Meniere's Disease

Posted by morninglory @morninglory, May 13, 2018

Has anyone with Meniere's Disease been prescribed the compound drug Betahistine?

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@lacy2

Hi...not sure why i felt like describing my house.... I think I am the one whose brain is going split level... having a lot of stress lately with various health issues. Did try sponge ear plugs but when wake up thru night etc. like to put in ear buds and listen to tapes from you tube to get back to sleep... oddly enough listening to them low volume can still hear fridge or furnace in background, plus tinnitus.... apparently it is the brain hearing the tinnitus not the ears.... but may try the gum once my gum heals from having tooth out Thursday. had one out dec.27 and hole has healed but tiny fragments of bone coming up through gums, had 3 taken out, tiny but make mouth sore... honestly, its one thing after another - big or small - never ending.. yes USA similar size to Canada but not sure , maybe 5 times population.... i would love to be in Florida or somewhere warm right now.. but travel days are over. Thanksagain, J.

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@lacy2 Didn't see anything about what's been recommended to you medically, if anything. As a longtime Meniere's disease sufferer, I still like antivert for vertigo and a diuretic for excess fluid retention. My tinnitus has worsened since I'm no longer able to take a diuretic. The greatest symptom reliever is reduced salt intake. Based on my experience only, I'm absolutely convinced there's a connection between fluid in the ear, tinnitus, and vertigo.

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Too many people in most places! Sixty years ago, Portland, Oregon was okay, but now its all traffic, rabbit warren apts., people everywhere. We moved to this house on the coast (which I've had for nearly 60 years) and now, when I make the two-hour drive to Portland I sometimes fail to run all the errands I had on my list because I just want to escape.

Tinnitus is simply Ma Nature's attempt to fill the silent void when you lose hearing. For some, that makes it less awful. Worse than tinnitus is acoustic hallicinations! That's hearing something that's not there, often "replayed" from something you haven't actually heard for years.

Have any of you with tinnitus ever heard of sticky platelets? I know someone who'd been diagnosed with Meniere's, but, like 80% of those who have, he actually had sticky platelets. with tinnitus being his main complaint. In fact, he became very active in ATA, the American Tinnitus Assn. Once he found out about sticky platelets (in his blood), he was cured by taking one low-dose aspirin every day.

It is true that over time tinnitus becomes far less bothersome. I've had it in my right ear for nearly 40 years, but the only time I'm aware of it is when it becomes a topic for discussion. The relatively new T in my left ear is still pretty noticeable, but the recruitment and distortion Meniere's offers are far, far more bothersome.

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@jakedduck1

Hi @lacy2
California has more people than all of Canada.
How about being a good neighbor and taking about 30 million Californians off our hands. That would nearly double your population and give Californians a little breathing room.
Guess I don’t love my neighbor like I’m supposed too.
Jake

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@jakedduck1 Jake, I don't think transplanted Californians would survive our northern climate. Plus, our pure and wonderful air would be blue from all the cussing and complaining when the temperature dips! Right now, we are ecstatic over our WARM AND WONDERFUL weather cuz we're finally up to 40*F. Warmest regards, Laurie

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@trishanna

@lacy2 Didn't see anything about what's been recommended to you medically, if anything. As a longtime Meniere's disease sufferer, I still like antivert for vertigo and a diuretic for excess fluid retention. My tinnitus has worsened since I'm no longer able to take a diuretic. The greatest symptom reliever is reduced salt intake. Based on my experience only, I'm absolutely convinced there's a connection between fluid in the ear, tinnitus, and vertigo.

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Reply to Trishanna: Lots of Menierians believe that exercise helps reduce excess fluids, i.e., sweating. If nothing, else, it makes you feel good about yourself. I know that doing something far more active than usual always reduces fluids, even reduces the random "water" noises I hear sometimes from my ears.

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@trishanna

@lacy2 Didn't see anything about what's been recommended to you medically, if anything. As a longtime Meniere's disease sufferer, I still like antivert for vertigo and a diuretic for excess fluid retention. My tinnitus has worsened since I'm no longer able to take a diuretic. The greatest symptom reliever is reduced salt intake. Based on my experience only, I'm absolutely convinced there's a connection between fluid in the ear, tinnitus, and vertigo.

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@trishanna Nope, not fluid in the ear. There are tiny hairs in our inner ears that get "bent over" and thus tinnitus is the result. That's a very un-medical description of what my neurologist and ENT told me. It's available for research on the internet.

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@artist01

@jakedduck1 Jake, I don't think transplanted Californians would survive our northern climate. Plus, our pure and wonderful air would be blue from all the cussing and complaining when the temperature dips! Right now, we are ecstatic over our WARM AND WONDERFUL weather cuz we're finally up to 40*F. Warmest regards, Laurie

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@artist01 In Pa too that was summer weather in winter

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@joyces

Too many people in most places! Sixty years ago, Portland, Oregon was okay, but now its all traffic, rabbit warren apts., people everywhere. We moved to this house on the coast (which I've had for nearly 60 years) and now, when I make the two-hour drive to Portland I sometimes fail to run all the errands I had on my list because I just want to escape.

Tinnitus is simply Ma Nature's attempt to fill the silent void when you lose hearing. For some, that makes it less awful. Worse than tinnitus is acoustic hallicinations! That's hearing something that's not there, often "replayed" from something you haven't actually heard for years.

Have any of you with tinnitus ever heard of sticky platelets? I know someone who'd been diagnosed with Meniere's, but, like 80% of those who have, he actually had sticky platelets. with tinnitus being his main complaint. In fact, he became very active in ATA, the American Tinnitus Assn. Once he found out about sticky platelets (in his blood), he was cured by taking one low-dose aspirin every day.

It is true that over time tinnitus becomes far less bothersome. I've had it in my right ear for nearly 40 years, but the only time I'm aware of it is when it becomes a topic for discussion. The relatively new T in my left ear is still pretty noticeable, but the recruitment and distortion Meniere's offers are far, far more bothersome.

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How do you find out if you have sticky platelets ?

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@trishanna

@lacy2 Didn't see anything about what's been recommended to you medically, if anything. As a longtime Meniere's disease sufferer, I still like antivert for vertigo and a diuretic for excess fluid retention. My tinnitus has worsened since I'm no longer able to take a diuretic. The greatest symptom reliever is reduced salt intake. Based on my experience only, I'm absolutely convinced there's a connection between fluid in the ear, tinnitus, and vertigo.

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Thank you for your response

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@erikas

@december1011 How are you doing today? May I ask if you tried the headphones?

You will notice that I moved you question to a previous discussion on this topic. I did this so you could connect with members in a central location and so that other members with a similar question could more easily find you. I see that you were part of this discussion in the past. Did you have a chance to read the past comments?

I'm wondering if you have ever considered alternative therapies like, acupuncture, chiropractic, etc.?

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Hi there, I actually have a number to call for acupuncture and I recently unpacked my headphones that have a white noise setting .. 👍

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@trishanna

@jakedduck1 While Canada's taking your excess Californians, maybe they could stop in Chicago and pick up, say, 30,000. It would really help with traffic, etc. Thanks.

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@trishanna Well, that might work, transplanting Chicago folks to Canada. At least, they could tolerate our weather better than the Californians could!

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