Hi Melody..when I was in surgery June 7, my hernia was repaired
And left side of stomach was repaired with sewing skin to muscle and cleaning up the area then applying two layers of mesch...
Going for my second follow up August 5, see what I am told
And what else to expect. This whole ordeal sucks...I don’t care
What anyone says or thinks...they ...the medical profession should
Not make us feel this bad and go thru these surgeries...first transplant
Of almost 9 hours is and was enough....and what is with these drug companies they suck too, Charge $2500 for tacrolimus and god
Knows what my sirolimus is !!!! Yes I have Ins. Not to mention
The side effects...where do these drugs come from? The pharmaceutical employees should take these drugs first and count
The number of side effects they get..god bless u and I wish u with
All my heart a speedy recovery..and that goes to all...
I have read several good books about the history of transplants. The immunosuppressive drugs were the turning point. No one lived past a very short time before that. They save our lives. I can send you titles if you like.
I have read several good books about the history of transplants. The immunosuppressive drugs were the turning point. No one lived past a very short time before that. They save our lives. I can send you titles if you like.
@linmarie, I would like to send you a belated welcome to Connect.
I see that we have crossed paths on an earlier discussion: Changes after Transplant, where you mentioned your renewed post transplant energy allowed you to read again. Is this when you discovered books about the history of transplant? I would be interested in knowing the titles of some of the books about the history of transplants.
Thank you for offering to share. I want to invite you to share the books you have read in a discussion titled "Books". It would be wonderful to have others share their suggestions for books about transplant, too. Maybe we can start a book club! I am already thrilled to re-discover this older discussion because I had forgotten about it.
Transplant Discussion - Books https://connect.mayoclinic.org/discussion/books/
- Anyone with a transplant is invited to share experiences about their Changes after Transplant https://connect.mayoclinic.org/discussion/changes-after-transplant/
Linmarie, How are you getting along since your transplant? Kidney?
P.s. From transplant surgery
To this surgery, I lost 63 lbs.
Was size large now size 6.did not plan on so much weight loss. Appetite not so great
But at times I force myself,but
Refuse to say no to ice cream!
Gosh, I wish I could lose wt. that easily. Looking and asking for suggestions, concerns, encouragement and personal experiences. I need to lose just 30 lbs. for surgery and I am stuck at 10 after 2 1/2 mos. Dr. has me on high protein, low sugar intermittent 16 hr. fasting and exercise. I do all of it and exercise 2-3 hrs. daily (cycling 20 miles a day). In my head I know all of it is doing something, except not on the scale. Seems more I exercise the bigger this thing gets. I am going to be the healthiest, fittest, immunosuppressed, over weight female in history. However, not a day goes by that I am not grateful for this second chance in life…to live and make a difference.
Gosh, I wish I could lose wt. that easily. Looking and asking for suggestions, concerns, encouragement and personal experiences. I need to lose just 30 lbs. for surgery and I am stuck at 10 after 2 1/2 mos. Dr. has me on high protein, low sugar intermittent 16 hr. fasting and exercise. I do all of it and exercise 2-3 hrs. daily (cycling 20 miles a day). In my head I know all of it is doing something, except not on the scale. Seems more I exercise the bigger this thing gets. I am going to be the healthiest, fittest, immunosuppressed, over weight female in history. However, not a day goes by that I am not grateful for this second chance in life…to live and make a difference.
@melody12, I want to commend you on your dedication to get beyond this weight loss slump. I can imagine that it is frustration for you. But I trust that the health benefits will be in your favor long after your surgery.
On Connect, there is an entire Discussion Group dedicated to Intermittent fasting. I am sharing the link to it, so that you can meet others who are using a low carbohydrate, healthy fat lifestyle, intermittent fasting, or both, to pursue their health goals. You can ask questions, make comments, of drop in and introduce yourself.
LCHF Living & Intermittent Fasting https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting
Melody, With all of the exercise that you are doing, you are adding muscle mass which has a healthy weight that can offset the numbers on the scale. How is your doctor monitoring your progress?
I have read several good books about the history of transplants. The immunosuppressive drugs were the turning point. No one lived past a very short time before that. They save our lives. I can send you titles if you like.
You might enjoy these videos. I found them fascinating and informative! NOVA episode titled, “Transplanting Hope -https://www.pbs.org/wgbh/nova/video/transplanting-hope/.
It is intense and very emotionally affecting. However, I gained an even stronger appreciation for all of the people who played a role in my “transplant journey.”
The Surgeon’s Cut, Episode 3, Living Donor, is another excellent show, available on Netflix - https://www.netflix.com/us/title/81004466. It discusses some of the early groundbreaking transplant surgeries and portrays Dr. Nancy Ascher, the first woman to perform a liver transplant. It also follows a family preparing for a living donation from a daughter to her mother.
Gosh, I wish I could lose wt. that easily. Looking and asking for suggestions, concerns, encouragement and personal experiences. I need to lose just 30 lbs. for surgery and I am stuck at 10 after 2 1/2 mos. Dr. has me on high protein, low sugar intermittent 16 hr. fasting and exercise. I do all of it and exercise 2-3 hrs. daily (cycling 20 miles a day). In my head I know all of it is doing something, except not on the scale. Seems more I exercise the bigger this thing gets. I am going to be the healthiest, fittest, immunosuppressed, over weight female in history. However, not a day goes by that I am not grateful for this second chance in life…to live and make a difference.
You’re certainly doing all the right things! So, hang in there. Remember, everyone’s bodies are different. And, our bodies all adjust differently to our transplant surgery and our meds. And, healthy eating and exercise, at least to the ability one can, is the best practice for our bodies.
After surgery I was in the hospital on a dreadful feeding tube for a month and a week, and then sent home with it! I wasn’t getting enough protein and struggled to gain weight. And, still haven’t gone back to my pretransplant weight. But, at least my liver doctor doesn’t tell me I’m malnourished anymore!
I have read several good books about the history of transplants. The immunosuppressive drugs were the turning point. No one lived past a very short time before that. They save our lives. I can send you titles if you like.
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Hi Melody..when I was in surgery June 7, my hernia was repaired
And left side of stomach was repaired with sewing skin to muscle and cleaning up the area then applying two layers of mesch...
Going for my second follow up August 5, see what I am told
And what else to expect. This whole ordeal sucks...I don’t care
What anyone says or thinks...they ...the medical profession should
Not make us feel this bad and go thru these surgeries...first transplant
Of almost 9 hours is and was enough....and what is with these drug companies they suck too, Charge $2500 for tacrolimus and god
Knows what my sirolimus is !!!! Yes I have Ins. Not to mention
The side effects...where do these drugs come from? The pharmaceutical employees should take these drugs first and count
The number of side effects they get..god bless u and I wish u with
All my heart a speedy recovery..and that goes to all...
-
Like -
Helpful -
Hug
2 ReactionsI have read several good books about the history of transplants. The immunosuppressive drugs were the turning point. No one lived past a very short time before that. They save our lives. I can send you titles if you like.
-
Like -
Helpful -
Hug
2 Reactions@linmarie, I would like to send you a belated welcome to Connect.
I see that we have crossed paths on an earlier discussion: Changes after Transplant, where you mentioned your renewed post transplant energy allowed you to read again. Is this when you discovered books about the history of transplant? I would be interested in knowing the titles of some of the books about the history of transplants.
Thank you for offering to share. I want to invite you to share the books you have read in a discussion titled "Books". It would be wonderful to have others share their suggestions for books about transplant, too. Maybe we can start a book club! I am already thrilled to re-discover this older discussion because I had forgotten about it.
Transplant Discussion - Books
https://connect.mayoclinic.org/discussion/books/
- Anyone with a transplant is invited to share experiences about their Changes after Transplant
https://connect.mayoclinic.org/discussion/changes-after-transplant/
Linmarie, How are you getting along since your transplant? Kidney?
-
Like -
Helpful -
Hug
2 ReactionsGosh, I wish I could lose wt. that easily. Looking and asking for suggestions, concerns, encouragement and personal experiences. I need to lose just 30 lbs. for surgery and I am stuck at 10 after 2 1/2 mos. Dr. has me on high protein, low sugar intermittent 16 hr. fasting and exercise. I do all of it and exercise 2-3 hrs. daily (cycling 20 miles a day). In my head I know all of it is doing something, except not on the scale. Seems more I exercise the bigger this thing gets. I am going to be the healthiest, fittest, immunosuppressed, over weight female in history. However, not a day goes by that I am not grateful for this second chance in life…to live and make a difference.
-
Like -
Helpful -
Hug
2 Reactions@melody12, I want to commend you on your dedication to get beyond this weight loss slump. I can imagine that it is frustration for you. But I trust that the health benefits will be in your favor long after your surgery.
On Connect, there is an entire Discussion Group dedicated to Intermittent fasting. I am sharing the link to it, so that you can meet others who are using a low carbohydrate, healthy fat lifestyle, intermittent fasting, or both, to pursue their health goals. You can ask questions, make comments, of drop in and introduce yourself.
LCHF Living & Intermittent Fasting
https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting
Melody, With all of the exercise that you are doing, you are adding muscle mass which has a healthy weight that can offset the numbers on the scale. How is your doctor monitoring your progress?
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Helpful -
Hug
2 ReactionsBy the scales only. I wish they would have done the BMI. I am sure I lost more there.
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1 ReactionPlease share the titles when you have a chance.
You might enjoy these videos. I found them fascinating and informative! NOVA episode titled, “Transplanting Hope -https://www.pbs.org/wgbh/nova/video/transplanting-hope/.
It is intense and very emotionally affecting. However, I gained an even stronger appreciation for all of the people who played a role in my “transplant journey.”
The Surgeon’s Cut, Episode 3, Living Donor, is another excellent show, available on Netflix -
https://www.netflix.com/us/title/81004466. It discusses some of the early groundbreaking transplant surgeries and portrays Dr. Nancy Ascher, the first woman to perform a liver transplant. It also follows a family preparing for a living donation from a daughter to her mother.
-
Like -
Helpful -
Hug
1 ReactionYou’re certainly doing all the right things! So, hang in there. Remember, everyone’s bodies are different. And, our bodies all adjust differently to our transplant surgery and our meds. And, healthy eating and exercise, at least to the ability one can, is the best practice for our bodies.
After surgery I was in the hospital on a dreadful feeding tube for a month and a week, and then sent home with it! I wasn’t getting enough protein and struggled to gain weight. And, still haven’t gone back to my pretransplant weight. But, at least my liver doctor doesn’t tell me I’m malnourished anymore!
-
Like -
Helpful -
Hug
1 ReactionYes, please send the titles. I would be very interested. Thank you!
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Helpful -
Hug
1 Reaction@melody12, What has your transplant doctor had to say about the thing getting bigger? Does this have any effect on your transplanted liver's health?