1. < Heart & Blood Health

Pericarditis/Constrictive Pericarditis

Posted by kalel @kalel, Feb 18, 2018

Hello, I would like to learn if anyone here has or had Constrictive Pericarditis. What are the treatments, which doctor in Mayo clinic you recommend?

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helena4000 | @helena4000 | May 3, 2019
In reply to @estrada53 "@helena4000 I'm so sorry you are feeling so much pain. Have your doctors rules out costochondritis?..." + (show)
@estrada53

@helena4000 I'm so sorry you are feeling so much pain. Have your doctors rules out costochondritis? It's inflammation in the cartilage between your ribs and can feel horrible.

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He didn't mention that, but the cardiologist saw the ultrasound and inflammation. I did actually consider that condition in my hunt for what could be wrong but I didn't think my symptoms matched it.

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pureprousa | @pureprousa | Sep 29, 2019

My son who is 26 years old has been diagnosed with pericarditis it has been two months and he is not getting better he is on colchicine and pain med he has been through a lot and I am wondering if anyone has gone through this or how long does it take I am afraid he is not managed right

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1 reply
pureprousa | @pureprousa | Sep 29, 2019
In reply to @kalel "Hello group, I wanted to be available to all of you to share my story and..." + (show)
@kalel

Hello group, I wanted to be available to all of you to share my story and be of value/resource to the group. CP is an uncommon condition and not that you can find many resources about. I developed this condition after none-symptomatic pneumonia, and the symptoms I was having were perceived by my doctor as anxiety and chronic fatigue. It took me doing research on CFS that lead me to request my doctor to do a stress test in the heart and that the technician was not able to do because she found something there. 8 months after it took to discover the constrictive pericarditis and by that time the water had calcified. I visited 5 different cardiologists and all agree with the diagnoses, but out of this five 2 help me doubt that surgery was my only option. Although it was very scary and I having a limited life, I changed my diet to low inflammation diet and took many natural remedies. I would have flares and many times sore throats a will debilitate me and was living with the fear of surgery until I finally was able to visit a Mayo specialist that finally gave me the green light to have a normal life and to continue with my healthy eating protocol. Although I have to keep a check on keeping my immune system up good, I can say I am much better and moving forward with no surgery. So do not believe cardiologist because they are not surgeons, always look for a specialist on this type of conditions.

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Thank you for sharing this and I hope your doing well can I ask you what kind of diet did you follow thanks

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chads33 | @chads33 | Sep 30, 2019
In reply to @pureprousa "My son who is 26 years old has been diagnosed with pericarditis it has been two..." + (show)
@pureprousa

My son who is 26 years old has been diagnosed with pericarditis it has been two months and he is not getting better he is on colchicine and pain med he has been through a lot and I am wondering if anyone has gone through this or how long does it take I am afraid he is not managed right

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Hi,

Myself I have had this on and off confirmed 7 times from 15 to now 28 years old from 1 month to 7 months. Is he by any chance taking aspirin or advil derivitive ? I am asking as for some reason beyond Dr knowledge I cannot take either as it actually increases symptoms and pain.

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1 reply
pureprousa | @pureprousa | Sep 30, 2019
In reply to @chads33 "Hi, Myself I have had this on and off confirmed 7 times from 15 to now..." + (show)
@chads33

Hi,

Myself I have had this on and off confirmed 7 times from 15 to now 28 years old from 1 month to 7 months. Is he by any chance taking aspirin or advil derivitive ? I am asking as for some reason beyond Dr knowledge I cannot take either as it actually increases symptoms and pain.

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Good morning

He is taking Tylenol Can I ask you how high your heart rate got to?? Did they give you prednisone?? We’re you on bed rest for all this time or you are practicing your life with pain? Thank you for any help god be with you always

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pureprousa | @pureprousa | Oct 2, 2019
In reply to @hopeful33250 "@pureprousa I'm so pleased that you have an appointment at Mayo in October. Fromm what I've..." + (show)
@hopeful33250

@pureprousa I'm so pleased that you have an appointment at Mayo in October. Fromm what I've read, it appears that recovery can take a long time. Mayo Clinic has a way of putting the puzzles pieces of symptoms together and making a good treatment plan and diagnosis.

Did you look at the video I posted yesterday? It may give you some helpful information.

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Dear Teresa

No I didn’t see the video where can I see it I would love to watch it thanks

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pureprousa | @pureprousa | Oct 2, 2019

My son is diagnosed with pericarditis I am trying to connect with members who had this disease anyone in this group??

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1 reply
pureprousa | @pureprousa | Oct 2, 2019
In reply to @lucky1038 "hi -- i've been through 5 cardiologists so far. and i've had to do a lot..." + (show)
@lucky1038

hi -- i've been through 5 cardiologists so far. and i've had to do a lot of research b/cuz i don't get any thoughtful answers from the drs. so i am not qualified to tell you anything. but i'll share my experiences w. you if you want.

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I would love to hear your experience and we have seen four cardiologist so far no answers we are waiting for our appointment at Mayo Clinic at the end of the month so frustrated with this

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 2, 2019
In reply to @pureprousa "Good morning my son is 26 years old I took an appointment with Mayo Clinic for..." + (show)
@pureprousa

Good morning my son is 26 years old I took an appointment with Mayo Clinic for second opinion but they won’t see him unit October 30 so I was trying to look for answers/solutions

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@pureprousa I'm so pleased that you have an appointment at Mayo in October. Fromm what I've read, it appears that recovery can take a long time. Mayo Clinic has a way of putting the puzzles pieces of symptoms together and making a good treatment plan and diagnosis.

Did you look at the video I posted yesterday? It may give you some helpful information.

REPLY
1 reply
lucky1038 | @lucky1038 | Oct 2, 2019
In reply to @pureprousa "Good morning my son is 26 years old I took an appointment with Mayo Clinic for..." + (show)
@pureprousa

Good morning my son is 26 years old I took an appointment with Mayo Clinic for second opinion but they won’t see him unit October 30 so I was trying to look for answers/solutions

Jump to this post

hi -- i've been through 5 cardiologists so far. and i've had to do a lot of research b/cuz i don't get any thoughtful answers from the drs. so i am not qualified to tell you anything. but i'll share my experiences w. you if you want.

REPLY
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