Autoimmune & temperature regulation: How do you get warm?

@1corinthians926 , I am late in the game here, but here is my two cents on the subject. I am an old Granny who has gone from freezing to death all the way to tropical hot flashes, all for a period of over twenty years. I have Type 2 Diabetes , Fibromyalgia, and Osteoarthritis. Degenerative Disc Disease, Spinal Stenosis, and a laundry list of other things. I suspect my literal nervous system , which includes the Fibromyalgia, for the reason I am never in a coat during the winter. I rarely even wear sweaters. I simply get too hot. I have been known to wear shorts and a tee shirt inside my cozy home when there is a blizzard outside. Tomorrow we are expecting the coldest day of the year, and I am so excited to be able to perhaps wear a sweater to church! I have felt for years that it is my Fibromyalgia that makes me run so hot. That and maybe anxiety. I am also severely allergic to many foods and environmental triggers. The anxiety comes from hypervigilence, and hyper sensitivity. I hear off the charts, being a member of the Autism club. I can detect specific odors a mile away. Makes for interesting outings. I hope that something I have said proves useful for you. Take everything with a grain of salt. Do your own research and get the best doctor you can find. Good luck and this Mama hopes you are feeling better soon!

Mamacita

@beryl, I agree, a Down Duvet is amazing. If you are allergic to Down feathers, as I am, there are indeed amazing Down alternatives that do a very good job. I purchased two comforters from Zulilly and we have been very happy with them. They are not as dense as my MIL's Down duvet, but they are better for me than sneezing all the time! Hapoy, healthy days to you and yours!
Mamacita

@peach414144 Sometimes blood thinners will cause coldness also like Coumadin

Thanks but not on blood thinners now. Peach

Thank you for thinking of me but I am not on blod thinners. Still, it was a good idea.

@peach414144 I too have cold feet more then cold hands but its probably coming from our dis-eases and poor circulation

I do feel the cold more since I was diagnosed with polymyalgia. (Also have osteoarthritis) I have an electric blanket under my fitted bottom sheet, turn it up high so that my bed is warm when I retire. I sleep with duvet and blanket. My greatest regret. is that I no longer can bring myself to wrap up warm and take out the dog to the river. The wind is so much worse in winter cold weather, however, I do make myself go out twice a week to volunteer jobs (inside), go to the grocery store and book club. It is important to be active and socialize. It is part of treatment for the ailment.

Hello noosat1 my name is Beryl and I recognize everything you say
As the PMR leaves a place in the body the cold stops effecting that part of ie. i started off with all of my body effected now it is only my legs. I can be hot at the top and feeling the cold in my legs and then the pain starts. You are doing the right thing at bedtime. Hope you get well again soon. Beryl

Thanks Beryl, The PMR is worse in my legs, especially the left one. Just before I was diagnosed I got shingles, which I knew nothing of, on my left buttock. I find that is the leg that is most affected by the PMR. Frustrating, because when I was a runner my left was my strong lead leg. Oh well, must be grateful for what I can do. Sitting for a long time may seem pleasant to me, but I know it is not beneficial. Right now I am doing internet research for a paper I will give to small group in March, so every 20 minutes at most I make myself get up and walk around.

Cheere, Maggie

New to Mayo and thrilled to hear from others! Like many, I too have difficulty with temperature control. Within an hours time I can boil over in sweat that can not be cooled that transitions into goose bumps on my skin boiling on the inside while skin is freezing then transitioning to freezing cold that can not be warmed.