Liver pre-transplant question

@amyintuscon Amy, if you do look into osteopaths I would be interested in hearing what you think. Initially I was skeptical but when I discovered that Dartmouth gives degrees in osteopathy I figured it must be pretty legit.
I hope the nodule turns out to not be any of great concern. Please keep us posted.
JK

@myson Thank you, but I was referring to when I was waiting. I had my blessed transplant in September of 2016 and have been great ever since.
JK

In my case stomach problems were a daily issue. The thinking issues can sometimes by treated with lactalose.
Tell you doctor everything. Leave nothing out. Pray, listen and just keep going. Transplant is on the way. I have had two transplants. And am an active, happy, person again.

@sarahpalomita1 Thank you for your post. My stomach issues tend to fluctuate due to the diuretics I need to take. I do use gravol and stick to a low sodium diet. The lactulose definitely helps keep my thoughts straight. I also take Rifaximin and lansoprazole. The doctor also prescribed miratzapine to help me sleep. My biggest hurdle is the loss of energy and fatigue I have. I do go to our transplant clinic weekly to work out to help build up muscle mass for surgery. The wait at times is unbearable but I know it will come when I least expect it. I am so glad that you are doing so well. I hope to be in your shoes sometime soon.

@sarahpalomita1 Sarah, I'm not sure whom this is directed at since you did not say, but I agree wholeheartedly. Symptoms that may seem unrelated to you, a layperson, may be significant. Even then, it takes a really excellent doctor/diagnostician to put it all together. It took mine almost a year and a half before I got a diagnosis. The only symptom of cirrhosis that I don't think I told them was that my handwriting had become illegible. Since I never had great handwriting I just assumed it was getting worse, but now it's legible once more.

Sarah, what types of transplants have you had? I had a liver transplant in September 2016. The whole experience to me seemed almost surreal. I feel so very fortunate to be here.
JK

@contentandwell I love your posts. I feel that I can relate my present situation with your past. I don't have contact with anyone here in London ON, who is a pre or post liver patient. Although I visit the University Hospital Transplant Clinic for physio weekly I feel lonely. We have one of the best clinics in Canada and I have a transplant coordinator and social worker but I don't know any other liver transplant recipients. It seems like I jump from one crisis to another. Edema, nausea, dizziness, fatigue and sleeplessness plague me. I also couldn't write or print for quite some time. When first diagnosed I was rushed to hospital and almost died. I have been on our wait list for just over a year now. My MELD is about 28. I lost all memory of those 4 months in hospital. Sorry for the long winded post but I needed to let someone know how I feel that can understand me. Just waiting for the right size and blood type to match me is stressing me out. I also suffer from severe muscle cramps and spasms. I let the doctors know everything and I am on diuretics, lansoprazole, rifaximin and a sleeping pill. I pray every night for a match to put me out of this misery. I smile though because I don't like to burden my children. Hearing from you gives me hope and I know that I am not truly alone. Thank you.

@sarahpalomita1, Welcome to he Transplant discussion group.. I am happy that you have chosen to shared from your pre-transplant experience. You are absolutely correct - to tell your doctor everything!
I had a liver/kidney transplant in 2009. I am also active and happy again!

How long ago did you get your transplant(s)?
Rosemary

@gaylea1,
You are wise to go to the transplant clinic to work out before the transplant. It will help you when it is time for the surgery. Here is something for you to read.
https://connect.mayoclinic.org/newsfeed-post/frailty-what-is-it-and-how-can-it-affect-patients-with-cirrhosis/

Hugs,
Rosemary

@rosemarya Thank you for the link Rosemary.

@gaylea1
Do you know about the “Pages” section on Connect? You can locate it in header at top of this page. You can scroll to the Transplant Pages where there is more people transplant information by the transplant staff. I think you will enjoy the newsfeed blogs!
Sorry for not sending link. I’m on iPhone and that is beyond my skill level!

Time for bed here. Routine labs in the morning. Rosemary