one.... he just kept saying take a deep breath and it went away but same symptoms....torture but no pain just like body blowing up!
So Dr. said blood presssure ok, temporature ok, but in midst of it sent a social worker to see me as once you mention depression and S.I. they focus on that but I had a good chat with the young lady. Dr.back in.. 2 x 500 tylenol and sent me home.
I didnt even want to go back to my bedroom. My dad died in UK in 1985 same time as I was being treated for cancer of cervix in Toronto but one of only couple relatives live there said they think my Dad had Menieres.
Have had tinnitus long time and feeling of fullness in ears and pain and co incidence afgter waiting months for telephone call from ENT, he phoned last week and was in a bad mood and yelled at me for ten minutes....talking about his work load etc. I wrote 2 letters to him and tore them up as no use. But now this has happened I am frightened. I can barely manage my other mental and physical pain but if I start having surprise attacks as bad as this am not sure how I will cope and my sincere condolences and thoughts to those who have been doing so. I dont know what to do next. 👵🏻 I have no family dr. but have a call in to online clinic for tomorrow , thanks. Am 77.
...on line doctor thinks may be BPPV. I had a quick check and wasn't like head spinning but more like brain being kicked around like a football and eyes out of control.. fear is subsiding but lurking around every corner.... going to get tested for Covid tomorrow at dept in our hospital... cant do the drive through as have sore throat. I too am getting a bit lost in these amazing groups and subgroups, might have to start keeping written notes! First day warm enough to sit outside for half hour where I live, sun felt good!! J.
Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.
Thank you so much for your information. Have had a Meniere's diagnoses by ENT but am eagerly awaiting my appt. at Mayo Rochester in June for further testing. The test they have avail here is simply a hearing test and then a test for vestibular problem given by a p.at.
Was hoping to flunk the vestibular testing but I didn't so was deposited in the Meniere column. I have cut salt daily intake to under 1000mg and seems to help, but still have had some momentary dizziness lately. Have not had a full blown Meniere's attack in over a month and appreciate any info at all about the problem. It does change your life and not in a good way.
Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!
Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!
Hi @jr421 and welcome to Mayo Clinic Connect. It can take a bit of time to ascertain an appointment, however, if you can get their local MD to send over a referral and then call the appointment office at 507-538-3270; open 7 a.m. to 6 p.m.; Central time; Monday through Friday and ask them where your family member stands.
Have you called the appointment office to check on the status of your request?
Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!
@jr421, I believe that you were directing your question specifically to @morninglory, so allow me to tag her so that she gets a notification of your query about going to Mayo Clinic for Meniere's disease.
I agree with Amanda that you can call the appointments office to check on the status of your request.
Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!
My appt. for the Meniere's test was one of several appts. I had at the time at Mayo. I have been going to Mayo since 2000 and usually have to make them either 2 or 3 months ahead of time. Do not get discouraged, call and check with them as to where you may be time wise for the appt. I'm sure you will have the appt. asap. Good Luck
Morninglory
Good Evening…I have been experiencing vertigo with increasing episodes after I started using a solid ear mold for my left ear to prevent it from being dislodged while talking, eating, etc. The same mold for my right ear was great so I decided to get one for the left ear. I just changed back to the original silicon dome and these episodes have stopped. My ENT has possible tubes to be put into both ears. I am currently taking Azalestine for allergies. Would welcome comments from this group, especially the medication Betahistine since neither my ENT or primary care physician has mentioned it. Thanks
Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years of episodes, vertigo and hours of regurgitation. I would literally crawl to the bathroom, because I couldn't walk. I was given diazepam to calm the vertigo, along with nausea medication and all to no avail. I had an episode while driving 60 miles an hour on Lake Shore Drive in Chicago. Nearly killed myself and other folks. Then I stopped using caffeine, lowered my sugar intake and went all low-sodium. I have not had an episode in over 12 years. I do have tinnitus - the ringing in my right ear, where I am now deaf. I wear bi-cross hearing aids. I have tried Lipo-Flavonoid - available at most pharmacies and at Target, etc and online. I did notice a decrease in the ringing. Rehab absolutely worked and I kept the pictures of the exercises on my inside cupboard doors for many years. Whenever I would begin to "feel" the onset of an episode I would begin the exercises. Retraining the brain. Hope this helps someone.
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Hi again I am sorry I lost track of this group.... have been chugging along and dealing with the usual issues plus tooth extractions gone wrong but I "think" yesterday may have had my first Meniers attacks?
Been awake since 5 and as usual put in earbuds softly to listen to tapes... had been nursing sore gum and sore throat... moved head on pillow and wham: have tinnitus but was like hearing cut off; sat up and head was not dizzy-dizzy but felt like pressure and as if inside top of head/brain being pushed and pulled and trod on..... then (and I have had double vision occasionally with dry eyes, etc) this was not only double vistion but as if I could not control my eyeballs and each one looking at a different scene: I was so scared and actually crawled over the old carpet into my husband's bedroom to wake him up, it sort of stopped and he said come and lie down here I said no going back to my bed as I did same thing happened only worse and I started to "scream" and onto floor - I didnt fall down but felt safer there - and my left arm and leg went out - I suppose I was panicking by then I dont know but I said call ambulance.
Got to our reasonably small hospital one dr. on call at emerge and as I sat explaining to intake nurse what happened I had third one.... he just kept saying take a deep breath and it went away but same symptoms....torture but no pain just like body blowing up!
So Dr. said blood presssure ok, temporature ok, but in midst of it sent a social worker to see me as once you mention depression and S.I. they focus on that but I had a good chat with the young lady. Dr.back in.. 2 x 500 tylenol and sent me home.
I didnt even want to go back to my bedroom. My dad died in UK in 1985 same time as I was being treated for cancer of cervix in Toronto but one of only couple relatives live there said they think my Dad had Menieres.
Have had tinnitus long time and feeling of fullness in ears and pain and co incidence afgter waiting months for telephone call from ENT, he phoned last week and was in a bad mood and yelled at me for ten minutes....talking about his work load etc. I wrote 2 letters to him and tore them up as no use. But now this has happened I am frightened. I can barely manage my other mental and physical pain but if I start having surprise attacks as bad as this am not sure how I will cope and my sincere condolences and thoughts to those who have been doing so. I dont know what to do next. 👵🏻 I have no family dr. but have a call in to online clinic for tomorrow , thanks. Am 77.
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1 Reaction...on line doctor thinks may be BPPV. I had a quick check and wasn't like head spinning but more like brain being kicked around like a football and eyes out of control.. fear is subsiding but lurking around every corner.... going to get tested for Covid tomorrow at dept in our hospital... cant do the drive through as have sore throat. I too am getting a bit lost in these amazing groups and subgroups, might have to start keeping written notes! First day warm enough to sit outside for half hour where I live, sun felt good!! J.
I take it and it seems to help
Hello, trying to get a family member into Mayo Rochester for further testing of Meniere's. But haven't heard much other than they received the documents that were sent over. We are losing hope. How did you get an appointment and did you have to wait a long time? Thank you!
Hi @jr421 and welcome to Mayo Clinic Connect. It can take a bit of time to ascertain an appointment, however, if you can get their local MD to send over a referral and then call the appointment office at 507-538-3270; open 7 a.m. to 6 p.m.; Central time; Monday through Friday and ask them where your family member stands.
Have you called the appointment office to check on the status of your request?
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2 Reactions@jr421, I believe that you were directing your question specifically to @morninglory, so allow me to tag her so that she gets a notification of your query about going to Mayo Clinic for Meniere's disease.
I agree with Amanda that you can call the appointments office to check on the status of your request.
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1 ReactionMy appt. for the Meniere's test was one of several appts. I had at the time at Mayo. I have been going to Mayo since 2000 and usually have to make them either 2 or 3 months ahead of time. Do not get discouraged, call and check with them as to where you may be time wise for the appt. I'm sure you will have the appt. asap. Good Luck
Morninglory
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3 ReactionsGood Evening…I have been experiencing vertigo with increasing episodes after I started using a solid ear mold for my left ear to prevent it from being dislodged while talking, eating, etc. The same mold for my right ear was great so I decided to get one for the left ear. I just changed back to the original silicon dome and these episodes have stopped. My ENT has possible tubes to be put into both ears. I am currently taking Azalestine for allergies. Would welcome comments from this group, especially the medication Betahistine since neither my ENT or primary care physician has mentioned it. Thanks
What are bicross hearing aides?
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1 ReactionI had some similar symptoms 25 years ago and also succeeded in overcoming them with low caffeine, no alcohol, and taking meclizine if needed.
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