1. < MAC & Bronchiectasis

Tips for travelling with MAC

Posted by terryb1 @128128terry11t, Mar 6, 2018

Would appreciate any tips for traveling: How do you clean the aerobika and nebulizer? How do you handle weekly sterilizing? Can you just use a nebulizer (with saline solution) without an aerobika (one less piece of equipment to clean) along with a travel size compressor? Looking forward to hearing how all this is handled. Thank you.

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migizii | @migizii | Mar 22, 2019
In reply to @128128terry11t "I happen to be away doing the following for the first time: I asked my pulmonologist..." + (show)
@128128terry11t

I happen to be away doing the following for the first time: I asked my pulmonologist if I could do this (did not inquire for how long) and he replied that he would rather that I use an aerobika but had no problem with my doing this while on vacation. I am finding it so incredibly freeing! I just use a disposable nebulizer ($2.99 per unit), bring my saline, and my small compressor and away I go!!! For example, if I am away for 5 days, I bring 5 disposable nebulizers (all in individual small bags -easy to pack), I simply throw the nebulizer out when done. I no longer bring bowls, worry about having a microwave, purchasing distilled water for cleaning and rinsing, etc,, etc. Hope this is helpful. Please check with your doctor to make sure that he/she has no problem with your doing so.

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@migizii This sounds like a wonderful way to travel! I’ve tried a variety of ways but I really like the disposable nebulizer! May I ask, where do you get them?

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1 reply
terryb1 | @128128terry11t | Mar 22, 2019
In reply to @megan123 "Hi Terry....iDr Falkingham, microbiologist who speaks regularly at National Jewish...he is the Mac guru, world renown..." + (show)
@megan123

Hi Terry....iDr Falkingham, microbiologist who speaks regularly at National Jewish...he is the Mac guru, world renown recommend N95 mask, as it keeps out MAC...Mayo Clinic as well...I throw out mask if it gets too wet from shower...can't always take a agh when u travel

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Just purchased the 3M N95 (20 count) mask from Amazon. Is there a more specific model recommended by Dr. Falkinham? Your advice is much appreciated.

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terryb1 | @128128terry11t | Mar 22, 2019
In reply to @migizii "@migizii This sounds like a wonderful way to travel! I’ve tried a variety of ways but..." + (show)
@migizii

@migizii This sounds like a wonderful way to travel! I’ve tried a variety of ways but I really like the disposable nebulizer! May I ask, where do you get them?

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I got my disposable nebulizers from justnebulizers.com. I believe that you can buy them individually, in a pack of 10, or a case of 50.

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2 replies
Jennifer | @megan123 | Mar 23, 2019

Hi Terry...that's the one that I use as well

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Mar 23, 2019
In reply to @tinaesims "Where do you find a N95 mask?" + (show)
@tinaesims

Where do you find a N95 mask?

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@tinaesims I believe the N95 mask is made by 3M. I buy mine at a paint store like Sherwin Williams (2 per pack) But it seems a better deal to buy carton of 20 on Amazon.

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Mar 23, 2019
In reply to @128128terry11t "I got my disposable nebulizers from justnebulizers.com. I believe that you can buy them individually, in..." + (show)
@128128terry11t

I got my disposable nebulizers from justnebulizers.com. I believe that you can buy them individually, in a pack of 10, or a case of 50.

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@128128terry11t Hi Terry. I never knew that disposable nebulizers even existed! I don't travel much, but I intend to soon.

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2 replies
nannette | @nannette | Mar 23, 2019
In reply to @windwalker "@128128terry11t Hi Terry. I never knew that disposable nebulizers even existed! I don't travel much, but..." + (show)
@windwalker

@128128terry11t Hi Terry. I never knew that disposable nebulizers even existed! I don't travel much, but I intend to soon.

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@windwalker Terri, I had not heard of them either but I went to the site that Terry said she bought hers, justnebulizers.com, and bought a pack of 50 for $55.00 which makes them $1.10 a piece. That's so great because now I don't have to take a bowl and cleaning stuff when I go on a trip. I can just toss them. Thanks @128128terry11t !!!!

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1 reply
terryb1 | @128128terry11t | Mar 23, 2019
In reply to @windwalker "@128128terry11t Hi Terry. I never knew that disposable nebulizers even existed! I don't travel much, but..." + (show)
@windwalker

@128128terry11t Hi Terry. I never knew that disposable nebulizers even existed! I don't travel much, but I intend to soon.

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We learn so much from each other. I am so grateful that a site like this exists. We are truly not alone on this journey.

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kjellis | @kjellis | Mar 23, 2019

I have learned so much since I started following this group. I thank all of you so much for your input while on this journey.

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1 reply
terryb1 | @128128terry11t | Mar 23, 2019
In reply to @nannette "@windwalker Terri, I had not heard of them either but I went to the site that..." + (show)
@nannette

@windwalker Terri, I had not heard of them either but I went to the site that Terry said she bought hers, justnebulizers.com, and bought a pack of 50 for $55.00 which makes them $1.10 a piece. That's so great because now I don't have to take a bowl and cleaning stuff when I go on a trip. I can just toss them. Thanks @128128terry11t !!!!

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I purchased the Micro Mist disposable nebulizer set from justnebulizers.com. It is more expensive than the Vix One that you purchased The case of 50 of the Micro Mist costs about $85. Your Vix One only costs $55, which is terrific. I have one question: Does your Vix One come with the disposable tubing that is necessary to connect the nebulizer with the compressor? I didn't see the tubing on the picture displayed on the website.

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