Liver transplant - Let's support each other

Thanks, I live in a small community. I get a lot of support from my chuch. But it is nice to talk to people that are going through the same issues. I am resting and if the Broncos don't start playing some football. I am going to nod off. Thanks for your support.

Please, Always check any medications or supplements with your transplant team. Many things can interact in a harmful way with our antirejection medications and our transplanted organ.

@livertrex, I am not a Broncos fan, in fact not a sports fan at all. So I guess it's OK for me to say that, I hope that the game delays or is boring and you fall asleep!
I know exactly what you mean. I had a lot of support from family and friends, and especially my church community. But I did not have, or even know anyone with a transplant. So that is when I began to look online for others. I really wish that I had something like Mayo Connect before and after my transplant in 2009. I was thrilled when I found Connect. I still am thrilled to be able to meet people from all across the country, and other parts of the world to0. I like to try to help others, but I especially like to celebrate the New Life of Organ Donation.

@ livertex
Yep...here I am sleepless in FL. Tired all day but no sleep. I'm finding that the rxs for sleep I cant take. There is an antihistimine that we may try. I am Stage 4 cirrhosis with a Meld of 8. Decompensated but very slow progression
Mayo says I am a very good candidate just too early. UGH! My road is long but Im strong...I will make it. You will too!!

Long yes. But worth it. You learn a lot about your self and make friends. If they ask you relocate do it. It was in and received a liver in 5 day. God answers prayer.

@livertrex hang in there! My MELD was over 30 before they transplanted me (2 1/2 year wait list) and some people here have reached as high as 40. I know that sleep seems impossible but thank goodness you don't have the severe itching, nausea and EI episodes. Resting your body for now is good. When it can't take anymore you will sleep. Don't fight it just get yourself into a mind set that sleep will come when your body is ready. I found the more I fretted about not sleeping the worse it became. Then I let it go and eventually I did sleep.

@jeanne5009 You are in that difficult time of wanting to be able to get a transplant but to get one you need to get much sicker. I managed to make it to MELD 28 without feeling too bad most of the time. Just the last 6 weeks or so were difficult and even then every day was not bad. I hope your MELD goes up too without you feeling too bad. You have a pretty low MELD, I didn’t think you could even be on the list with such a low one.
JK

Hi @jeanne5009. I did not sleep well prior to transplant. And I remember being unable to get comfortable due to ascites and later edema. I had to prop up with pillows because I was too uncomfortable lying down. I only spent a short period of time in the bed at night, and spent most of my time on the couch. I was also bothered with fatigue.
I didn't take anything for it to protect my liver.
After I experienced acute kidney failure and was flown to Mayo, I was on dialysis. The dialysis along with paracenthesis proedures eased some of the ascites and edema, so I was able to experience some relief to lie in bed (still propped up) for a longer time night and day. I do remember that I could get out of bed and I paced the floor of our bedroom at GOL to pass the time and to relieve the abdominal discomfort.
I am sorry to add that this is probably not the information that you hoped for. I know how time can seem to move in slow motion while waiting. I send my hopes and prayers for some relief.

@livertrex, What a fantastic picture! Was that taken before you headed home?

Yes