When things just don't get better

Folks just wanted to pass something along concerning migraines. Since I came down with whichever I have, Lyme Disease or Fibromyalgia 2 1/2 hears ago the headaches, migraines, have had me down. The nuerologist I went to said there was a new treatment out using Botox! She asked me if I would like to try it? I said sure, and with everything, what were the "Side Effects". she said they were Mild and No Big deal! It was one of the worst three weeks in the past two and a half years I have suffered!
everything you hear and see now on the adds are what I went through then that wern't published, that now are! My headaches, migraines, were Tripple, of what they were then.
Just a warning to stay away from Botox!
From, The Land Enchantment!
Sundance(RB)

@sundance... reading this upset me. Sorry to read what you went through , no fault of your own except to trust a Doctor. "No" doctor in my opinion can or should say "any" treatment is no big deal, or such words, because "stuff happens". There is always a certain percentage of risk and we have to weigh the pros and cons.... would we go ahead with a treatment if the attending doctor said: In the majority of treatments the patients have done very well, but there is a ---- percentage it might not work, or you may have more pain, etc. etc. I believe they are now calling this "transparency."
Might sound funny my saying this but I was born in UK, started bad migraines around age 12 or so.... anyway, I remember years later reading that the Queen's sister, Margaret, suffered from migraines and there was nothing they could do. Honestly, although young, when I read this I thought to myself, if they can't "cure" her migraines they aren't going to cure mine! I had classic ones with the one sided head pain for hours, aura, vomiting etc. as I have said until mid forties I think... when they changed to mostly Aura/Visual - never know when its going to happen... I had also had them visually when younger and when in labour for 2nd daughter had a visual, didn't even mention it to the nurses as nothing can be done. I have no idea what sets mine off.... its not food, weather, stress... I think it's just something I was born with and live with. Thanks for the Botox warning btw, J.S.

JS, I've gone through 2 1/2 years of this kind of treatment. Before I read your post concerning a person who had an autoimune issue. The person answering this person said to see a Rheumatologist, that they handaled these kinds of things! I don't know where they live but they don't in my medical system.
It was my orthopedic doctor who diagnosed my Lyme Disease because he had been a Microbiologist and understood it. It was my Rheumatolgist who said it was Fibromyalgia. I asked him what he could do to help me he just "BLEW ME OFF SAYING IT WASN'T SOMETHING HE DEALT WITH!"
It's really sad what our medical industry has come to!
In saying that I would be remiss not to say that I have one of the best PCP around. He's like a doctor I grew up with!
Example, I messaged him this morning asking him of the possibilty of maybe I had Mold Toxixcty in my house that maybe the cause as to what I have. He answered me back saying he would set me up with a referal to see an Alergist! He said also there were in home test out there! I got a call form his PA saying that if I went on line the inhome test were available through a hardwear store either at the store or online or on Amazon!
That's what most doctors have lost!
Let's all enjoy Life and get back to enjoying it again!
From, the Land of Enchantment!
Sundance(RB)

@sundance6 Think Taos is a bit out of the way to recommend someone for body work. Sounds like you live in a beautiful area.

That area of the state is Beautiful as are many other places around the state! That's why they call it The Land of Enchantment! Both Santa Fe and Taos are very Special places! I live in what they call the North Valley. It is in the NW quadrant of ABQ. I live about 500 years away from the Rio Grande through what we call a Bosque, a Cottonwood forest! My office windows look out on it! This time of year we have Cranes and Geese doing flybys of my window!
The lady who does my Body work also lives in the valley which is very rural!
A couple of weeks ago I went up to Santa Fe, 50 miles away to have lunch with an old friend north of town between Santa Fe and Taos.
On the way home I drove through the "Plaza" area of Santa Fe. Acted like a tourist and just walked around! Also took the time to go back and remember memories around town! Very soothing!
Sundance(RB)

Daphne47
I can relate so a lot of what you have written
I have depression/anxiety and defibrilator.
I feel you may have missed out on the positivities that you’ve mentioned and need to zoom in on them more
You have a great therapist..how wonderful
You’ve made good steps with your mental health , and you can do it again
That’s what we do 👍
I’ve increased omega into my diet
I go walking which I hated at the start but it’s part of my day now
Listening to music makes me happy
It has to be little things everyday,. and not to get overwhelmed with negativities
You can do it
It is in you.. pace yourself
I consider myself a work in progress
And be kind to yourself.x

@hearttoheart1
Can I just say that I like the way you write, it's a very unique style and actually kind of uplifting. I don't know how or why you use a defibrillator, but I'd be interested to find out, just something I haven't heard of people using as a day-to-day thing before. Best, Hank

Hi
I had hypotrophiccardiomyopathy
My mum and her Dad died suddenly😔
I had been attending the doctor with ,just been unwell,not really ill ,but not myself
After many tests it seemed the diseased muscle in my heart was deteriorating little by little
So to have a defibrilator fitted was and is the best thing for me
It gives me reassurance and I take readings each day which go to the cardiologists office
I get many check ups too
So that’s my story
Happy to share👍

Hi @hearttoheart1, did you know that there is a group dedicated to Hypertrophic Cardiomyopathy in Mayo Clinic Connect?
- Hypertrophic Cardiomyopathy (HCM) https://connect.mayoclinic.org/group/hypertrophic-cardiomyopathy-hcm/

You might also be interested in connecting with other members who have defibrillators in Heart Rhythm Conditions group: https://connect.mayoclinic.org/group/heart-rhythm-conditions/

I enjoy and miss Santa Fe! Looking forward to a safe trip there soon.