Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

Interested in more discussions like this? Go to the Skin Health Support Group.

@puspa

@sheetrock0131 exactly the same condition as mine. I feel the burning and all the pain in the right side of my tongue, my right neck, right ear. I see my tongue is getting whiter. I'm afraid, depressed and hope it is only a nightmare to wake up. No one can feel my pain. They only listen to me but nothing comes to their mind of what is it i am talking about. I felt so alone.

Jump to this post

@sheetrock0131 YES, others can feel your pain. This is an awful, life-destroying condition. It is also true that doctors have no idea what to do about it. The highest level specialist in "oral pathology" in New York City told me nothing can be done. Biggest NYC hospitals couldn't refer me to anyone.

REPLY
@mamajomclane

Speaking of toothpaste - I just recently learned of a natural whitening toothpaste that has activated charcoal. The toothpaste is black and minty and claims to have pain relieving properties....for me it helps long enough for me to get to sleep. The brand is HELLO. My neighborhood Walmart has it but not CVS or Walgreens.

Jump to this post

I had been looking for your post for a while until I finally found it. In reference to the tooth paste, thank you from the bottom of my heart, my wife is a 3 years sufferer with the burning tongue problem, nothing helped until we try this Hello toothpaste, the burning tongue is 95% effective probably 98%. She used to spend the daily shewing Orbitz gum all day until the night when it will get worse. Now no more gum, no more burning, once in a while a little sensation on the tip of the tongue but dentist said it might from her moving the tip over the lower partials that could cause irritation on the tip of the tongue. I hope everyone with similar situation try this tooth paste is a miracle. Thank you very much and lets spread the word. @mamajomclane

REPLY
@rgpadilla

I had been looking for your post for a while until I finally found it. In reference to the tooth paste, thank you from the bottom of my heart, my wife is a 3 years sufferer with the burning tongue problem, nothing helped until we try this Hello toothpaste, the burning tongue is 95% effective probably 98%. She used to spend the daily shewing Orbitz gum all day until the night when it will get worse. Now no more gum, no more burning, once in a while a little sensation on the tip of the tongue but dentist said it might from her moving the tip over the lower partials that could cause irritation on the tip of the tongue. I hope everyone with similar situation try this tooth paste is a miracle. Thank you very much and lets spread the word. @mamajomclane

Jump to this post

@rgpadilla - soooo very happy “HELLO TOOTHPASTE” helped your wife...may it continue.

REPLY

My husband has this and his is related to his autoimmune liver disease. However, it is not necessarily related to liver disease so you need to have a good diagnosis first to make sure you don't have some other related medical problem. He uses a prescription mouth rinse called "Mary's Magic Mixture" which helps. Most dentists and pharmacists are familiar with it.

REPLY
@kathylo

My husband has this and his is related to his autoimmune liver disease. However, it is not necessarily related to liver disease so you need to have a good diagnosis first to make sure you don't have some other related medical problem. He uses a prescription mouth rinse called "Mary's Magic Mixture" which helps. Most dentists and pharmacists are familiar with it.

Jump to this post

@kathylo Thanks for this info. In my case I have no other diseases. This came on for no discernible reason or medical cause.

REPLY
@rgpadilla

I had been looking for your post for a while until I finally found it. In reference to the tooth paste, thank you from the bottom of my heart, my wife is a 3 years sufferer with the burning tongue problem, nothing helped until we try this Hello toothpaste, the burning tongue is 95% effective probably 98%. She used to spend the daily shewing Orbitz gum all day until the night when it will get worse. Now no more gum, no more burning, once in a while a little sensation on the tip of the tongue but dentist said it might from her moving the tip over the lower partials that could cause irritation on the tip of the tongue. I hope everyone with similar situation try this tooth paste is a miracle. Thank you very much and lets spread the word. @mamajomclane

Jump to this post

@rgaadilla --Thank you so much for the HELLO toothpaste information. I bought some recently, but it has peppermint in it. I have to avoid mint flavors. What type did you use.?

REPLY

Thank you very much for your comment. This is what the box says on the outside, hello, activated charcoal with fresh mint + coconut oil (4oz.) It comes in a black and brown box, it also says fluoride free. My wife doesn't fell the mint taste I am assuming that because the stronger activated charcoal taste covers what ever little mint taste may have. Hopefully this information might help you. Good luck.

REPLY
@rgpadilla

Thank you very much for your comment. This is what the box says on the outside, hello, activated charcoal with fresh mint + coconut oil (4oz.) It comes in a black and brown box, it also says fluoride free. My wife doesn't fell the mint taste I am assuming that because the stronger activated charcoal taste covers what ever little mint taste may have. Hopefully this information might help you. Good luck.

Jump to this post

@rgpadilla, thanks so much for the information. The HELLO I purchased is very different. It has no charcoal, and does contain many artificial sugar additives. no coconut oil. I will contact the 800 number and try to order the one your wife is using. Thanks so much. I'll let you know if I'm successful. Also, I don't recall if you said where you purchased yours, Walmart, Walgreens or another store. I'm happy it is helping her. I don't recall where I purchased mine.Thanks again!

REPLY

we bought it at Wal-Mart, price was shipper than other stores. (safeway / cvs, etc.) My impression is that the charcoal could be the one doing the trick. So far no burning tongue any more and no more chewing gum either. Good luck.

REPLY
@rgpadilla

we bought it at Wal-Mart, price was shipper than other stores. (safeway / cvs, etc.) My impression is that the charcoal could be the one doing the trick. So far no burning tongue any more and no more chewing gum either. Good luck.

Jump to this post

@rgpadilla, I so appreciate your response. I hope this lasts and lasts and ……….

REPLY
Please sign in or register to post a reply.