Anyone with Meniere's Disease been prescribed Betahistine?

Posted by morninglory @morninglory, May 13, 2018

Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?

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Profile picture for artist01 @artist01

@jakedduck1 Jake, I don't think transplanted Californians would survive our northern climate. Plus, our pure and wonderful air would be blue from all the cussing and complaining when the temperature dips! Right now, we are ecstatic over our WARM AND WONDERFUL weather cuz we're finally up to 40*F. Warmest regards, Laurie

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@artist01 In Pa too that was summer weather in winter

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Profile picture for joyces @joyces

Too many people in most places! Sixty years ago, Portland, Oregon was okay, but now its all traffic, rabbit warren apts., people everywhere. We moved to this house on the coast (which I've had for nearly 60 years) and now, when I make the two-hour drive to Portland I sometimes fail to run all the errands I had on my list because I just want to escape.

Tinnitus is simply Ma Nature's attempt to fill the silent void when you lose hearing. For some, that makes it less awful. Worse than tinnitus is acoustic hallicinations! That's hearing something that's not there, often "replayed" from something you haven't actually heard for years.

Have any of you with tinnitus ever heard of sticky platelets? I know someone who'd been diagnosed with Meniere's, but, like 80% of those who have, he actually had sticky platelets. with tinnitus being his main complaint. In fact, he became very active in ATA, the American Tinnitus Assn. Once he found out about sticky platelets (in his blood), he was cured by taking one low-dose aspirin every day.

It is true that over time tinnitus becomes far less bothersome. I've had it in my right ear for nearly 40 years, but the only time I'm aware of it is when it becomes a topic for discussion. The relatively new T in my left ear is still pretty noticeable, but the recruitment and distortion Meniere's offers are far, far more bothersome.

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How do you find out if you have sticky platelets ?

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Profile picture for trishanna @trishanna

@lacy2 Didn't see anything about what's been recommended to you medically, if anything. As a longtime Meniere's disease sufferer, I still like antivert for vertigo and a diuretic for excess fluid retention. My tinnitus has worsened since I'm no longer able to take a diuretic. The greatest symptom reliever is reduced salt intake. Based on my experience only, I'm absolutely convinced there's a connection between fluid in the ear, tinnitus, and vertigo.

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Thank you for your response

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Profile picture for Erika @erikas

@december1011 How are you doing today? May I ask if you tried the headphones?

You will notice that I moved you question to a previous discussion on this topic. I did this so you could connect with members in a central location and so that other members with a similar question could more easily find you. I see that you were part of this discussion in the past. Did you have a chance to read the past comments?

I'm wondering if you have ever considered alternative therapies like, acupuncture, chiropractic, etc.?

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Hi there, I actually have a number to call for acupuncture and I recently unpacked my headphones that have a white noise setting .. 👍

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Profile picture for trishanna @trishanna

@jakedduck1 While Canada's taking your excess Californians, maybe they could stop in Chicago and pick up, say, 30,000. It would really help with traffic, etc. Thanks.

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@trishanna Well, that might work, transplanting Chicago folks to Canada. At least, they could tolerate our weather better than the Californians could!

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Profile picture for december1011 @december1011

<p>Has anyone out there found a remedy or at least something that lessons the feeling of pressure and tinnitus accompanied with Meniers Disease? My symptoms are maddening. Thank you</p>

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@december1011 I think your newly unpacked headphones with the white noise app are an excellent start!

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Profile picture for artist01 @artist01

@december1011 I think your newly unpacked headphones with the white noise app are an excellent start!

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Do the headphones really work? Or is it a toss up?

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Profile picture for artist01 @artist01

@trishanna Nope, not fluid in the ear. There are tiny hairs in our inner ears that get "bent over" and thus tinnitus is the result. That's a very un-medical description of what my neurologist and ENT told me. It's available for research on the internet.

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@artist01 It's my belief that I suffer from recruitment, but so far have only associated it with my hearing problems. It would be nice if the hearing industry researched/understood recruitment. The only prescription I've been offered are "hearing aids" to make sound LOUDER. Have just purchased ear protectors to reduce noise, but can't understand anyone speaking with a mask on. Anyhow, never associated recruitment with tinnitus. Mine fluctuates with my diet - salt, food allergies.

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Be sure to check the HLAA website, http://www.hearingloss.org for Consumers Checklist (type that in lookup box) and many of those questions will help you

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Lacy, just another example of nature attempting to fill the void of silence. The strange thing is that, like your horse race, some things are from what you actually heard decades earlier, have forgotten entirely. I don't know quite how to separate this strange event from thinking you hear things that you possibly could be hearing, like the dishwasher running, for example. I know that I need to listen carefully to hear the various household machines doing their jobs, and sometimes I swear they're running, but, when I feel their sides, they obviously aren't. I've heard marching bands from long ago.

Along with recruitment (which may be part of this strangeness), is the fact that it's possible to have a vertigo crisis simply from hearing too much sound. For example, while my daughter was in college, I went to a concert which had the 1812 Overture as the final number. (That's the one that can have cannons, or at least lots of action from the percussion section.) I stumbled out, weaving toward my car, bumping into other cars in the lot, and had to lie down for an hour or more before I could drive. It was just too much noise for someone with recruitment!

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