Incisional hernia after transplant: Anyone else?

Posted by btwest6 @btwest6, Dec 26, 2020

Would be interested to hear others experience with incisional hernia after liver transplant. Thank you.

Hi @btwest6, You are suffering from an incisional hernia? I have heard those are terribly painful. I know that both @blueve97 and @sickvick have struggled with incisional hernias. Perhaps they can share their story with you.

You might be interested in reading this article from UCSF on incisional hernias: https://transplantsurgery.ucsf.edu/conditions–procedures/ventral-(incisional)-hernia.aspx

If you would like a good long read, there is also this study that was published on liver transplant specific incisional hernias: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6689349/

@btwest6, Do you currently have one and are looking into removal? Can you share with us a little more about your story?

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I had a small incisional hernia on my right side near the end of the incision. About 16 months post tx I had an incarcerated small intestine in that hernia. A very astute surgical resident, moonlighting in the ER (holiday weekend) recognized the problem and its urgency and called his surgical supervisor who was at a holiday party. I was in the OR about 20 min. later.
It was all ok and no damage to my intestine but waiting would have been a problem. My symptoms were slight fever, nausea, pain in the area and very sensitive to palpitations. Dont know if this will help. I was aware of the hernia.

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My husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.

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I developed an incisional hernia after pancreas transplant then enteric conversion surgery.

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@btwest6

My husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.

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@btwest6, I want to drop in and to say that it is OK to contact your husband's transplant team to ask there opinion about your husband's incisional hernia, especially with the tenderness and increasing size. After our transplants, our bodies can respond differently than a nontransplant individual. Not to frighten you, but infections can come on quickly and be serious.

From my own experience and being 800 miles away from Mayo, I think that you should send a message to his nurse coordinator via the patient portal and explain his symptoms.
What are your thoughts?

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@cehunt57

I developed an incisional hernia after pancreas transplant then enteric conversion surgery.

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@cehunt57, How long after your transplant did the incisional hernia develop to when you needed surgery? What signs/symptoms did you experience? Did you return to your transplant center for the procedure?

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@rosemarya

@cehunt57, How long after your transplant did the incisional hernia develop to when you needed surgery? What signs/symptoms did you experience? Did you return to your transplant center for the procedure?

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@rosemarya my pancreas transplant was 11/30/2005. I had an enteric conversion surgery in 02/2006. It was several years before I started to notice a small (golf ball size) bulge at the bottom of the incision. There were no other symptoms. I asked one of my local providers about it and was told it was an incisional hernia. I reported it to my transplant team. They said they could take care of it but that if it wasn’t bothering it would be better to leave it alone since abdominal surgeries were what caused it in the first place. I was told to keep an eye on it for changes in size, shape or any discomfort. In the spring of 2012 I had a siege of gastroparesis & big discomfort; plus the hernia had changed in size & shape (like a very large plum). It landed me in the hospital. I was indeed diagnosed with an episode of gastroparesis plus a small bowel obstruction. A surgical consult concluded that the hernia didn’t require emergency surgery but should be repaired soon. I ended up with the repair in June 2012 by a local surgeon.

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@btwest6, I am checking on your husband. Have his symptoms changed?

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@btwest6

My husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.

Jump to this post

@btwest6, Happy 1 year transplant anniversary to you and your husband! I hope that you did something special to celebrate the event. My husband and I usually go to dinner, but this year we opted for a carryout instead. It is the happy memories that are the best part.

What has your husband learned anything about whether or not he will need surgery for the incisional hernia, or found any relief?

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@amandaburnett

Hi @btwest6, You are suffering from an incisional hernia? I have heard those are terribly painful. I know that both @blueve97 and @sickvick have struggled with incisional hernias. Perhaps they can share their story with you.

You might be interested in reading this article from UCSF on incisional hernias: https://transplantsurgery.ucsf.edu/conditions–procedures/ventral-(incisional)-hernia.aspx

If you would like a good long read, there is also this study that was published on liver transplant specific incisional hernias: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6689349/

@btwest6, Do you currently have one and are looking into removal? Can you share with us a little more about your story?

Jump to this post

Hello…My liver transplant was in October 2020, I noticed my stomach above my bellybutton
Was getting big and discovered the lump by my liver area about end of January/or first two
Weeks in February. No pain, no other body symptoms. I had an mri and dr who read xray said
I had a Sonoma. Met with my surgeon after she read the disk that is when she told me about
The hernia. I have to wear a tight elastic wide band around my stomach which feels better
Than not wearing one. Needless to say I need surgery but doctor wants to wait till I reach my 6 mo mark. Not happy to think I need to go back.

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@jackie421blfdgurl

Hello…My liver transplant was in October 2020, I noticed my stomach above my bellybutton
Was getting big and discovered the lump by my liver area about end of January/or first two
Weeks in February. No pain, no other body symptoms. I had an mri and dr who read xray said
I had a Sonoma. Met with my surgeon after she read the disk that is when she told me about
The hernia. I have to wear a tight elastic wide band around my stomach which feels better
Than not wearing one. Needless to say I need surgery but doctor wants to wait till I reach my 6 mo mark. Not happy to think I need to go back.

Jump to this post

@jackie421blfdgurl, How are you getting on while waiting for your surgery?

You mentioned in another discussion that you needed daily naps and I want to share that I also needed naps in the afternoon. Gradually my naps became shorter, and then not necessary everyday. However, I always permit myself to a good nap when my body tells me to slow down. Even now, after 12 years since my transplant and recovery, I like to treat myself to a good nap, sometimes I even plan my daily activities around it! I hope that you are also able to work a nap into your day when you feel you need one. I wonder if your energy will pick up after your hernia repair and recovery.

I had a surgical procedure at my transplant hospital after my 1st year of transplant. I was treated by my transplant team as they were the ones to diagnose my problem. My transplant surgeon was even the one who performed the surgery, and that made me real comfortable going into it. A real treat for me was to re-connect with some of the nursing staff on the transplant floor! It was like a reunion because I had spent so much time on that floor before and during my transplant. We had a few days to catch up on big events like my recovery and adventures, marriages, babies, etc.

I am sending my thoughts and wishes for a successful surgery and a comfortable recovery. I am here if you would like to chat or if there is any way I can help you to prepare for your visit.
Will your surgery be at your transplant hospital while you are doing your check up? Will you be able to have someone with you?

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Hello my angel…thanks for your reply.
Yes my surgery will b at same hosp I had my transplant, and same surgeon
Will do surgery as she did for my transplant. I go back to NY in May for
A MRI on belly then surgery will b
Scheduled after that I assume. I am writing a letter to the surgeon with my wishes such as no tubes in throat after I come out of surgery, I want to talk this time, and stop giving me Tylenol
For any pain…does not work on me .
And I come home in 5 days ..not
negotiable ! I am trying to state my
Concerns, like I was blindsided the
First time waking up not being able to talk for a week and my stay 2 months…bullcrap to it all…yes my brother will take me and maybe one of my friends too. But I have my little
Fur love home so my brother needs to
go back and take care of my fur baby
As long as I can talk and have my phone I will b fine….. thanks again🤗
Jackie

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