tips for travel

Posted by terryb1 @128128terry11t, Mar 6, 2018

Would appreciate any tips for traveling: How do you clean the aerobika and nebulizer? How do you handle weekly sterilizing? Can you just use a nebulizer (with saline solution) without an aerobika (one less piece of equipment to clean) along with a travel size compressor? Looking forward to hearing how all this is handled. Thank you.

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Still wondering how long to sterilize an aerobic in a seamer bag. Thanks for your help.

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I am traveling from NC to Amsterdam next week, will then take a river cruise down the Rhine. I’d like some help on how to manage this trip with my Bronchiestis. I am very short of breath, coughing a lot. I will take Clear Lungs with me also my nebulizer. I don’t want to spend time in the cabin nor do I want to hold up a tour.
Any ideas would be appreciated.

Liked by Dee

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Hi @taya you may have noticed I moved your post to this existing discussion on traveling with MAC or Bronchiectasis so that you can read what others have said about traveling with these diseases.

I'd like to tag fellow Connect members @megan123 who went to Cuba recently and may be able to offer ideas for your trip.

Back to you @taya, have you spoken to your doctor? Have they given you any suggestions?

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@taya Hi Taya, I've made 4 European river cruises with bronchiectasis over the last 12 years. The great thing about river cruises is their ability to accommodate people with a variety of capabilities. If you need to join the "gentle" walking group, you can do that. If you need to hear the lecture but tour on your own, you can do that. You won't get lost. You'll want to use your nebulizer in your state room, and no one will be bothered. I'm sure you won't want to bother other passengers with your cough, but the most important thing is to let them know your cough is not contagious — that's what they'll be worried about. If you have a bad coughing bout, you should probably move to your room until it settles down. As long as this is something you want to do, I can assure you it can be done, and you will have a great experience and learn a ton. Asking your doctor for advice well before you leave is a great suggestion, and of course make sure you travel not only with the medicine you do need, but also with medicine you might need. Bon voyage!

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@ethanmcconkey

Hi @taya you may have noticed I moved your post to this existing discussion on traveling with MAC or Bronchiectasis so that you can read what others have said about traveling with these diseases.

I'd like to tag fellow Connect members @megan123 who went to Cuba recently and may be able to offer ideas for your trip.

Back to you @taya, have you spoken to your doctor? Have they given you any suggestions?

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Hi Taya…Cuba was awesome..I always bring boiled bottled water with me to drink and vinegar to clean my aerobika and nebulizer..I don’t drink their water, and no swimming pools, just the ocean, and no dunking…beer from tap, pop from bottles…N95 mask when showering in Luke warm water, and a quick one….I stick to this routine and it wrks….am in Glirida now, and am boiling my drinking water for 10 minutes..same routine👍🏼👍🏼

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@megan123

Hi Taya…Cuba was awesome..I always bring boiled bottled water with me to drink and vinegar to clean my aerobika and nebulizer..I don’t drink their water, and no swimming pools, just the ocean, and no dunking…beer from tap, pop from bottles…N95 mask when showering in Luke warm water, and a quick one….I stick to this routine and it wrks….am in Glirida now, and am boiling my drinking water for 10 minutes..same routine👍🏼👍🏼

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Florida. Lol

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@megan123 Hi Jen. I hope you've talked Ed to stopping here for an over-nighter on your way home. wink, wink!

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@tinaesims

I have the microwave bags but have never figured out how to use them. How long do you but the aarobika in for?

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I've asked the same question and have not received a reply. I would also like to know.

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@jenblalock

I use microwave bags for steaming and carry a medium sized Rubbermaid bowl with a small container of dish liquid for daily cleaning. NJH said do not use motel sinks because they might harbor bacteria. If you aren't flying you could take some distilled water with you or buy at destination. My nebulizer is small enough to travel with. It's a Phillips. You can get small ones that even have car adapters.

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Thanks for all the useful advice

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I happen to be away doing the following for the first time: I asked my pulmonologist if I could do this (did not inquire for how long) and he replied that he would rather that I use an aerobika but had no problem with my doing this while on vacation. I am finding it so incredibly freeing! I just use a disposable nebulizer ($2.99 per unit), bring my saline, and my small compressor and away I go!!! For example, if I am away for 5 days, I bring 5 disposable nebulizers (all in individual small bags -easy to pack), I simply throw the nebulizer out when done. I no longer bring bowls, worry about having a microwave, purchasing distilled water for cleaning and rinsing, etc,, etc. Hope this is helpful. Please check with your doctor to make sure that he/she has no problem with your doing so.

Liked by Dee

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@megan123

Hi Taya…Cuba was awesome..I always bring boiled bottled water with me to drink and vinegar to clean my aerobika and nebulizer..I don’t drink their water, and no swimming pools, just the ocean, and no dunking…beer from tap, pop from bottles…N95 mask when showering in Luke warm water, and a quick one….I stick to this routine and it wrks….am in Glirida now, and am boiling my drinking water for 10 minutes..same routine👍🏼👍🏼

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Which N95 mask do you use when showering? After being wet, is it reusable? Did someone advise you that the N95 mask truly filters out the bacteria that is aerosolized when showering? Thank you.

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@128128terry11t

Which N95 mask do you use when showering? After being wet, is it reusable? Did someone advise you that the N95 mask truly filters out the bacteria that is aerosolized when showering? Thank you.

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Hi Terry….iDr Falkingham, microbiologist who speaks regularly at National Jewish…he is the Mac guru, world renown recommend N95 mask, as it keeps out MAC…Mayo Clinic as well…I throw out mask if it gets too wet from shower…can't always take a agh when u travel

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What brand do you buy please. N95?

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Where do you find a N95 mask?

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Hi Terry….I am presuming if it works for MAC in shower as well??? I will Imail him and ask…

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