Seizures/how to dose CBD/medical marijuana
Hi. My son has cerebral palsy, autism, and recently developed seizures. His neurologist increased his lamotrigine but wants him to start cbd/medical marijuana. I had an appt to get his medical marijuana card but cancelled because they told me the doctor only approves the card and does not go over dosing. He is 23, 190lbs. We are in the process of weaning him off his Buspar (he took 45mg twice a day) and he's down to 15mg once daily for this week and then we stop. I did try a CBD gummy a while back (5mg) but I think it was too much on top of the Buspar and Abilify he takes. How do I know what dose to try and do I try just CBD or THC or both?
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Just wanted to share these pages from this book that I have. Hope it’s readable. 💕
Thank you so much Alla!
Great!!! It is perfectly readable, I will read it at the end of my day.
Thank you so much for sharing this 🙂
Have a look at this material @alla1967alla has shared, including dosage. The information might be useful for you.
Hello, Santosha and All,
Yes, Caleb's Epidiolex is pure CBD oil. When he took Medical Marijuana, it was full-spectrum oil. The coordinator at the Medical Marijuana Dispensary was very helpful and knowledgeable about doses. He was a licensed pharmacist. We increased the amount of daily oil until we had the best results. This was before marijuana was legal in Illinois. Our doctor gave us a prescription at our request, but she wasn't experienced in doses. She read up on it and also gave us leeway to work with the coordinator. He was great, and we were very fortunate to work with him! When Epidiolex became available, we switched to that with high hopes. As I said, it is not as effective as MM was for Caleb, but it still helps.
Our insurance is unfortunately very quick to deny meds and procedures. We get the Epidiolx from a regular pharmacy (CVS) and it is delivered to our home. Insurance pays with no major glitches so far. We no longer go to the dispensary and our helpful coordinator is no longer there. Now that marijuana is legal in Illinois, I believe there are many dispensaries. Some may be just for recreational marijuana.
Best wishes to you all,
Hi Pam, Good Evening
Thank you so much for sharing this. I will try to understand why my epileptologist is not in favor of full-spectrum marijuana for epilepsy in my next appointment with him. I will share it afterward with our group.
Are you thinking of switching Caleb back to marijuana full-spectrum? Now that it is legal in your place, I understand that the insurance can not deny it. Here in Brazil, this medication is still not covered by health insurance, hope this changes soon!
Have a nice weekend and best wishes,
Hello, Santosha and Everyone,
We would dearly love to switch Caleb back to Medical Marijuana, which helped him more than Epidiolex (seizure frequency is not much different, but on MM he was more alert and could bear weight) but all marijuana, though legal in our state, Illinois, is NOT federally legal, which means insurance won't cover it (my husband has repeatedly checked). It is hard to get Caleb in and out of the car when I pick him up from his day program, so I am hoping for some way to improve his weight bearing. He is not heavy–about 140 lbs and 5"8' tall–but he is still hard to lift/move.
Sorry for the complaints. I believe this will work out sooner or later.
Best wishes to Everyone.
FYI: There is a free neuro mag called BRAIN AND LIFE. I discovered it many years ago while waiting in Caleb's neurologist's office. I get a hard copy through the mail and also the e-mail version.It has lots of ads (which is why it's free), but also very good articles on various neuro problems, including epilepsy. I believe that the e-mail address is: BrainandLife. org. and that the phone number for subscriptions is: 1-800-422-2681.
I understand your frustrations regarding the not recognition of medical marijuana by insurances and also by some doctors. It is the same over here in Brazil. I know that medical marijuana needs additional researches. But when you are in a situation like yours or mine in which you have already tried approved medication without good results, you are willing to take some risks. I better live less but with more life quality than longer but with little life quality. Here in Brazil, there is also a strong lobby of the pharma companies against medical marijuana and its growing use. That is why we still have very few local MM available, the best options are imported.
Interesting Pam, thanks for sharing that with us :-)! I will look at it.
Wishing you all a nice weekend