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Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?
@trishanna hi i have been waiting months to speak to ent, and appointment is thursday so will get my list of questions ready, i could go out of town and see someone sooner but with fecal incontinence and now other issues, hard to travel, take care,j.
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Be sure to check the HLAA website, http://www.hearingloss.org for Consumers Checklist (type that in lookup box) and many of those questions will help you
Lacy, just another example of nature attempting to fill the void of silence. The strange thing is that, like your horse race, some things are from what you actually heard decades earlier, have forgotten entirely. I don't know quite how to separate this strange event from thinking you hear things that you possibly could be hearing, like the dishwasher running, for example. I know that I need to listen carefully to hear the various household machines doing their jobs, and sometimes I swear they're running, but, when I feel their sides, they obviously aren't. I've heard marching bands from long ago.
Along with recruitment (which may be part of this strangeness), is the fact that it's possible to have a vertigo crisis simply from hearing too much sound. For example, while my daughter was in college, I went to a concert which had the 1812 Overture as the final number. (That's the one that can have cannons, or at least lots of action from the percussion section.) I stumbled out, weaving toward my car, bumping into other cars in the lot, and had to lie down for an hour or more before I could drive. It was just too much noise for someone with recruitment!
@joyces and all.. Agree joyces…. I had tinnitus starting over 20 yrs ago, the odd tinkle, tap, buzz off and on but understood it and at that time hadnt had many illnesses nor medications. Over the past years, sort of changed to more of a machine noise. Around the same time, my husband bought new furance and its a two stage; so its a metal box with natural gas , or rather two boxes now as two stage, and pipes come out and run to each room in the house. The motor starts up, brings in air, heats it up and blows it out into rooms. This super duper one, if doest reach temperature on thermostat in hall, then sort of goes through it again… it is noisier than old one. Also, older furnaces reheated the air in the house then they decided to bring in fresh air from outside for combustion, etc. So there is a pipe going outside bringing in air… this is where we argue. I say that the furnace is brining in sometimes minus 20 Celcius air to have to heat up, right? So runs longer. Thing is they were building air tight houses which wasnt good for gas furnace but we have a dog and anyone iwth a dog knows you open the door to let it in and out twenty times a day, so lots of fresh air. We also bought a new double door fridge – and there was on old beer fridge in basement when bought the house. OH you are so correct. Soooo. I am woken up by one of the three noise-makers… I no longer do it often but would go down and check each fridge and the furnace.. many many times, as now, it is running and i can hear it. Sometimes, nothing is running but I hear a similar noise. Sometimes both fridges happen to be running when i put my ear to them! etc. etc. However, long story short its enough to drive someone crackers! I try to have you tube in background at night, i even use earbuds…. sometimes fall asleep and sometimes can still hear the noise. The brain is complex for sure. All i can say is it is different than when i first had tinnitus and i still wonder if it was caused by medication/ if Norflox causes periphery neuropathy, could another drug have heightened the tinnitus….I wonder..
Do the headphones really work? Or is it a toss up?
@cinnamonkat I've had the "sound-making" hearing aid and in my opinion the "white sound" headphones would work as well or better, but it's' just a helping kind of solution, a bandaid solution you might say.
Hi again I am sorry I lost track of this group…. have been chugging along and dealing with the usual issues plus tooth extractions gone wrong but I "think" yesterday may have had my first Meniers attacks?
Been awake since 5 and as usual put in earbuds softly to listen to tapes… had been nursing sore gum and sore throat… moved head on pillow and wham: have tinnitus but was like hearing cut off; sat up and head was not dizzy-dizzy but felt like pressure and as if inside top of head/brain being pushed and pulled and trod on….. then (and I have had double vision occasionally with dry eyes, etc) this was not only double vistion but as if I could not control my eyeballs and each one looking at a different scene: I was so scared and actually crawled over the old carpet into my husband's bedroom to wake him up, it sort of stopped and he said come and lie down here I said no going back to my bed as I did same thing happened only worse and I started to "scream" and onto floor – I didnt fall down but felt safer there – and my left arm and leg went out – I suppose I was panicking by then I dont know but I said call ambulance.
Got to our reasonably small hospital one dr. on call at emerge and as I sat explaining to intake nurse what happened I had third one…. he just kept saying take a deep breath and it went away but same symptoms….torture but no pain just like body blowing up!
So Dr. said blood presssure ok, temporature ok, but in midst of it sent a social worker to see me as once you mention depression and S.I. they focus on that but I had a good chat with the young lady. Dr.back in.. 2 x 500 tylenol and sent me home.
I didnt even want to go back to my bedroom. My dad died in UK in 1985 same time as I was being treated for cancer of cervix in Toronto but one of only couple relatives live there said they think my Dad had Menieres.
Have had tinnitus long time and feeling of fullness in ears and pain and co incidence afgter waiting months for telephone call from ENT, he phoned last week and was in a bad mood and yelled at me for ten minutes….talking about his work load etc. I wrote 2 letters to him and tore them up as no use. But now this has happened I am frightened. I can barely manage my other mental and physical pain but if I start having surprise attacks as bad as this am not sure how I will cope and my sincere condolences and thoughts to those who have been doing so. I dont know what to do next. 👵🏻 I have no family dr. but have a call in to online clinic for tomorrow , thanks. Am 77.
…on line doctor thinks may be BPPV. I had a quick check and wasn't like head spinning but more like brain being kicked around like a football and eyes out of control.. fear is subsiding but lurking around every corner…. going to get tested for Covid tomorrow at dept in our hospital… cant do the drive through as have sore throat. I too am getting a bit lost in these amazing groups and subgroups, might have to start keeping written notes! First day warm enough to sit outside for half hour where I live, sun felt good!! J.
Vertigo, nausea, unable to see correctly and severe ringing in the ears. When an episode occurs I must lay down as it's too difficult to walk. The reason I asked about the Betahistine is I had heard on NPR an interview with a Dr. David Kaylie MD FAC an associate Professor of surgery head and neck and Communication Sciences at Duke University speak of Betahistine as a med that they had had success with for patients with Meniere's. Also that it has been used for Meniere's in Europe for decades. My ENT dr. was not familiar with it nor was my family dr.. Am hoping someone that has taken it can pass on an opinion and also how to find a doctor that is aware of this medication.
I take it and it seems to help
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