1. < Aortic Aneurysms

Aortic Aneurysms – Introduce yourself & meet others

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Feb 16, 2018

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms.

Get started rby clicking the +FOLLOW icon on the group page here: https://connect.mayoclinic.org/group/aneurysms/

There are some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Kanaaz Pereira, Connect Moderator | @kanaazpereira | Apr 29, 2019

Hi everyone,

I'd like to invite you to join us today, Monday, April 29th at 12 p.m. CT for a video Q&A with Dr. Hector Michelena, cardiologist, Dr. Gabor Bagameri, cardiovascular surgeon, and Dr. Alberto Pochettino, cardiovascular surgeon, about watchful waiting for thoracic aortic aneurysms.

Simply click on the link below, for details and to take part in the video Q&A live.
– https://connect.mayoclinic.org/webinar/video-qa-about-thoracic-aortic-aneurysms/

Drs. Michelena, Bagameri, and Pochettino will answer questions live. Post your questions before and during the broadcast.

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jesse55 | @jesse55 | Apr 29, 2019

hi, jesse55 here with aortic aneurism. md's want to do something up thru groin pretty quick here.. next couple of weeks anyway... me sceeered

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jesse55 | @jesse55 | Apr 29, 2019
In reply to @llouiset "Hi, I am told that I have an arterial infundibulum; But no one has bothered to..." + (show)
@llouiset

Hi, I am told that I have an arterial infundibulum; But no one has bothered to tell me much, except not to worry. In the meantime, I think about my Mom who died when she bled out from an aneurysm, "in her back." That's really all I know. For the most part I am healthy, but have had a lot of headaches, lasting for more than a month now. After seeing the dentist, they had me do a MRI, & MRA test. Now I'm scheduled to see the physical therapist. I am wondering if I should be doing more? Any thoughts? LLouiseT

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same thing happened to my dad... but he did not know it was there as far as I know

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jesse55 | @jesse55 | Apr 29, 2019
In reply to @kdh1 "I have a question about after the AAA surgery, I had my first and only check..." + (show)
@kdh1

I have a question about after the AAA surgery, I had my first and only check one month after my surgery the Dr. Said. See you in 5 years . is this the normal amount of time between visits . in the repair he had to remove the aneurysm and sew up the open part of the aorta. Could the thread or material used break over time? Anyone that has had a AAA please let me know how. Often you saw the Dr. after surgery. Thank you kdh1

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ditto for me with this answer. mine is 5.4 now... found by accident in CT for UC.

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beekb | @beekb | May 10, 2019

Hello. Here is my dx - a dr at mayo said watch and wait. So freaked out that depression, anxiety and insomnia has set in. Hopefully med will work soon as I cannot sleep or eat much and in a constant sweat. I’m on a cpap since2014and wondering if I have pulmonary hypertension as as I get breathless when I talk a lot and if interfering w sleep. Can’t walk far or fast.

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1 reply
rory | @rory | May 10, 2019
In reply to @beekb "Hello. Here is my dx - a dr at mayo said watch and wait. So freaked..." + (show)
@beekb

Hello. Here is my dx - a dr at mayo said watch and wait. So freaked out that depression, anxiety and insomnia has set in. Hopefully med will work soon as I cannot sleep or eat much and in a constant sweat. I’m on a cpap since2014and wondering if I have pulmonary hypertension as as I get breathless when I talk a lot and if interfering w sleep. Can’t walk far or fast.

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Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now I am up to 4.5 cm. Cardiologist says cannot do anything until it reaches 5.0 -5.5. I also have mild to moderate regurgitation. Every time I go to the doctor I continue to worry every day but there’s nothing we could do. I have a lot of anxiety and I get palpitations all the time and I try not to think about it. But I know what you’re going through. I go every six months for a chest scan and echo cardio gram. I am on medication for anxiety but sometimes it doesn’t help when you keep thinking about it and getting the palpitations. Don’t worry we’re all in the same boat. Love to hear back from you

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2 replies
beekb | @beekb | May 10, 2019
In reply to @rory "Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now..." + (show)
@rory

Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now I am up to 4.5 cm. Cardiologist says cannot do anything until it reaches 5.0 -5.5. I also have mild to moderate regurgitation. Every time I go to the doctor I continue to worry every day but there’s nothing we could do. I have a lot of anxiety and I get palpitations all the time and I try not to think about it. But I know what you’re going through. I go every six months for a chest scan and echo cardio gram. I am on medication for anxiety but sometimes it doesn’t help when you keep thinking about it and getting the palpitations. Don’t worry we’re all in the same boat. Love to hear back from you

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Hi Rory thank u for yr reply. I’m not sure how to use these boards quite yet. I feel like mayo just dx and sent me away. My local providers are good so I will follow up. Maybe sooner . If I could get sleep I would feel better. I’m taking an antidepressant now (couple weeks) that worked in the past for anxiety and postpartum depression. I posted other info on a mental health board today as well -the reason I went to mayo in first place was a study for Nash nonalcoholic fatty liver disease where I got a Mre and a biopsy which answered some questions but left more if u want to read that. I just try to keep as busy as my fatigue allows. Thank you for your kindness. I see there’s a messages section maybe u could pm me and we can converse more. ❤️

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1 reply
rory | @rory | May 10, 2019
In reply to @rory "Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now..." + (show)
@rory

Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now I am up to 4.5 cm. Cardiologist says cannot do anything until it reaches 5.0 -5.5. I also have mild to moderate regurgitation. Every time I go to the doctor I continue to worry every day but there’s nothing we could do. I have a lot of anxiety and I get palpitations all the time and I try not to think about it. But I know what you’re going through. I go every six months for a chest scan and echo cardio gram. I am on medication for anxiety but sometimes it doesn’t help when you keep thinking about it and getting the palpitations. Don’t worry we’re all in the same boat. Love to hear back from you

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Hi again. Anytime you want to talk or converse you can contact me. I used to teach high school Spanish that’s why I have Señora as my email. Just to give you some info about myself I am 67 my first name is Denise. Rory is my grandson and that’s why I use that for my name on this link. Email me anytime with any of your concerns. I try to keep busy babysitting I have four grandchildren. I think keeping active helps us forget and not to worry too much. But feel free to email me anytime. Would love to keep in touch with you

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rory | @rory | May 10, 2019
In reply to @beekb "Hi Rory thank u for yr reply. I’m not sure how to use these boards quite..." + (show)
@beekb

Hi Rory thank u for yr reply. I’m not sure how to use these boards quite yet. I feel like mayo just dx and sent me away. My local providers are good so I will follow up. Maybe sooner . If I could get sleep I would feel better. I’m taking an antidepressant now (couple weeks) that worked in the past for anxiety and postpartum depression. I posted other info on a mental health board today as well -the reason I went to mayo in first place was a study for Nash nonalcoholic fatty liver disease where I got a Mre and a biopsy which answered some questions but left more if u want to read that. I just try to keep as busy as my fatigue allows. Thank you for your kindness. I see there’s a messages section maybe u could pm me and we can converse more. ❤️

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Hi again. Good to hear from you. Let me know if you’d like to message me and talk about anything. I’m writing this again because I think I just might’ve sent a reply back to myself LOL but To give you some background about myself I am 67 my first name is Denise. I use Rory as my name on this website because he’s my grandson. Please feel free to email me anytime would love to keep in touch to find out how you’re doing and let you know how I’m doing keep busy that’s what I try to do

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Drew944 | @Drew944 | May 15, 2019

Hi feel down too and try to keep my self up- I’m 48 and felt palpitations on and off since I was 8. I have 2 daughters 3 and 5. A 4.3 aneurysm was found incidentally 6/2018. Been depressed and scared since. I just wanted to share all the positive notes I have been taking to help make my self feel better which sometimes helps:
I wil be fine
Managed/Monitored.
no treatment needed
try not to worry about it
based on size - not dangerous - may never grow larger- keep bp low as it is-mine small-enlarged will be fixed if ever grows-routine
small/stable
no treatment needed-no surgercal indication now or ever only requires observation
no limitations other than bench/heavy weights
can live entire lives with this size and nothing happening
treatable when small - repairable when larger - there is a fix - monitored - most important.
gradual
too small - not a prob
many years checking - not now
keep fit
live and let live
keep up w apts
listen to dr's
repair rate high ie 98% - Full Recovery - Excellent They do millions of these
prob- 10 years - maybe more or ever- out repair - maybe new meds or non/minimaly-invasive fix's
stop thinking about it Dont do this to myself
file under all other worries u dont think of.

STAY POSITIVE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

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