Share this:
2011panc
@2011panc

Posts: 226
Joined: Nov 14, 2016

Changes after Transplant

Posted by @2011panc, Nov 22, 2016

I have learned that following a transplant there are many changes beyond your physical situation. What is your experience? Has your mood changed? Are you happier, calmer, more agitated, more anxious, more relaxed or something else? Do you feel you have changed emotionally, spiritually or mentally? Do you feel that your personality has changed? I am curious about more than physical. I appreciate your input on this issue.

REPLY

Great topic to start @2011panc. I’m tagging a few transplant members to join this discussion.
@coastalgirl @sandras @ters1993 @coky @wkary @wmoser2613 @dglass4040 @swordfish @mollyb1968 @bsox1901 Have you noticed emotional, spiritual and/or mental changes or personality changes post transplant?

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Liked by beckyjohnson

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

@wkary, That is interesting. It sounds like fun! I’m curious, have you acted on this new creative interest? Are you learning on your own? Are you taking a class or lessons? Rosemary

Liked by beckyjohnson

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

HI ROSEMARY,BEEN A LONG TIME,THIS IS EMMETT,SWORDFISH.HOPE YOU'RE WELL,I'M BACK IN HOSP.THIS TIME IT'S C-DIFF,ACUTE REJECTION BUT GETTING BETTER.TALK TO U LATER

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

@swordfish, I replied in the discussion: “Want to connect with other post liver transplant patients” http://mayocl.in/2gcKtub Because I feel that discussion thread might be a better way for you to be connected with others who have had liver transplants.
However, your situation is one that anyone with a transplant might respond to. And so, I’m asking @2011panc, “Want to connect with other post liver transplant patients” http://mayocl.in/2gcKtub
Even though you are not a liver transplant recipient, I know that you, too, had many struggles during your 1st year after transplant. Maybe you have some words to help my Connect friend, @swordfish.
Rosemary

Liked by beckyjohnson

@colleenyoung

Great topic to start @2011panc. I’m tagging a few transplant members to join this discussion.
@coastalgirl @sandras @ters1993 @coky @wkary @wmoser2613 @dglass4040 @swordfish @mollyb1968 @bsox1901 Have you noticed emotional, spiritual and/or mental changes or personality changes post transplant?

Jump to this post

This is such a great topic. I am so glad that this has been brought to the table for discussion.
My kidney transplant was june 1, 2010. I was 47 and had an amazing career in court reporting so i was determined to get this transplant and move right back into my workaholic life full steam ahead.
It took me a couple years to even slow down enough to notice the physical and emotional changes that were happening to me because, honesty, I needed to keep working until I turned 62.
Well, needless to say, last yesr I had to acknowledge my inability to maintain this pace of life even after reducing my job responsibilities as much as possible.
I certainly have noticed a need for peace and a joy for nature and mother earth. The noise and hustle and bustle of life overwhelm me.
I am much more empathetic to others and their suffering and can almost feel their pain.
I find joy in listening to the birds and the sound of the ocean waves as i stroll our beautiful coast with my beloved Maltese Sydney or taking a leisurely hike up to a beautiful waterfall.
My body has succumbed to fibromyalgia and chronic fatigue and tinnitus after having my childhood asthma reactivate, but I am learning to create a more peaceful loving environment to surround myself in so that I can learn to live a long peaceful life on this earthly journey.
My prayer is that all my fellow transplant recipients find your oneness within yourself and have peace and contentment!!
Happy Holidays to All!!

@colleenyoung

Great topic to start @2011panc. I’m tagging a few transplant members to join this discussion.
@coastalgirl @sandras @ters1993 @coky @wkary @wmoser2613 @dglass4040 @swordfish @mollyb1968 @bsox1901 Have you noticed emotional, spiritual and/or mental changes or personality changes post transplant?

Jump to this post

Thank you for sharing. I, also, seem to be looking for more peace and centeredness.

Liked by beckyjohnson

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

Thank you for responding. I find my creative interests changing, but I have always been interested in many things.

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

@swordfish, I am sorry to hear that you were back in the hospital. Thank goodness you are able to get help and hopefully reverse the rejection. I have the symptoms of C-Diff often, however it is only my issues with my gastric system. All my C-Diff tests have been negative. Wishing you well.

Liked by beckyjohnson

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

As a matter of fact yes I have. I have begun learning Photshop and a Mac set of design software named Affinity. Slow process as there are so many avenues to go down, but it’s been fun!

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

I find that my purpose or focus has changed. For example, I find myself getting satisfaction in doing things “Because I can” rather than “Because I have to”. I have learned to slow down, and to appreciate the little things in life more. I feel like I’ve become more concerned for others; more thoughtful and more open to share my feelings.

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

It’s been hard for me to accept that it just takes longer to accomplish tasks. I went from the owner of an organization that employed about 175 people to a patient at Mayo. LOL! As I was getting sicker I sold my company as I did not want to be in the position of having to vs. being able to without anyone knowing my condition. 2 years later I am just about at the line of acceptance shall we say. It’s been a frustrating journey for me in one regard and an obvious Godsend on the other.

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

@rosemarya, it’s interesting how differently we all respond. I was a do, do, do person and have really pared back to doing only what I “have” to. If I feel like it I will do more, but I promise much less than I used to. In that I feel that I have become more selfish and don’t get involved in other people’s issues very easily or deeply. I have always been thoughtful and open, so at least that has not changed for me.

Liked by beckyjohnson

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

@wkary, I am sorry you have had such a struggle with acceptance. I had embraced having an accepting attitude about everything years before the word transplant even came into my life, so that has not been much of an issue for me. I have noticed that family and friends #1 were not as ready as I was for the transplant, and #2 are having a harder time accepting my current limitations. They keep expecting and hoping that I will get back to the level I was at 15-20 years ago. Thankfully it appears that your transplant is working well. For myself, I go through a series of questions: what do I want? why don’t I have it? how can I get it? is it worth the effort (cost) to get it? This helps me make decisions and become more accepting because it was my decision. I continue to be grateful for the improved quality of life I have been able to attain. God Bless you on your journey.

Liked by beckyjohnson

@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Jump to this post

@2011panc, Great points. It’s interesting as family and friends have been more than accepting on my side. If anything the try and shall I say “hold me back” a bit and encourage me to take it a little easier. Doc has begun pushing a little and at the 2 year Mayo check they encouraged me to get out and do some “non-impact” excercise. I sort of chuckled as I have been biking and walking almost since the week after transplant. Was on Pred and gained about 25 lbs so that is the next step is go get that extra off. How long ago was your tx?

Please login or register to post a reply.