Meniere's Disease

Posted by morninglory @morninglory, May 13, 2018

Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?

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@december1011

<p>Has anyone out there found a remedy or at least something that lessons the feeling of pressure and tinnitus accompanied with Meniers Disease? My symptoms are maddening. Thank you</p>

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@december1011 I think your newly unpacked headphones with the white noise app are an excellent start!

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@artist01

@december1011 I think your newly unpacked headphones with the white noise app are an excellent start!

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Do the headphones really work? Or is it a toss up?

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@artist01

@trishanna Nope, not fluid in the ear. There are tiny hairs in our inner ears that get "bent over" and thus tinnitus is the result. That's a very un-medical description of what my neurologist and ENT told me. It's available for research on the internet.

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@artist01 It's my belief that I suffer from recruitment, but so far have only associated it with my hearing problems. It would be nice if the hearing industry researched/understood recruitment. The only prescription I've been offered are "hearing aids" to make sound LOUDER. Have just purchased ear protectors to reduce noise, but can't understand anyone speaking with a mask on. Anyhow, never associated recruitment with tinnitus. Mine fluctuates with my diet - salt, food allergies.

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@jakedduck1

Hi @lacy2
California has more people than all of Canada.
How about being a good neighbor and taking about 30 million Californians off our hands. That would nearly double your population and give Californians a little breathing room.
Guess I don’t love my neighbor like I’m supposed too.
Jake

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@leonard ... i was born in uk and lived in outskirts of London; my mum was born in very poor circumstances down by the docks on River Thames... i wish i had asked her about her life more before i left and came to Canada at 18... i had visits with her after but never asked her about it. her dad died in early 20s leaving his wife to raise 4 children on her own almost starving while she scrubbed floors and did laundry. once a week they heated up water on stove to put in tin bathtub and the FIVE of them, from youngest to older took a turn having a bath in the same water... could not afford to heat more water.... and so on. And we complain because theres nothing on tv we are interested in.....All four children grew up with basic eduction,worked and had families and, main thing; were happy!!! my parents never complained .... well util mum got alzheimers and her personality changed... Husand and i are not travellers but went to san francisco 3 times as girls working there; once 2 weeks after 9-11...that day one daughter was at san fran airport waiting for plane to toronto.... as millions of others, will never forget that day. We loved SAn Fancisco.... only other place we were Florida and twice los Vegas for weekend.
Canada has plenty of room for a lot more people but people want to go to the larger cities of course where there is employment and entertainment. Winters would be ok if not so darn long.... now i have forgotten the medical reason for my chat..... oh yes, Dad had ear issues but i was living over here and dont know what he did to help himself... i do know a quick story; he bought some very cheap eye glasses while on holiday by the Sea, after was having major issues and falling etc. i don't know how long it was before they discovered that the right lens had been put in the left side of glasses and vice versa... true story! poor Dad!

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@trishanna

@lacy2 Didn't see anything about what's been recommended to you medically, if anything. As a longtime Meniere's disease sufferer, I still like antivert for vertigo and a diuretic for excess fluid retention. My tinnitus has worsened since I'm no longer able to take a diuretic. The greatest symptom reliever is reduced salt intake. Based on my experience only, I'm absolutely convinced there's a connection between fluid in the ear, tinnitus, and vertigo.

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@trishanna hi i have been waiting months to speak to ent, and appointment is thursday so will get my list of questions ready, i could go out of town and see someone sooner but with fecal incontinence and now other issues, hard to travel, take care,j.

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@joyces

Too many people in most places! Sixty years ago, Portland, Oregon was okay, but now its all traffic, rabbit warren apts., people everywhere. We moved to this house on the coast (which I've had for nearly 60 years) and now, when I make the two-hour drive to Portland I sometimes fail to run all the errands I had on my list because I just want to escape.

Tinnitus is simply Ma Nature's attempt to fill the silent void when you lose hearing. For some, that makes it less awful. Worse than tinnitus is acoustic hallicinations! That's hearing something that's not there, often "replayed" from something you haven't actually heard for years.

Have any of you with tinnitus ever heard of sticky platelets? I know someone who'd been diagnosed with Meniere's, but, like 80% of those who have, he actually had sticky platelets. with tinnitus being his main complaint. In fact, he became very active in ATA, the American Tinnitus Assn. Once he found out about sticky platelets (in his blood), he was cured by taking one low-dose aspirin every day.

It is true that over time tinnitus becomes far less bothersome. I've had it in my right ear for nearly 40 years, but the only time I'm aware of it is when it becomes a topic for discussion. The relatively new T in my left ear is still pretty noticeable, but the recruitment and distortion Meniere's offers are far, far more bothersome.

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....yes @joyces i have been in bed resting and tinnitus and heard deep in my brain i guess some big band music; another time heard faint voices like the commentators at a horserace.... here comes Betsy Boo around the corner, followed by Aint yur Baby, etc. etc. I diont think i am going insane but ........ j.

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@lacy2

@trishanna hi i have been waiting months to speak to ent, and appointment is thursday so will get my list of questions ready, i could go out of town and see someone sooner but with fecal incontinence and now other issues, hard to travel, take care,j.

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Be sure to check the HLAA website, http://www.hearingloss.org for Consumers Checklist (type that in lookup box) and many of those questions will help you

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Lacy, just another example of nature attempting to fill the void of silence. The strange thing is that, like your horse race, some things are from what you actually heard decades earlier, have forgotten entirely. I don't know quite how to separate this strange event from thinking you hear things that you possibly could be hearing, like the dishwasher running, for example. I know that I need to listen carefully to hear the various household machines doing their jobs, and sometimes I swear they're running, but, when I feel their sides, they obviously aren't. I've heard marching bands from long ago.

Along with recruitment (which may be part of this strangeness), is the fact that it's possible to have a vertigo crisis simply from hearing too much sound. For example, while my daughter was in college, I went to a concert which had the 1812 Overture as the final number. (That's the one that can have cannons, or at least lots of action from the percussion section.) I stumbled out, weaving toward my car, bumping into other cars in the lot, and had to lie down for an hour or more before I could drive. It was just too much noise for someone with recruitment!

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@joyces and all.. Agree joyces.... I had tinnitus starting over 20 yrs ago, the odd tinkle, tap, buzz off and on but understood it and at that time hadnt had many illnesses nor medications. Over the past years, sort of changed to more of a machine noise. Around the same time, my husband bought new furance and its a two stage; so its a metal box with natural gas , or rather two boxes now as two stage, and pipes come out and run to each room in the house. The motor starts up, brings in air, heats it up and blows it out into rooms. This super duper one, if doest reach temperature on thermostat in hall, then sort of goes through it again... it is noisier than old one. Also, older furnaces reheated the air in the house then they decided to bring in fresh air from outside for combustion, etc. So there is a pipe going outside bringing in air... this is where we argue. I say that the furnace is brining in sometimes minus 20 Celcius air to have to heat up, right? So runs longer. Thing is they were building air tight houses which wasnt good for gas furnace but we have a dog and anyone iwth a dog knows you open the door to let it in and out twenty times a day, so lots of fresh air. We also bought a new double door fridge - and there was on old beer fridge in basement when bought the house. OH you are so correct. Soooo. I am woken up by one of the three noise-makers... I no longer do it often but would go down and check each fridge and the furnace.. many many times, as now, it is running and i can hear it. Sometimes, nothing is running but I hear a similar noise. Sometimes both fridges happen to be running when i put my ear to them! etc. etc. However, long story short its enough to drive someone crackers! I try to have you tube in background at night, i even use earbuds.... sometimes fall asleep and sometimes can still hear the noise. The brain is complex for sure. All i can say is it is different than when i first had tinnitus and i still wonder if it was caused by medication/ if Norflox causes periphery neuropathy, could another drug have heightened the tinnitus....I wonder..

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@cinnamonkat

Do the headphones really work? Or is it a toss up?

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@cinnamonkat I've had the "sound-making" hearing aid and in my opinion the "white sound" headphones would work as well or better, but it's' just a helping kind of solution, a bandaid solution you might say.

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