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Aneurysm, Thalamic stroke: What can we do further for recovery?
My father was diagnosed with left P1 PCA and PCom junction aneurysm with mass effect over the pons and T2/FLAIR hyperintensity noted in pons, left middle cerebellar peduncle and superior cerebellum. The aneurysm measuring about 3.2(CC) * 2.4(TRA) * 2.7 (AP) cm.
Large dissecting P1 PCA aneurysm was treated with coil embolization by trapping from both left PCom and left P1 PCA.
Postoperatively, patient developed left PCA territory and P1 perforator infarcts (bilateral thalamic). Effective tracheostomy was done.
PEG was done for food intake. VP shunting was done for hydrocephalus.
After six months of coiling procedure, there is no distinct decrease in size of aneurysm and there has been odema according to latest MRI. He is maintaining oxygen saturation in room air. Moving of right upper and lower limb on painful stimuli. Sometimes, left limbs too. There is ever lasting dilatation of left pupil. The position of right hand of body is that of medial rotation with stiffness in both lower and upper right limb. There is irregular sweating from the right side of the body. He himself is an orthopaedic surgeon. What can we do further for his treatment? Any help, suggestions? Can we bring back his tone with physiotherapy ?
I believe in miracles.
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Hello @ktmnep,
Welcome to Connect. That last statement in your message, "I believe in miracles," – I love it!
I encourage you to view these Q&As on on Connect, where you can also meet a few members who've written about about PCoM Aneurysms.
– Mayo Clinic NeuroChat about Aneurysms and 3D Modeling (New research, Innovative Methods) https://connect.mayoclinic.org/webinar/mayoclinicneurochat-about-aneurysms-and-3d-modeling/
– MayoClinic Neuro Chat about Brain Aneurysms
https://connect.mayoclinic.org/webinar/mayoclinicneurochat-about-brain-aneurysms/
I'd also like to invite fellow members @patriciadip @buffaloriver @lsatenst1 @soloact @lakelifelady @beachgal8 @maryar into this discussion to share their experiences with stroke rehabilitation, further treatment, and regaining mobility. @hump1278 has also talking about spasticity and may be able to offer their experience.
Here is online information about stroke including rehabilitation, with additional links describing the care at Mayo Clinic and how to request an appointment http://www.mayoclinic.org/diseases-conditions/stroke/home/ovc-20117264.
You may also appreciate this article “Stroke rehabilitation: What to expect as you recover” http://www.mayoclinic.org/stroke-rehabilitation/art-20045172?pg=1
@kariulrich, might you have some thoughts for @ktmnep?
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2 ReactionsWhat should I do to take suggestion from expert doctors @kanaazpereira ? Rquest an appointment or can i do it from Mayo clinic connect itself ?
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1 Reaction@ktmnep welcome and what a wonderful advocate you are for your father! I would recommend having your father's primary physician contacting Mayo Clinic, you may also do this yourself as a direct referral. I can only speak from my experience, but I have found the neurology department at Mayo Clinic Rochester to be quite helpful in understanding my care, especially in regards to the latest treatment and helping decide the best path for my care. Here is a link to get you started: https://www.mayoclinic.org/departments-centers/neurology/sections/request-appointment/ptc-20117069
Hi, @ktmnep -- for this you'd want to contact Mayo Clinic to request an appointment at http://mayocl.in/2ClDe1h. All the best.
Thank you very much @kariulrich @lisalucier
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1 ReactionI have had 3 thalmic strokes with damage to sensory nerve and the part of the brain that is referred to as the "pain control center " in the left side of the thalamus
The damage has affected the right side of body with foot drop and extreme "electric shock feeling "
also continous " migraine type headaches "
Has anyone else had anything like this ?
I also have super sensitive to noise everything is extremely loud to me
In my right ear , I wear a headband 24/7 to help drown out the sound and the tightness of the headband helps with the constant headache
Thank you in advance for any information you provide me
Hi @tammynbryan
I moved your message to this existing discussion about thalamic stroke in the Stroke & Cerebrovascular Diseases group (https://connect.mayoclinic.org/group/cerebrovascular-diseases/) so you could meet other members like @catcat @ktmnep and @kariulrich.
You may also appreciate this article “Stroke rehabilitation: What to expect as you recover” http://www.mayoclinic.org/stroke-rehabilitation/art-20045172?pg=1
Have you taken part in a stroke rehab program? How long ago were your strokes?
My husband had three strokes in April 2021. He describes his right side as if he is holding a wet sponge in one hand and plugging the other into 220 electricity. This is pretty constant when he moves, disrupting his sleep and his therapy. Oddly, when he gets into a pool of water it goes away temporarily. Extreme tightness feeling along right side and numbness but still has mobility. His vision was also affected ... he has a small 1/2”wX 30” h blind spot from both eyes. Sees well away but does affect close up reading etc.
Have you found anything to help ramp down the electrical shock like feeling? Husband had tried Gabapentin and lamotrigine (sp?) but not really helping.
Pickleballnut, you say that the electric feeling that your husband experiences also disrupts his therapy. What therapy is he doing? Is he with a medical professional when he does the therapy?
I ask because I wonder if they have given suggestions to ease the feeling or how to work through or with it?