1. < Digestive Health

Chronic Digestive Disorders

Posted by rozy288 @rozy288, Jun 5, 2021

I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Thanks, Rosemary

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rozy288 | @rozy288 | Jun 8, 2021
In reply to @gastrogirl "I would be happy too. Can you send me a friend request on here and I..." + (show)
@gastrogirl

I would be happy too. Can you send me a friend request on here and I will tell you via private message 🙂

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I sent private message not sure it went over , I don’t see where you can friend someone on here ?

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ZeeGee | @fourof5zs | Jun 8, 2021
In reply to @rozy288 "I had my heart Dr. and Gastro Dr. send referrals to Mayo Clinic, over 7 weeks..." + (show)
@rozy288

I had my heart Dr. and Gastro Dr. send referrals to Mayo Clinic, over 7 weeks ago . I’m on waitlist for a televisit they said 3 weeks ago . I’ll only get a call of someone cancels appt . I’m going to keep calling weekly now .
I have 1000’s of wet burps with non stop churning gut if I eat or don’t eat . They are huge and some liquid but not acid . It tastes like sewer water in my mouth . I do like on Ultra Pepto as it calms the volcano 🌋 gut for about half hour , but does nothing for the burping . I’ve tried it all , and I mean ALL . Sometimes it triggers my PVC’s too . I’m kinda at my wits end . Thank you for sharing your story w/ me . I need someone that can help this stop 🛑 or at least help me to have one day without symptoms in 7.5 years . I’m 59 and it’s ruined 7.5 years of my life already. Both my kids engaged and getting married in 2022 . I want to be able to feel myself again and be good for the big weddings. My husband is very understanding and has been there for me but it effects everything as I can’t do much as far as go out ..and it’s no fun for him at all . Praying 🙏 I get in soon .

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@ rozy288
My husband keeps wanting me to go out on the boat with him. I don't think I could handle the jostling of the boat. I told him to get his brother or sister to go.. but he says it just isn't the same without you. I am still very limited on things I can do. .. I have other body problems. I had a SI joint fusion about 6 weeks ago. So far I think it worked. It changed my walk a bit so I am dealing with sore muscles and still some pain in surgery area. My ribs are giving me problems from the open surgery in 2015, but my pain specialist says he has found a way to help me with that pain, but have to get past this SI joint fusion first. I have missed out on a lot of things.. especially since 2012. I missed Thanksgiving dinners because the thought of food was overwhelming. Not a lot of bending.. don't lift over 10 pounds. Guess how much my last granddaughter weighed at birth.. I picked her up anyway. With my husband scolding me. Sometimes the pain is worth it. 😄 I have wanted to play with my grands and missed on doing a lot with them. We have 4 grands.

Covid has really messed everyone's working systems up. The Mayo Clinic is no exception. My doctors in home town .. they try not to have their waiting rooms full. They are beginning to relax with it some. Even though I have been vaccinated I will wear a mask in public.

Back to you. Have you kept a journal? Write in it what happens after you eat.. how long it lasted.. how much you ate. Does anything make it worse.. anything make it better… how lousy you feel. Yes, how you feel mentally.. write it down. All of it plays an important part in what is going on with your body. Have a written outline of your journal and of what you want to discuss with the doctors when you do talk with them. Take notes. Have someone with you if possible. An extra set of ears are definitely a good idea. My husband is the note taker. They may want to know what medications you are taking.. so have that handy. Sometimes they ask about your family health history… mostly parents, siblings, and grandparents.

I pray all goes well and you can get back to a happy life.

ZeeGee

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1 reply
washalien | @washalien | Jun 8, 2021
In reply to @gastrogirl "I would be happy too. Can you send me a friend request on here and I..." + (show)
@gastrogirl

I would be happy too. Can you send me a friend request on here and I will tell you via private message 🙂

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I'm not sure if that is such a good idea, because I use FB to vent my frustrations on the political system. My friends are used to it, but I'm sure a lot of people would be offended. I'd rather use this forum about the health issues, and will welcome future posts from you.

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triciapet | @triciapet | Jun 8, 2021
In reply to @rozy288 "Thank you , yes .. I’ve had a couple endoscopy’s and colonoscopy’s . Just the results..." + (show)
@rozy288

Thank you , yes .. I’ve had a couple endoscopy’s and colonoscopy’s . Just the results I wrote above were found. Two diff Gastro Dr’s. Can you tell me what they did test wise for you ? I’ve had so many tests done at Duke Regional in NC when I lived in Mebane, NC for 5 years. We are now in West Melbourne, Fla . Things have only gotten much worse through the years for me . I’ll keep calling Mayo Clinic in Jacksonville. How are you feeling these days and did they give you meds or a treatment plan ? Thanks for sharing .. Rosemary

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I have a type of microscopic colitis, collagenous colitis. Some dr.s don’t believe in it. You have to ask your gastro if they believe in it.
When they do a regular colonoscopy the dr. Has to take several large biopsies to find it. The dr.s Can’t see it so they are just hoping to catch it in a sample they send the lab. Took me 11 years to get diagnosed. I hope you find out what’s going on soon.

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1 reply
mainelysiberians | @mainelysiberians | Jun 9, 2021

Suffered many of your symptoms for years without help from experts. Finally went to a very knowledgeable naturopathic doctor who taught me where to begin with diet. I had been eating ‘healthy’ low fat meals of fresh fruits and raw or undercooked vegetables, and my stomach was in pain after every meal. She suggested a broad spectrum, live probiotic and a change in diet. Start with well-cooked root vegetables only. Eat small meals throughout the day. If meat, only dark meat, beginning with duck or lamb, then turkey, chicken. Red meat and white meat are much harder to digest. Fish, especially salmon, are more easily digested. No fresh veggies or fruit…only cooked fully. Add foods consciously, so you know how your body reacts. Nuts in moderation. Little to no sugar or caffeine. She suggested withholding dairy for a week or so to see if I felt better. Then try withholding gluten.
Change of diet helped me immediately. No drugs, just common sense. Her explanation was that aging digestive systems, especially women’s, cannot handle raw diets and that going back to the diets of our ancestors was the way to think about it. It has worked for me for 10 years. I am now 67. Eating smarter made all the difference. I eat consciously now and ‘cheat’ regularly, because I still love a good salad and fresh fruit. My stomach can tolerate cheating now, but Ialways feel better eating cooked veggies and dark meats. There are certain fruits I just can’t stomach. Melon and guava or papaya, blueberries in small quantities or other less acidic fruits are easier for me to digest. Good luck to you. Wish you all the best!

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2 replies
Bluegrass Gal | @cindychesler | Jun 10, 2021

I love your post. I got help through a dietitian and it has made all the difference. The most profound part of your post is “eat consciously.” Thank you.

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rozy288 | @rozy288 | Jun 10, 2021
In reply to @mainelysiberians "Suffered many of your symptoms for years without help from experts. Finally went to a very..." + (show)
@mainelysiberians

Suffered many of your symptoms for years without help from experts. Finally went to a very knowledgeable naturopathic doctor who taught me where to begin with diet. I had been eating ‘healthy’ low fat meals of fresh fruits and raw or undercooked vegetables, and my stomach was in pain after every meal. She suggested a broad spectrum, live probiotic and a change in diet. Start with well-cooked root vegetables only. Eat small meals throughout the day. If meat, only dark meat, beginning with duck or lamb, then turkey, chicken. Red meat and white meat are much harder to digest. Fish, especially salmon, are more easily digested. No fresh veggies or fruit…only cooked fully. Add foods consciously, so you know how your body reacts. Nuts in moderation. Little to no sugar or caffeine. She suggested withholding dairy for a week or so to see if I felt better. Then try withholding gluten.
Change of diet helped me immediately. No drugs, just common sense. Her explanation was that aging digestive systems, especially women’s, cannot handle raw diets and that going back to the diets of our ancestors was the way to think about it. It has worked for me for 10 years. I am now 67. Eating smarter made all the difference. I eat consciously now and ‘cheat’ regularly, because I still love a good salad and fresh fruit. My stomach can tolerate cheating now, but Ialways feel better eating cooked veggies and dark meats. There are certain fruits I just can’t stomach. Melon and guava or papaya, blueberries in small quantities or other less acidic fruits are easier for me to digest. Good luck to you. Wish you all the best!

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I don’t eat uncooked veggies , once in a while some celery ( not much ). I stay away from salads although I like them very much . I usually eat mango or a good apple if it’s fruit or cherrys if in season . I do like blueberries and strawberries 🍓 but don’t eat many of those . I’m low low dairy ( no milk of any kind for 7 years), even tried lactose free. I do not have Celiac they said , not do I have SIBO ( was tested a few times ), I have tried a Gluten free diet but no change . I just tried Keto but not for full 28 days , no change. I take a good prebiotic ( and have tried probiotics) along with everything else holistic they make for the gut and intestines. We eat lean meat and a lot of chicken breast and sometimes Salmon or other fish . I’ve done many elimination diets over the years . The amount of gas that my own body produces in one day/ and at night is what most people produce in a month !! It’s non stop 🛑 churning , and the deep constant belching is horrendous.
7 years of this . 5 Gastro Dr’s diff RX ‘s , sessions of hypnotherapy ( that didn’t work). Visaral Massage , Myan Massage , you name it . I’ve tried it . My diagnosis is always same , Gastritis, Esphogitis , Clas B GERD , small hiatal hernia , some IBS . It breaks my sleep as I belch over 3000 x a day and night . Comes out both ways too , mostly belching .
No caffeine since I was a teen ( I’ve had PVC flair ups all my life ), no sweets , I eat small and healthy. Just like my stomach cannot tolerate anything .
Still waiting on Mayo Clinic to call me back ( Jacksonville). I’m still on waitlist. Had last colonoscopy and endoscopy last June and many , many tests prior at Duke in NC . I live on Ultra Pepto. I’m now on antidepressant and have anxiety meds because of all this .
I’m 59 .. this has changed me and not for the better . Thanks for sharing your story and input . I appreciate it so much , Rosemary 😌

REPLY
2 replies
dablues | @dablues | Jun 10, 2021
In reply to @rozy288 "I don’t eat uncooked veggies , once in a while some celery ( not much )...." + (show)
@rozy288

I don’t eat uncooked veggies , once in a while some celery ( not much ). I stay away from salads although I like them very much . I usually eat mango or a good apple if it’s fruit or cherrys if in season . I do like blueberries and strawberries 🍓 but don’t eat many of those . I’m low low dairy ( no milk of any kind for 7 years), even tried lactose free. I do not have Celiac they said , not do I have SIBO ( was tested a few times ), I have tried a Gluten free diet but no change . I just tried Keto but not for full 28 days , no change. I take a good prebiotic ( and have tried probiotics) along with everything else holistic they make for the gut and intestines. We eat lean meat and a lot of chicken breast and sometimes Salmon or other fish . I’ve done many elimination diets over the years . The amount of gas that my own body produces in one day/ and at night is what most people produce in a month !! It’s non stop 🛑 churning , and the deep constant belching is horrendous.
7 years of this . 5 Gastro Dr’s diff RX ‘s , sessions of hypnotherapy ( that didn’t work). Visaral Massage , Myan Massage , you name it . I’ve tried it . My diagnosis is always same , Gastritis, Esphogitis , Clas B GERD , small hiatal hernia , some IBS . It breaks my sleep as I belch over 3000 x a day and night . Comes out both ways too , mostly belching .
No caffeine since I was a teen ( I’ve had PVC flair ups all my life ), no sweets , I eat small and healthy. Just like my stomach cannot tolerate anything .
Still waiting on Mayo Clinic to call me back ( Jacksonville). I’m still on waitlist. Had last colonoscopy and endoscopy last June and many , many tests prior at Duke in NC . I live on Ultra Pepto. I’m now on antidepressant and have anxiety meds because of all this .
I’m 59 .. this has changed me and not for the better . Thanks for sharing your story and input . I appreciate it so much , Rosemary 😌

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I'm practically in the same boat as you but you do much better with your diet than I do. I have so much gas and don't know if I have IBS or not since my gastro hasn't stated I did, but do get colon polyps, and I have AVM's in stomach and colon, and had a bunch taken care of on the right side of my colon through a colonoscopy and also taken care of through endoscopy the same day. Can't seem to lose weight after exercising twice a day and my eating habits haven't changed. I'm not a big eater, eat on a small plate. I'm at a loss what to do. I also was diagnosed over the years with gastritis, Gerd, etc. I'm at the point I want to give up. I drink lactaid even though I'm not lactose intolerant and also include unsweetened coconut milk in my diet.

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rozy288 | @rozy288 | Jun 10, 2021

I’m so sorry . Don’t give up . I know I feel like giving up a lot but I have two kids engaged and getting married in 2022 . I just got on antidepressant Wellbutrin XL ext release . I’m hoping it helps with the mental end of this . It’s so bad because you want to do everything and this stops you in your tracks ( for years ). I hate eating but I have to in order to live and I’m just as bad if I don’t eat .
I’m not losing weight either .. 7 years.
It’s crazy .
I hope you find the right treatment.. I know I pray daily for someone to help me fix this .
God Bless …

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collage | @collage | Jun 10, 2021
In reply to @mainelysiberians "Suffered many of your symptoms for years without help from experts. Finally went to a very..." + (show)
@mainelysiberians

Suffered many of your symptoms for years without help from experts. Finally went to a very knowledgeable naturopathic doctor who taught me where to begin with diet. I had been eating ‘healthy’ low fat meals of fresh fruits and raw or undercooked vegetables, and my stomach was in pain after every meal. She suggested a broad spectrum, live probiotic and a change in diet. Start with well-cooked root vegetables only. Eat small meals throughout the day. If meat, only dark meat, beginning with duck or lamb, then turkey, chicken. Red meat and white meat are much harder to digest. Fish, especially salmon, are more easily digested. No fresh veggies or fruit…only cooked fully. Add foods consciously, so you know how your body reacts. Nuts in moderation. Little to no sugar or caffeine. She suggested withholding dairy for a week or so to see if I felt better. Then try withholding gluten.
Change of diet helped me immediately. No drugs, just common sense. Her explanation was that aging digestive systems, especially women’s, cannot handle raw diets and that going back to the diets of our ancestors was the way to think about it. It has worked for me for 10 years. I am now 67. Eating smarter made all the difference. I eat consciously now and ‘cheat’ regularly, because I still love a good salad and fresh fruit. My stomach can tolerate cheating now, but Ialways feel better eating cooked veggies and dark meats. There are certain fruits I just can’t stomach. Melon and guava or papaya, blueberries in small quantities or other less acidic fruits are easier for me to digest. Good luck to you. Wish you all the best!

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Thank you for your post......very helpful. Which probiotic did your Naturopath suggest?

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