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Valve Disease

Posted by Mary D @maryd, Aug 8, 2018

I'm wondering if anyone has had symptoms of valve disease that did not show up on a resting echocardiagram (ultrasound of the heart) I believe I'm having persistent symptoms of valve disease. After I exercise, sometimes a few hours later I feel pressure in my chest, shortness of breath, and sometimes fluid retention. My doctor insists that my ultrasound, ejection fraction, and valves are normal but i'm wondering if there is a valve that causes a problem only when stressed with exercise. My coronary arteries are clear. ( I just had a coronary angiogram)

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susancarter | @susanjc | Aug 24, 2018

Peach-Are you strong enough to get compression stocking on?

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6 replies
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susancarter | @susanjc | Aug 24, 2018
In reply to @carlysmith011 "My echos before my 1st surgery didn’t show how bad my valve was. I had a..." + (show)
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My echos before my 1st surgery didn’t show how bad my valve was. I had a cardiac cath and that showed my valve was critical and explained all my symptoms even though the echos showed mild-moderate stenosis not critical

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Carly- Is it your Mitral Valve?

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lioness | @lioness | Aug 24, 2018
In reply to @susanjc "Peach-Are you strong enough to get compression stocking on?" + (show)
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Peach-Are you strong enough to get compression stocking on?

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@susanjc I don't think compression stockings will help she needs her valves to be opened to let blood flow up and down do you know something I don't? Im a retired nurse.

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peach414144 | @peach414144 | Aug 24, 2018
In reply to @susanjc "Peach-Are you strong enough to get compression stocking on?" + (show)
Profile picture for susancarter @susanjc

Peach-Are you strong enough to get compression stocking on?

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Cannot apply the thigh high (all the way up to the abdomen) stockings. It takes 2 people and I have the smallest size prescribed so they are very tight. Yes, you are correct I need the valves opened/closed. I was tricked by going to doctors? who did not do the application. I am really feeling it now. I live in Marion County, Florida. Ocala to be exact. I do not know how correct I am but it seems to me that some of the doctors here in Ocala are frauds. Some how I need to save/get up the money to to the Mayo clinic in forget where, north of me. I thank you Lioness and all others.

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peach414144 | @peach414144 | Aug 24, 2018
In reply to @peach414144 "I have valve disease in my ankles, knees and thighs not allowing the blood to flow..." + (show)
Profile picture for peach414144 @peach414144

I have valve disease in my ankles, knees and thighs not allowing the blood to flow up to the heart carrying the oxygen to the heart. This affects the eyes (going blind) and other problems such as the feet and legs are slowly dying. Supposedly had ablations but of to no avail. When the procedures were done I had no feeling, no pressure, and no pain and there were no marks on the skin. Is this another way to collect medicare without doing the procedure? (These six procedures (2 ankles, 2 knee and 2 thighs.) The valves are not working to open and close to allow proper circulation. None of the relating doctors will address this issue with me. Oh boy Ocala id deadly behind the times. At age 81 it is so difficult to travel a great distance to address these issues. And, the pain in the legs is brutal. Shame!

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Dear Susanic. No church and no family. I have outlived many people. If you want I can be reached by private message and thank you.

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peach414144 | @peach414144 | Aug 24, 2018
In reply to @susanjc "Peach-Are you strong enough to get compression stocking on?" + (show)
Profile picture for susancarter @susanjc

Peach-Are you strong enough to get compression stocking on?

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Sorry, no.

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susancarter | @susanjc | Aug 24, 2018
In reply to @susanjc "Peach-Are you strong enough to get compression stocking on?" + (show)
Profile picture for susancarter @susanjc

Peach-Are you strong enough to get compression stocking on?

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Lioness-Just trying to get more information. I feel she needs someone to help better understand what procedures were done as a start and why they were not effective.

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susancarter | @susanjc | Aug 24, 2018

Peach--I feel you need a better understanding of the procedures performed on you and why they not were effective. A vascular surgeon may be a consideration of someone to see. Meanwhile a wound care doctor can help with any open sores you may have on your legs and feet.

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2 replies
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peach414144 | @peach414144 | Aug 24, 2018

Thank you for caring. There are no open sores because they tricked me. They sis not do the proceedjure. I now somehow need to go to a vascular doctor who is not here in Ocala. Cannot drive as I am going blind. Must figure a way. Thank you again.

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1 reply
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susancarter | @susanjc | Aug 24, 2018
In reply to @peach414144 "I have valve disease in my ankles, knees and thighs not allowing the blood to flow..." + (show)
Profile picture for peach414144 @peach414144

I have valve disease in my ankles, knees and thighs not allowing the blood to flow up to the heart carrying the oxygen to the heart. This affects the eyes (going blind) and other problems such as the feet and legs are slowly dying. Supposedly had ablations but of to no avail. When the procedures were done I had no feeling, no pressure, and no pain and there were no marks on the skin. Is this another way to collect medicare without doing the procedure? (These six procedures (2 ankles, 2 knee and 2 thighs.) The valves are not working to open and close to allow proper circulation. None of the relating doctors will address this issue with me. Oh boy Ocala id deadly behind the times. At age 81 it is so difficult to travel a great distance to address these issues. And, the pain in the legs is brutal. Shame!

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Peach--I will email you tomorrow. Looking forward to visiting with you.

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