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C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
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@pines This has all been so helpful to me! I also had the gel like puss but didn't know about this website at the time and was really alarmed...My bowels are now starting to look a bit more normal (sigmoid colon removed on Nov 27, with first C-Diff bout in late October and second after the surgery). I started out with Vancomycin and this time I am on the tapered down Vancomycin, which will carry me through the first week in Thailand. I am hoping upon hope that I will get through last week there without a third bout. I am not sure right now about how vigilant I need to be about changing bedsheets, etc., I usually do once a week but am doing every other day now, along with using the medical grade Clorox to wipe things down. So afraid I am going to miss something and re-infect myself. After reading so many posts on this site, I am counting my blessings...grateful that so many of us can find suggestions/answers/ideas on this site. Thanks for sharing your experience, strength,and hope!
It is horrible. I lose hope everyone I feel better I get another bout of stomach issues.
I will never forget the smell of cdiff. I actually work in a hospital and you sometimes smell it and gag. I nevertheless thought I would talk about my BM to anyone. I just am glad I have people to talk to it is scared and it is so life changing. I pray for everyone who has this disease and I think clindamycin should be taken off the market
@serenityva If I may ask, why did they remove part of your colon?
I have had about 3 to 4 bouts a year of Diverticulitis, but the surgeon I saw a couple years ago said pockets weren’t bad enough, in his opinion, to merit removal. My current surgeon said that with bouts so often for a few years meant get it out immediately, which I did.
@serenityva Oh my, Diverticulitis on top of dealing with C.diff. Wishing you safe travels to Thailand. Our niece spent two weeks there this past March. Loved seeing all her beautiful photos. Will you be doing Vanco every other day on your last week of Vanco taper?
How many years did you have 3 or r bouts a year I had 4 this year but removable was only mentioned if it had gone thru my colon which it hadn’t.
@lilosthope
I’m in the same situation. I’ve had 4 flare ups. Last weekend I was taken to The hospital by ambulance. I was very dehydrated from going to the bathroom over 20 times. I was passing out. I’m now on Dificid. I have 3 more days on it & I’m nervous because each time I’ve finished a med it comes back in about a week. First flagyl 3 times. Then Vancomycin. Now this Dificid. If I fall this, I’ll have to have the FMT.
I do too. That’s what gave this to me