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Gastritis, Esophagitis, GERD , small Hiatal hernia , diverticulosis

Posted by rozy288 @rozy288, Jun 5, 2021

I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Thanks, Rosemary

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zoolook85 | @zoolook85 | May 29 3:43pm
In reply to @lee2025 "Has anyone else felt like they’ve done everything right for months… and their gut still won’t..." + (show)
Profile picture for lee2025 @lee2025

Has anyone else felt like they’ve done everything right for months… and their gut still won’t cooperate? :(I’m 41, an expat living in China for the past 16 years, and I’ve been on a deep gut healing journey for the last 4-5 months. After receiving a DNA test focusing on gut health and immunity, I discovered I have fructose malabsorption, multiple food intolerances, and allergies to dairy, oats, peanuts, dust, and grass (seriously?!). Honestly, after years of living with daily gut issues—likely worsened by China’s air quality and environmental stress—I finally committed to a total reset.Since then, I’ve overhauled my life:- No eating out- Super clean, unprocessed, anti-inflammatory diet- Over an hour a day spent de-stressing through breathwork, yoga, mindfulness, and journaling- No sugar, alcohol, or caffeineNot a single shortcut—truly doing the work!And yet... I’m still being teased with moments of progress (a half decent poop), followed by the dreaded return of muddy, broken, floating stools—like The Empire Strikes Back, but in my toilet. 💩It’s been one of the hardest journeys of my life.And I’m so so so tired of it!I’d love your help and insight if you’ve been in similar shoes:- What could be going on when muddy stool keeps returning despite strict lifestyle changes?- How did you know when you were dealing with leaky gut vs. IBS vs. possible histamine intolerance?- Have you found a rhythm with reintroducing foods safely—or does your gut just “decide” when it’s going to turn?- How did you stay mentally strong when healing felt like one step forward, two steps back?I’m open, committed, and still hopeful—but it’s getting harder to hang onto that hope alone.Thanks for reading this and holding space. Just knowing someone else gets it helps more than you know! 🙏

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I was diagnosed with IBS years ago (25?). I went from doc to doc, had the procedures twice and no help. I was close to suicidal when I found the FODMAP diet which changed my life. This was developed by a university in Australia after deep research into IBS. It's not a cure and doesn't claim to be but it has really made my life bearable.

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gussie | @gussie | May 29 5:17pm
In reply to @rozy288 "I’ve been tested for SIBO Many X & was negative. I took the Xifaxan antibiotic for..." + (show)
Profile picture for rozy288 @rozy288

I’ve been tested for SIBO Many X & was negative.
I took the Xifaxan antibiotic for it anyway . It helped once , 9 years ago but then took it 2 more x & no help . I suffer chronic 7 diff digestive illnesses for 11 years daily . Seen 5 GI Dr’s , had over 20 tests done ☑️. Tried everything under the sun 🌞 they make . Eat tiny ( hate eating ) and healthy. No life to speak of anymore. So I’m not sure that Dr. is right about food poisoning/ causing IBS ?

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I just read that you can get Mark Pinental's IBS and SIBO webinar replay. It's free

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blessedwildapplegirl | @blessedwildapplegirl | May 29 5:37pm
In reply to @gussie "Actually I just finished with the webinar. Basically Dr. Pimental states that almost all IBS D..." + (show)
Profile picture for gussie @gussie

Actually I just finished with the webinar. Basically Dr. Pimental states that almost all IBS D or C are caused by SIBO. And a lot of that is caused by having food poisoning at some time that started the whole process. Actually I did have food poisoning in France in the early 70s and I have had this problem for years and years. He also gives all of his patients breath tests and antibody tests. He does send out the latest papers he wrote free of charge. I don't exactly know how you go about getting them. But I imagine online somewhere.

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Thank you. I have always suspected that I got food poisoning because my problem came on so suddenly, although I have had IBS on my life, but it’s nothing like this. I’ll look online. Good luck to you and thank you again.

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rozy288 | @rozy288 | May 29 6:02pm
In reply to @lee2025 "Has anyone else felt like they’ve done everything right for months… and their gut still won’t..." + (show)
Profile picture for lee2025 @lee2025

Has anyone else felt like they’ve done everything right for months… and their gut still won’t cooperate? :(I’m 41, an expat living in China for the past 16 years, and I’ve been on a deep gut healing journey for the last 4-5 months. After receiving a DNA test focusing on gut health and immunity, I discovered I have fructose malabsorption, multiple food intolerances, and allergies to dairy, oats, peanuts, dust, and grass (seriously?!). Honestly, after years of living with daily gut issues—likely worsened by China’s air quality and environmental stress—I finally committed to a total reset.Since then, I’ve overhauled my life:- No eating out- Super clean, unprocessed, anti-inflammatory diet- Over an hour a day spent de-stressing through breathwork, yoga, mindfulness, and journaling- No sugar, alcohol, or caffeineNot a single shortcut—truly doing the work!And yet... I’m still being teased with moments of progress (a half decent poop), followed by the dreaded return of muddy, broken, floating stools—like The Empire Strikes Back, but in my toilet. 💩It’s been one of the hardest journeys of my life.And I’m so so so tired of it!I’d love your help and insight if you’ve been in similar shoes:- What could be going on when muddy stool keeps returning despite strict lifestyle changes?- How did you know when you were dealing with leaky gut vs. IBS vs. possible histamine intolerance?- Have you found a rhythm with reintroducing foods safely—or does your gut just “decide” when it’s going to turn?- How did you stay mentally strong when healing felt like one step forward, two steps back?I’m open, committed, and still hopeful—but it’s getting harder to hang onto that hope alone.Thanks for reading this and holding space. Just knowing someone else gets it helps more than you know! 🙏

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I would Google it and also if they have an 800 number I would call that. Usually on the website it will give you the details but definitely try again.

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blessedwildapplegirl | @blessedwildapplegirl | May 30 7:09pm
In reply to @rozy288 "I’ve been tested for SIBO Many X & was negative. I took the Xifaxan antibiotic for..." + (show)
Profile picture for rozy288 @rozy288

I’ve been tested for SIBO Many X & was negative.
I took the Xifaxan antibiotic for it anyway . It helped once , 9 years ago but then took it 2 more x & no help . I suffer chronic 7 diff digestive illnesses for 11 years daily . Seen 5 GI Dr’s , had over 20 tests done ☑️. Tried everything under the sun 🌞 they make . Eat tiny ( hate eating ) and healthy. No life to speak of anymore. So I’m not sure that Dr. is right about food poisoning/ causing IBS ?

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Wow, you’ve had a lot of tests done without much result. it sounds like you’ve already tried everything, but I have found a little relief with a stomach meditation by generation calm on YouTube. It’s the one that’s 9:58 long. (I know stress is the main cause of my stomach issues, but not 100%) I used to take Belap, which worked very well for my IBS and then they changed it to Donnatal, which was OK but not quite as good and now there’s a new one called Bentyl, which I haven’t tried. Have you ever tried any of those? They basically stop your bowels from contracting too much when you’re stressed. I’m not sure if that’s one of your issues or not. Have you ever tried oil of oregano? I saw that when I was googling solutions for SIBO and it says it can do other things for your gut besides help with that. I’m really sorry you have to deal with all that. It’s impossible to feel well if one can’t eat properly. It sounds like it has ruined your life and I get that. I’m so sorry. 💕

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mdl555 | @mdl555 | Jun 1 8:34pm
In reply to @lee2025 "Has anyone else felt like they’ve done everything right for months… and their gut still won’t..." + (show)
Profile picture for lee2025 @lee2025

Has anyone else felt like they’ve done everything right for months… and their gut still won’t cooperate? :(I’m 41, an expat living in China for the past 16 years, and I’ve been on a deep gut healing journey for the last 4-5 months. After receiving a DNA test focusing on gut health and immunity, I discovered I have fructose malabsorption, multiple food intolerances, and allergies to dairy, oats, peanuts, dust, and grass (seriously?!). Honestly, after years of living with daily gut issues—likely worsened by China’s air quality and environmental stress—I finally committed to a total reset.Since then, I’ve overhauled my life:- No eating out- Super clean, unprocessed, anti-inflammatory diet- Over an hour a day spent de-stressing through breathwork, yoga, mindfulness, and journaling- No sugar, alcohol, or caffeineNot a single shortcut—truly doing the work!And yet... I’m still being teased with moments of progress (a half decent poop), followed by the dreaded return of muddy, broken, floating stools—like The Empire Strikes Back, but in my toilet. 💩It’s been one of the hardest journeys of my life.And I’m so so so tired of it!I’d love your help and insight if you’ve been in similar shoes:- What could be going on when muddy stool keeps returning despite strict lifestyle changes?- How did you know when you were dealing with leaky gut vs. IBS vs. possible histamine intolerance?- Have you found a rhythm with reintroducing foods safely—or does your gut just “decide” when it’s going to turn?- How did you stay mentally strong when healing felt like one step forward, two steps back?I’m open, committed, and still hopeful—but it’s getting harder to hang onto that hope alone.Thanks for reading this and holding space. Just knowing someone else gets it helps more than you know! 🙏

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Of the various chronic diseases I deal with the gut has been the cause of my Darkest days, worse depression battles, and hopelessness. You are certainly not alone. Even when you take all the prescribed medications, eat all the right foods, get the right type of exercise etc etc etc , one very tiny misstep or change or some little something you don't even know what it was can cause major chronic pain and other problems. By God's grace and a devoted wife who has a background in nutrition has kept me from giving up.

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dogmamma | @dogmamma | Jul 20 1:28am
In reply to @pumkin "Amazing how many, especially woman, have the same issues then yours, after several years with constipation,..." + (show)
Profile picture for pumkin @pumkin

Amazing how many, especially woman, have the same issues then yours, after several years with constipation, diarrhea, etc. and doctors telling me I have IBS live with it I finally was diagnosed with collagenous colitis after a biopsy during a colonoscopy, the only way to diagnose this disease, can not be cured but kind of managed with medication and diet. I am also gluten sensitive, lactose etc. at least now I know the cause of my colon issues and can handle it better. You might especially at your age have this checked better then the not knowing.

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I am trying the FOD diet in an attempt to find out why for 15 months I have had diarrhea so frequently. I have had many tests, all negative, and my doc doesn’t think it’s related to bronchiectases — I DO!

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cjval52 | @cjval52 | Jul 20 11:41am
In reply to @lee2025 "Has anyone else felt like they’ve done everything right for months… and their gut still won’t..." + (show)
Profile picture for lee2025 @lee2025

Has anyone else felt like they’ve done everything right for months… and their gut still won’t cooperate? :(I’m 41, an expat living in China for the past 16 years, and I’ve been on a deep gut healing journey for the last 4-5 months. After receiving a DNA test focusing on gut health and immunity, I discovered I have fructose malabsorption, multiple food intolerances, and allergies to dairy, oats, peanuts, dust, and grass (seriously?!). Honestly, after years of living with daily gut issues—likely worsened by China’s air quality and environmental stress—I finally committed to a total reset.Since then, I’ve overhauled my life:- No eating out- Super clean, unprocessed, anti-inflammatory diet- Over an hour a day spent de-stressing through breathwork, yoga, mindfulness, and journaling- No sugar, alcohol, or caffeineNot a single shortcut—truly doing the work!And yet... I’m still being teased with moments of progress (a half decent poop), followed by the dreaded return of muddy, broken, floating stools—like The Empire Strikes Back, but in my toilet. 💩It’s been one of the hardest journeys of my life.And I’m so so so tired of it!I’d love your help and insight if you’ve been in similar shoes:- What could be going on when muddy stool keeps returning despite strict lifestyle changes?- How did you know when you were dealing with leaky gut vs. IBS vs. possible histamine intolerance?- Have you found a rhythm with reintroducing foods safely—or does your gut just “decide” when it’s going to turn?- How did you stay mentally strong when healing felt like one step forward, two steps back?I’m open, committed, and still hopeful—but it’s getting harder to hang onto that hope alone.Thanks for reading this and holding space. Just knowing someone else gets it helps more than you know! 🙏

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I totally get this. First episode at 4. 69 years of this life- disrupting
problem. Stress makes it worse. Hormones make it worse. It gets worse for no apparent reason.
My 7 year-old grandson was just diagnosed with Crohn’s. So glad they caught it early and will start him on a biologic. I do jot have Crohn’s. I have a very spastic and tortuous colon. Makes adventure photography trips, hiking etc challenging. It may be time to buy a rocking chair.

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mariegrace | @mariegrace | Jul 22 8:56am
In reply to @lee2025 "Has anyone else felt like they’ve done everything right for months… and their gut still won’t..." + (show)
Profile picture for lee2025 @lee2025

Has anyone else felt like they’ve done everything right for months… and their gut still won’t cooperate? :(I’m 41, an expat living in China for the past 16 years, and I’ve been on a deep gut healing journey for the last 4-5 months. After receiving a DNA test focusing on gut health and immunity, I discovered I have fructose malabsorption, multiple food intolerances, and allergies to dairy, oats, peanuts, dust, and grass (seriously?!). Honestly, after years of living with daily gut issues—likely worsened by China’s air quality and environmental stress—I finally committed to a total reset.Since then, I’ve overhauled my life:- No eating out- Super clean, unprocessed, anti-inflammatory diet- Over an hour a day spent de-stressing through breathwork, yoga, mindfulness, and journaling- No sugar, alcohol, or caffeineNot a single shortcut—truly doing the work!And yet... I’m still being teased with moments of progress (a half decent poop), followed by the dreaded return of muddy, broken, floating stools—like The Empire Strikes Back, but in my toilet. 💩It’s been one of the hardest journeys of my life.And I’m so so so tired of it!I’d love your help and insight if you’ve been in similar shoes:- What could be going on when muddy stool keeps returning despite strict lifestyle changes?- How did you know when you were dealing with leaky gut vs. IBS vs. possible histamine intolerance?- Have you found a rhythm with reintroducing foods safely—or does your gut just “decide” when it’s going to turn?- How did you stay mentally strong when healing felt like one step forward, two steps back?I’m open, committed, and still hopeful—but it’s getting harder to hang onto that hope alone.Thanks for reading this and holding space. Just knowing someone else gets it helps more than you know! 🙏

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Hello Lee
I feel your pain. Dx with IBS, lactose intolerance, gluten sensitivity 15 years ago, i went on a low fodmap diet but did not help. It is somewhat boring so after 10 years, I slowly introduced gluten and dairy and much more satisfied.
Eating out is a big problem because I cannot have black pepper because of gastritis. Most chefs cook with salt and pepper.
Even being careful and eating at home, i still get discomfort, muddy stools, nausea etc.
Many times want to give up. Get depressed because of low quality of life.
It is difficult living with GI and pulmonary conditions. Both are necessary to sustain life.
I get sad especially because I am doing everything right to keep my lungs funtioning.
This has been a difficult journey.
Hang in there and live every day to the fullest.
Marie
xo

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beenthere25 | @beenthere25 | Jul 22 11:12am
In reply to @lee2025 "Has anyone else felt like they’ve done everything right for months… and their gut still won’t..." + (show)
Profile picture for lee2025 @lee2025

Has anyone else felt like they’ve done everything right for months… and their gut still won’t cooperate? :(I’m 41, an expat living in China for the past 16 years, and I’ve been on a deep gut healing journey for the last 4-5 months. After receiving a DNA test focusing on gut health and immunity, I discovered I have fructose malabsorption, multiple food intolerances, and allergies to dairy, oats, peanuts, dust, and grass (seriously?!). Honestly, after years of living with daily gut issues—likely worsened by China’s air quality and environmental stress—I finally committed to a total reset.Since then, I’ve overhauled my life:- No eating out- Super clean, unprocessed, anti-inflammatory diet- Over an hour a day spent de-stressing through breathwork, yoga, mindfulness, and journaling- No sugar, alcohol, or caffeineNot a single shortcut—truly doing the work!And yet... I’m still being teased with moments of progress (a half decent poop), followed by the dreaded return of muddy, broken, floating stools—like The Empire Strikes Back, but in my toilet. 💩It’s been one of the hardest journeys of my life.And I’m so so so tired of it!I’d love your help and insight if you’ve been in similar shoes:- What could be going on when muddy stool keeps returning despite strict lifestyle changes?- How did you know when you were dealing with leaky gut vs. IBS vs. possible histamine intolerance?- Have you found a rhythm with reintroducing foods safely—or does your gut just “decide” when it’s going to turn?- How did you stay mentally strong when healing felt like one step forward, two steps back?I’m open, committed, and still hopeful—but it’s getting harder to hang onto that hope alone.Thanks for reading this and holding space. Just knowing someone else gets it helps more than you know! 🙏

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Hi, I read your post and I can so relate. I have been dealing with gut issues for the last five years, after I had my gallbladder removed. My subsequent back surgery caused colon angulation and I was recently diagnosed with a hiatal hernia and a misplaced cecum (now located behind my liver.) I feel like I have the flu every single day and I’ve tried multiple medications to calm my stomach down and keep my digestive track moving. The depression that’s come with it, is truly overwhelming. Know that you’re not alone in your struggles. I think gastrointestinal issues are some of the most difficult to diagnose and treat. I am scheduled to meet with a surgeon next week in hopes of getting some relief. I pray that you can find some answers and get relief soon. 🤗

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