1. < Epilepsy & Seizures

Seizures/how to dose CBD/medical marijuana

Posted by keeg1010 @keeg1010, Aug 9, 2021

Hi. My son has cerebral palsy, autism, and recently developed seizures. His neurologist increased his lamotrigine but wants him to start cbd/medical marijuana. I had an appt to get his medical marijuana card but cancelled because they told me the doctor only approves the card and does not go over dosing. He is 23, 190lbs. We are in the process of weaning him off his Buspar (he took 45mg twice a day) and he's down to 15mg once daily for this week and then we stop. I did try a CBD gummy a while back (5mg) but I think it was too much on top of the Buspar and Abilify he takes. How do I know what dose to try and do I try just CBD or THC or both?

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keeg1010 | @keeg1010 | Sep 4, 2021
In reply to @pamelastewart5 "Hello, Everyone, FYI: There is a free neuro mag called BRAIN AND LIFE. I discovered it..." + (show)
@pamelastewart5

Hello, Everyone,
FYI: There is a free neuro mag called BRAIN AND LIFE. I discovered it many years ago while waiting in Caleb's neurologist's office. I get a hard copy through the mail and also the e-mail version.It has lots of ads (which is why it's free), but also very good articles on various neuro problems, including epilepsy. I believe that the e-mail address is: BrainandLife. org. and that the phone number for subscriptions is: 1-800-422-2681.
Best wishes!
Pam Stewart

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Thanks for the information! I will definitely request the magazine.
Kerry

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Chris Gautier OR Santosha | @santosha | Sep 10, 2021

Hi Everybody!
Hope this message finds you all well!
Yesterday, I had an appointment with my epileptologist, asking him why he does not prescribe THC for his patients with epilepsy. He has explained that studies on medical cannabis started in the seventies. At that time, studies have shown that THC had convulsive effects, a belief still in force. The studies that have been performed thereafter were mainly on pure CBD, showing that this cannabinoid is secure for epilepsy treatment. However, there is still a need for more studies on THC to prove it is secure as well.
Wishing you all a nice weekend!
Santosha

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nicole4success | @nicole4success | Mar 20, 2023
In reply to @keeg1010 "Thanks for the information Jake. I was doing some research and Epidiolex kept coming up. I..." + (show)
@keeg1010

Thanks for the information Jake. I was doing some research and Epidiolex kept coming up. I don't have any knowledge on this type of treatment and was really surprised that the neurologists office does the medical marijuana certification but that the doctor who approves the card does not discuss dosing. I was told to go to a dispensary. I left a message for my son's neurologist and her assistant got back to me and stated she (the neuro) was not familiar with dosing and could not provide recommendations (even though she's the one who said we should start CBD/med marijuana. Thanks for the links in both posts. I will definitely be looking into those. I am sorry to hear that your having so many seizures. They really are scary and the treatment meds side effects are just as scary. My son has enough medications...I don't want to keep adding more, especially since he's non-verbal and can't tell me if he's having side effects.
Kerry

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Epidiolex is CBD and is not psychoactive. The pharmaceutical med isn't cleaned with chemicals. I'm the dispensary they are. I have my medical card. It's is much safer than meds. I would talk to another doctor. I think it is the last one on the list to try. I'm not sure. But, I just was put on it so I'll let you know how it works for me. I would rather have child or myself on Epidiolex instead of the man made chemicals they have me on. Hope this works and I hope it helps. I do honestly think it's an insurance issue. Makes me angry. They did have to call for prior approval. I would ask the doc and then if your questions aren't answered or you feel uncomfortable see someone else. That's not right that you aren't listened to.

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1 reply
Chris Gautier OR Santosha | @santosha | Mar 21, 2023
In reply to @nicole4success "Epidiolex is CBD and is not psychoactive. The pharmaceutical med isn't cleaned with chemicals. I'm the..." + (show)
@nicole4success

Epidiolex is CBD and is not psychoactive. The pharmaceutical med isn't cleaned with chemicals. I'm the dispensary they are. I have my medical card. It's is much safer than meds. I would talk to another doctor. I think it is the last one on the list to try. I'm not sure. But, I just was put on it so I'll let you know how it works for me. I would rather have child or myself on Epidiolex instead of the man made chemicals they have me on. Hope this works and I hope it helps. I do honestly think it's an insurance issue. Makes me angry. They did have to call for prior approval. I would ask the doc and then if your questions aren't answered or you feel uncomfortable see someone else. That's not right that you aren't listened to.

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Hi @nicole4success!
Wishing that Epidiolex works well for you. I do take pure CBD (200 mg) since 2021, after having tried 5 different AEDs. I feel much better and back in control of my life. I do hope you have a good experience with this treatment. If you have any questions regarding the CBD treatment, feel free to contact me.
My best wishes to you!
Santosha

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1 reply
abcla1315 | @abcla1315 | Mar 22, 2023
In reply to @santosha "Hi @nicole4success! Wishing that Epidiolex works well for you. I do take pure CBD (200 mg)..." + (show)
@santosha

Hi @nicole4success!
Wishing that Epidiolex works well for you. I do take pure CBD (200 mg) since 2021, after having tried 5 different AEDs. I feel much better and back in control of my life. I do hope you have a good experience with this treatment. If you have any questions regarding the CBD treatment, feel free to contact me.
My best wishes to you!
Santosha

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Santosha- What kind of CBD do you take? Is that 200mg per day?

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Chris Gautier OR Santosha | @santosha | Mar 22, 2023

Hi @abcla1315, Good Morning
I take 100% CBD 200 mg, it is from FarmaUSA, a Brazilian company that produces CBD in the States. How strange, you might ask yourself! A few years ago, it was still forbidden to produce medical cannabis in Brazil, but last year it was finally authorized :-). But this med over here costs more than the imported one from FarmaUSA. This is why I still buy it from FarmaUSA.
Santosha

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