Thyroid? Or something else? Constant internal shakiness

I'm so sorry for the difficulty you are experiencing. I have had Grave's disease for about 20 years. About a year ago I switched from hyperthyroid to hypothyroid as my thyroid has "burned out". Apparently this can happen after years of making too much thyroid. The only way that I discovered the change was because I had a sudden onset of high blood pressure. My BP is normally on the low side, so this was really unusual. After describing other symptoms, like dry skin, dry eyes and dry mouth, my doctor ordered some thyroid tests. I was low on thyroid and my TSH was through the roof so my doctor started me on a low dose of thyroxodine. Amazingly, my BP immediately went back to my normal normal lower BP.

I was curious if you have been put on any kind of thyroid replacement and if you have, has it made any difference? Hoping things improve for you. When the thyroid is out of whack, it seems like everything is out of whack. Good luck. Donna

i have this vibration all over and its getting worse i am feeling even like dizzy, i have gone to nerurologist and did all tests he didn't find anything, i have Hashimoto's but my labs are mostly ok although my TSH is a vit hight for me, i feel fine in 1.0 and it is aroun 2.20, but this is driving me insane nobody can find out what it is.

I had the same thing until I had been on the Gabapentin for 2-3 weeks and then it stoped and hasn't returned in 4 years.

We can self refer to Mayo.

If you do, tell registration all of the body systems you are having challenges with.

I told the Mayo Internist to put me through a fine tooth comb to find out everything I was dealing with. Sent to several specialists, I finally got help at Mayo.

Sometimes we have to be tenacious self advocates.

I have had Hashimoto's for more than 30 years. Diagnosed by an endocrinologist in the early 90's. Levothyroxine overdose was the cause of much more violent internal "earthquakes" (is what i called them) for me. A functional Dr. (I found after 10 years of suffering and being told it was all in my head), switched me to Armour Thyroid (desiccated pig thyroid) - and I was a right as rain. He said that some people (like 10%) have trouble with the conversion of T4 to T3 (Levothyroxine is T4). Armour is a combination of T3 and T4. Most people can convert Levo (T4) to T3 as necessary. But he explained, that with an autoimmune disease like Hashimoto's AND with someone with conversion problems, the thyroid is still producing thyroid hormone - only the immune system is killing it before it can get to the cellular level where we "feel" better. Sometimes, he further explained, some of the natural thyroid hormone gets through and when combined with supplemental thyroid hormone, we can go into a state of "Thyroid Storm", or overdose. One theory was perhaps the immune system gets distracted from killing thyroid hormones, as in fighting an infection, etc., and the natural hormone is not destroyed, gets through the immune attach, mixes with the added / supplemental hormone, and bang - you have these "overdose" symptoms. Other causes can be in mixing T4 with for instance calcium supplements (the Tums are mostly calcium). There is definitely a calcium connection with the thyroid, / taking thyroid supplements. There is also a salt connection, particularly if you eat the common sodium chloride salt (AKA table salt). I had the most terrible thyroid storm once (with levo) after eating a huge hot dog, that was particularly salty. Same with taking calcium supplements at the same time as levo. That was way before they began to put the sticker on prescription levo / Armour, re: "do not take with calcium supplements". There has also been study after study that warns of using Flouride Bromide, or chloride (chlorine), (AKA Halides) as they can displace / attach themselves to the iodine receptors of the thyroid and again wreak havoc on the endocrine system, and any attempts we may be making towards supplementing an autoimmune disorder such as Hashimoto's. Health industry advocates would also point to stressed adrenals, however, mainstream medicine still does not recognize adrenals as contributory, for the most part. If one was to address adrenals, then things like coffee, alcohol, and other stimulants would be avoided. My experience in dealing with Hashimotos for all these many years is to eliminate as many inflammation-causing foods as possible (alcohol being number one - darn it!). Gluten / processed and fast foods being a close second. So many inflammation avenues that one must consider when dealing with any autoimmune disorder. And with Hashimotos, you must have a thyroid replacement hormone - you won't have any semblance of a normal life without it. The unbelievably sad part is - even if you find an endocrinologist who will run the thyroid antibodies test. (TSH, T3, T4 test alone won't find Hashimotos). they don't seem to want to do it! Recently had a family member who cannot pin down the many obviously hormone-related problems she is having, finally secured an appointment with an endo, and he actually said, "So what if we do find Hashimotos?" "There is no cure for it!" "Why do you want to know?" While there probably is no cure (There are those who say it is possible to put autoimmune into remission) - there is treatment! Thyroid Replacement Hormone!
The constant internal shakiness is most probably an imbalance of T3 / T4 in someway - regardless of whether it is undermedicated, overmedicated, or not medicated at all - or of an interference with replacement hormone, like calcium, fluoride, bromide (found in flour - "Bleached wheat flour" in the US - outlawed int the UK). That has been my painfully acquired education and experience. The good news? Once you start paying attention to when / how these episodes occur, (assuming you do have supplemental thyroid hormones of some sort) - life with Hashimotos can be fairly close to normal wonderful!

HELLO THANK YOU FOR YOUR POST I LEARNED A LOT FROM IT AS I HAVE GRAVES DISEASE AUTOMMUNE DISEASE ALSO DONT KNOW WHERE THE CAUSE OF IT IS. MY EYES ARE AFFECTED DOUBLE VISION. TAKE CARE TERESA

Yes, Graves Disease does affect the eyes - most notably. However, the treatment for Graves is not more thyroid hormone, but other medicines of which I know a lot less about. I do know that Graves's disease is very treatable. Are you taking medicine / being treated? Oddly enough, I heard that in the bad old days, when much less was known about treatment for Graves, that "Flouride" and "Chloride" were some of the things they chose to try and stifle thyroid hormone production! There are much more effective medicines today - or so I've heard.

I have the internal shakiness 24/7 i suffer from Hashimoto's but nobody knows what it is from either, i am going crazy. The only thing is my BP does not go up but this is horrible i feel inside like when you are cold that you tremble all over plus i have Tinnitus that makes it worse. I have an appointment next Tuesday with my endo, although i do not trust any been to nine of them and none knows too much about my condition. I have been to the Neurologist and done many test and nothing just some white matter but he says that is nothing, have and MRI and an MRA both ok, have many labs and nothing so it is really very frustrating. If you find anything that helps you or take it away please let me know

Hi, i also have those vibrations/internal shakiness and for many years now been to neurologist, have MRI AND MRA and found nothing my endo knows nothing or any other doctor very frustratiing. If you find out what it is please share it, thanks

I'm so sorry the ER didn't listen 😔 I hope you are healing