Constant tinnitus: Are there any solutions?

Posted by kimjensch @kimjensch, Jun 14, 2020

It there any solution for constant tinnitis?

I have high pitched tones constantly though I have learned to ignore it mostly.

It can become louder at times, even loud enough to make me wince!

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.

@lacy2

@willows Thanks. Many years ago first visit to Neurologist for head rushes he gave me Amitriptyline... next morning I was very distressed plus the cotton mouth so didnt keep taking; then a few years ago I had my DNA done and right at top of list it says under "Major gene-drug interaction" 5 drugs under Psychiatry and first one is Amitriptyline... so my body was not wrong those years ago... but I dont see Pregabalin/lyrica in the report - wish it was on a usb stick so I could search on internet. Metoprolol is on the list as "moderate gene-drug interaction under Cardiovascular?
I really dont understand all of this report except it says I am TPMT genotype with DPYD but no one followed up on the Report and it sits here gathering dust!
Tinnitus is almost 24/7 now with pain and a bit of tmj no doubt... and in itself used to be able to cope with but with other medical issues and old age it's changed my life as I knew it. 🙁

Jump to this post

Hi Lacy, I am sorry for everyone who has tinnitus. I have had it 24/7 for 30 years. I can’t comment on the scientific matters and am not sure what you meant about gene drug interaction or TPMP or DPYD but will search on the internet. My comments were in the nature of « this helps a bit » not what causes this to help me. It’s no magic bullet however. I take the Medication called metoprolol because it helps eliminate occasional mild irregular heartbeats caused, I think, as a side effect of the amitriptyline.

Willows

REPLY
@willows

Hi Lacy, I am sorry for everyone who has tinnitus. I have had it 24/7 for 30 years. I can’t comment on the scientific matters and am not sure what you meant about gene drug interaction or TPMP or DPYD but will search on the internet. My comments were in the nature of « this helps a bit » not what causes this to help me. It’s no magic bullet however. I take the Medication called metoprolol because it helps eliminate occasional mild irregular heartbeats caused, I think, as a side effect of the amitriptyline.

Willows

Jump to this post

oh for sure willow i understood trying to help, my wording not very good and having a bad day;;;;; i get hope when i read what is helping someone else just explaining why i cant take some of the drugs; I know... i didnt understand i had a swab of mouth and they checked against drugs and cam up with lists... and i didnt even read it through and then they allocated those 4 letters to what my gene type is.... i should have pursued but had so much going on in my life then... but i paid a lot to have it done yet my doctor at thetime didnt have time to read it and no one else has either, so i just sat here, but now i am going to mention it to doctors when they see me and prescribe meds as some, from this Gene study, will work better than others.. sorry, just a rush answer toyour note, it was appreciated, J.

REPLY

Q: Hi anyone know if Gene testing is discussed on Connect? I think I mentioned it before when someone asked but cant find it. The Report: It says:
Comprehensive test is a pharmacogenomic test that identifies how a patient's DNA affects their response to hundreds of medications and doses tailored to a patient's unique genomic profile. I got results beg. 2018 but no doctor has ever looked at it - either didnt have time or I didnt mention or left it at home! It gives list of a lot of drugs but not all and says whether for my DNA has Major, Moderate or Minimal response. Recently I tried to get more informtion about my file but my password would not work and although staff tried to help, I could not access again.. as it seems they provide continuing information... all I remembered was that Amitriptyline was on list ..... am glad it helps so many other people. Take care, J.

REPLY

Hello. I am sure the subject of Tinnitus and taking certain medications that can contribute to it has been discussed .. if it has could someone please direct me to the discussion page as I am getting lost. I was upset to find a web site of American Tinnitus Association ata.org with about 25 pages of medications that can contribute to Tinnitus and I have been on two of them for over 15 years and now suffering badly... an article 2009 by Dr.Neil Bauman is on same web site ..... and what I would like to know is why were we not warned about the possibility of getting this horrible life altering condition years ago??? Now we have computers to check out meds etc., but it seems this information was readily available to the medical profession for many years!! I am absolutely devastated reading this and notice my adult children are also taking some of these meds and haven't got a clue that their hearing/perceived hearing noise is possible. Am upset and angry. Thanks. J.

REPLY
@lacy2

Q: Hi anyone know if Gene testing is discussed on Connect? I think I mentioned it before when someone asked but cant find it. The Report: It says:
Comprehensive test is a pharmacogenomic test that identifies how a patient's DNA affects their response to hundreds of medications and doses tailored to a patient's unique genomic profile. I got results beg. 2018 but no doctor has ever looked at it - either didnt have time or I didnt mention or left it at home! It gives list of a lot of drugs but not all and says whether for my DNA has Major, Moderate or Minimal response. Recently I tried to get more informtion about my file but my password would not work and although staff tried to help, I could not access again.. as it seems they provide continuing information... all I remembered was that Amitriptyline was on list ..... am glad it helps so many other people. Take care, J.

Jump to this post

Lacy, there are several discussions about genetic testing on Mayo Clinic Connect. Here's a couple:
- Why Genetic Testing for Mental Health Meds is Important https://connect.mayoclinic.org/discussion/why-genetic-testing-for-mental-health-meds-is-important/
- Cytochrome P450 Drug Metabolization Polymorphisms https://connect.mayoclinic.org/discussion/cytochrome-p450-drug-metabolization-polymorphisms/

There are others related to genetic testing and pharmacogenetics and cancer or heart disease and other conditions.

REPLY
@colleenyoung

Lacy, there are several discussions about genetic testing on Mayo Clinic Connect. Here's a couple:
- Why Genetic Testing for Mental Health Meds is Important https://connect.mayoclinic.org/discussion/why-genetic-testing-for-mental-health-meds-is-important/
- Cytochrome P450 Drug Metabolization Polymorphisms https://connect.mayoclinic.org/discussion/cytochrome-p450-drug-metabolization-polymorphisms/

There are others related to genetic testing and pharmacogenetics and cancer or heart disease and other conditions.

Jump to this post

Thank you Colleen I will check them.... J.

REPLY
@willows

Has anyone with tinnitus noticed a change in their tinnitus after receiving the Pfizer or Moderna vaccine?

Jump to this post

Yes only very minor tinnitus prior to vaccine and now very loud pulsating tinnitus which changes in volume through the day. I am grateful when it subsides to low hissing. Started approximately 9 days after the vaccine. On second course of steroids and just found out today adding Sudafed really reduces the noise. Doing research, I think for me it’s a Eustachian tube issue as my ears and lower neck hurt at times. When my ears pop gets better. Going on 5 weeks of this. Have appt Mayo Arizona late May 2021. Had hearing test at local ENT office no hearing loss so far. Any recommendations until I can be seen? I am also allergy sufferer so having that checked at Mayo as well. Found a Facebook group with over 1400 people with same experience.

REPLY
@baecbren

Yes only very minor tinnitus prior to vaccine and now very loud pulsating tinnitus which changes in volume through the day. I am grateful when it subsides to low hissing. Started approximately 9 days after the vaccine. On second course of steroids and just found out today adding Sudafed really reduces the noise. Doing research, I think for me it’s a Eustachian tube issue as my ears and lower neck hurt at times. When my ears pop gets better. Going on 5 weeks of this. Have appt Mayo Arizona late May 2021. Had hearing test at local ENT office no hearing loss so far. Any recommendations until I can be seen? I am also allergy sufferer so having that checked at Mayo as well. Found a Facebook group with over 1400 people with same experience.

Jump to this post

....I hope someone can help you. My tinnitus which was bearable for many years took off after I believe, antibiotics ... but hard to prove. It's 2021 and medicine has made great strides in amazing cures, operations, transplants etc., and I am hoping that one day they can discover a "cure" for tinnitus - as you say its not only the noise but pain... enough to drive us over the edge. Lucky you going to Mayor.. best of luck!! J.

REPLY

I have two different tones that come mainly at night. One sounds like a marching band. The other sounds like a men’s chorus of undefinable songs sung in very low voices. I’m going deaf so that’s why I started hearing these noises. Any insights from anyone.

REPLY
@catstx

I have two different tones that come mainly at night. One sounds like a marching band. The other sounds like a men’s chorus of undefinable songs sung in very low voices. I’m going deaf so that’s why I started hearing these noises. Any insights from anyone.

Jump to this post

@catstx Mine now after many years of the odd knock or tap, is like a machine running 24/7; but some afternoons when lying down I do hear a choir of old-fashioned songs; another time like the voices of commentators at a horse race...." now coming round the bend is Nancy's Pride, closely followed by Shiny Boots" .. etc. It would be funny if it were not actually happening to me and that I might be going out of my mind! I did find an explanation on Internet but can't find it now. The tinnitus has been devastating along with other illnesses I have, but the ear pain and pressure is worse and seems nothing can be done, or rather, no one wants to do anything about it.. not sure.

REPLY
Please sign in or register to post a reply.