1. < Transplants

Liver pre-transplant question

Posted by jodeej @jodeej, Mar 26, 2018

My husband has occasional issues with stomach upset resulting in diarrhea recently. Is this part of his liver issue or is it possibly something else? He went to to work today, but turned around and came right back home because of it. We do go back for his 3 month check-up the week of the 9th, so I can talk to the transplant team about it. I know his liver is really getting worse because his breath is starting to smell and his "brain fog" or cognition is getting worse.
Thanks,
JoDee

Interested in more discussions like this? Go to the Transplants Support Group.

jerrydrennan | @jerrydrennan | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@rosemarya
Thank you so much for the prayers and thoughts. The people at the Mayo are some of the best people I have meet . Being from south Texas, the mayo has been fantastic on working with me on almost all occasions due to my logistics. Have a beautiful day.
Jerry.

REPLY
myson | @myson | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@jerrydrennan
I'm a newbie caregiver. What does it mean to be staged?

REPLY
jerrydrennan | @jerrydrennan | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@myson
Hello
From what I have been told and read
Staging for me is looking at the area that has cancer ,liver or bile duct. And to make sure that the cancer has not spread to other organs or lympnoids. I hope one of the moderators can send a link to staging. I am not versed on how to add links.
This procedure is done before I can get activated. If the cancer has not spread then I should get activated.
If the cancer has spread then I will be removed from transplant.
I hope this helps I am not the best at this buy I will help where I can. I not up on your story so ,info is free so is prayers.
God bless
Jerry Drennan

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@myson, This staging refers to liver patients. Liver transplants are more common than lung trasplants and so you will be reading more about liver than about lung transplant.
If you would like to start a new discussion about lung transplant patients, I will be happy to help you to get one started. Just let me know. Okay?
Rosemary

REPLY
JK | @contentandwell | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@jerrydrennan Thanks, Jerry. I am not sure what a lapo procedure is, I googled it and came up with nothing that sounded applicable. I did have a biopsy and had malignant tumors. They were fewer and smaller than what would cause me to be removed as a transplant candidate.
Why would they pass you over if this is something that has to be done? If you are already at MELD 31 it would seem imminent to me. I presume that there is some malignancy which is why this needs to be done. Has that been dealt with? I had an ablation. Because my lesions were right at the edge of my liver it was a difficult ablation, they did not want to effect any other organs. As a result there was a tiny bit left when they took my liver out and dissected it so now I am on a watch to make sure it has not metastasized. Hopefully it has not, so far, so good.
JK

REPLY
JK | @contentandwell | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@lisamb That's wonderful, you and your husband must be so relieved. Initially he may be in some discomfort/pain but it will pass and then he and you can move forward with smooth sailing. It's such a great time when you can put the waiting and the problems behind you.
JK

REPLY
JK | @contentandwell | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@gayleaf1 I must have said something misleading, my transplant was on September 23, 2016 and things are great now, but thank you for your well wishes.
JK

REPLY
jerrydrennan | @jerrydrennan | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@contentandwell
Hello
I wish I had very solid reason. Depending on who I ask the answers are different. I Dr told me the MELD does not matter and it would be a year or so before they get to me. Another Dr told me I would be transplanted by July. I am not been staged. The best answer I got was there are to many people activated and I need to wait. Then I was told Friday that they have done a lot of transplants the past couple of weeks. I will wait my turn and when it happens it happens. I’m just wanting to know what road I’m taking.
God bless
Jerry Drennan

REPLY
gaylea1 | @gaylea1 | Jun 25, 2018
In reply to @contentandwell "@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that..." + (show)
@contentandwell

@jodeej I thought you said somewhere that his MELD was 36. I am not surprised that if it's 30 he has not yet been transplanted, particularly if he happens to be type O. I understand that type can take longer, probably because they can transplant those livers to anyone waiting, whereas type A. B, AB can only go to the same types.
JK

Jump to this post

@jerrydrennan I feel like I'm in the same boat. I'm at the top of the wait list but still waiting. They're haven't received the right "size" for me with the right blood type (I am 0+). So the waiting game goes on.

REPLY
View MoreView Less
Please sign in or register to post a reply.